Breast Cancer Now Forum

Hi @Nasus, hope you’re well and recovered from Covid. Just thought I’d let you know how I’ve been getting on - however also noting that I’ve only done two full weeks now. So far, not too bad. Two instances of dodgy tummy, quickly controlled with Imodium. Thankfully at home both times!  There’s an awful lot of gurgling going on and frankly, I’m full of wind..but it’s more slightly uncomfortable - like I’ve over indulged - rather than crampy. Bloods taken after one week were good, we’ll see how that goes - I have felt a little fatigued but that could the the combo of meds, going back to work and trying to start running again. On the plus side, sleeping like a baby… Not as bad as I thought it might be. Early days but so far manageable. Fingers crossed it stays like that xx   ... View more

I don’t think it’s ever too late to use bio oil!!  I’ve used it on and off for years. Currently using the natural version which I think is even better than the original. ... View more

I was given Flamigel by my radiotherapy unit and applied it 3 times a day during rads (at least a couple of hours before session, immediately after session and before bed) and carried on doing this for 3 weeks after rads had finished.  Since then I’ve been using bio oil on my scar - which is now almost invisible - and Cerave lotion everywhere else. Takes FOREVER to get ready for bed now!!  I spent a lot of time reading up on different construction options and interpreted much of what I read, as meaning I wouldn’t be able to have reconstruction before radiotherapy. I’d prepared myself to go flat for a period but when I met my surgeon she dismissed this and said that with modern techniques (both surgery and radiotherapy) there was no reason why this wasn’t possible. We did only discuss implant because by the time I’d met her, I’d decided on that rather than the more complex flap procedures xx   ... View more

I had chemo, then mastectomy with implant reconstruction, followed by radiotherapy. Now nearly three months since rads finished and there’s no obvious damage to the implant - which I’m also really pleased with. I would try and speak with your surgeon and oncologist to see what their thoughts are on the likelihood of damage occurring. My surgeon said it was very unlikely which was why she recommended immediate reconstruction.  Best wishes for the rest of your treatment x ... View more

Thanks Susan, I’ve been warned that tummy troubles are the most common issue…deep joy…although interesting to note it wasn’t immediate for you. Did they give you stuff to counteract it, like Imodium?  I am comforted by the additional monitoring I’ll get and good to see they’re keeping a very close eye on you. I was also told it’s all about working out the right dose for me, I’ll keep you posted!  Sorry to hear you’ve got Covid, hope you’re not feeling too bad with it. Wishing you a speedy recovery. Nardine x     ... View more

Hi Susan, I hope you don’t mind me contacting you via this post - I’ve been trying to find others who are taking this drug. There doesn’t seem to be many for primary BC. I’m due to start taking it on 10th January, alongside Letrozole - trying to be stoic/pragmatic about possible side effects but it does keep me awake sometimes.  How are you getting on?  Nardine ... View more