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coffeeandcake
Member
since
25-04-2021
17
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23
Hugs
27-06-2021
05:17
1 Hug
Hi everyone, jusy checking in really to say hi and hope you’ve all had good weekends. I had my 3rd round fo EC this week and have since come down with a heavy cold and blocked sinuses.... now feeling sorry for myself! No temperature though which is good. how is everyone else doing? My oncologist requested a new MRI after only 3 rounds of chemo which seems really soon but I’m interested to see what effect the chemo has had so far. Roll on Friday!
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09-06-2021
02:04
1 Hug
@Coastal im glad to hear you have bounced back today! Hooray for a good day - long may they last x I find it interesting how we all have such different reactions to the treatment even with exactly the same drugs. I find myself wondering if it’s better to have a big reaction to the drugs as that means they are working and my lack of reaction means the chemo isn’t working? I know it doesn’t work like that but it’s one of those random thoughts that pops into my head!
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09-06-2021
01:55
2 Hugs
Welcome @Michelle21 I’m sorry you find yourself back here but welcome to the group. I’ve had 2 rounds of EC so far and will have weekly paclitaxel after 4 rounds of EC. I don’t have a picc line but do have a port fitted which has been great so far and makes the transfusions really simple. I think I feel like a medical marvel as so far I’ve had hardly any side effects (so far). I even said to my oncologist that I think they gave me some dud drugs as I am feeling so normal, but then my hair fell out 2 weeks after my chemo so I guess it was the proper stuff after all! I hope you’re all able to enjoy the blue skies and sunshine we seem to be having (here in the UK anyway). Beat wishes to you all x
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07-06-2021
11:18
2 Hugs
Hi Everyone, Sorry I have not been active on here the past couple of weeks. I do keeping reading your updates and meaning to catch up but life is busy at the moment! I have now had my second EC - that was a week ago and I am feeling grateful that I have had few side effects so I have been able to carry on as normal for most of the time. Although I did have an epic 14 hour sleep at the weekend! My kids are still young (early years) so i need to be able to keep up with them at weekends. Work are very understanding - again I am very lucky to work for a supportive employer. My port has been in a month so that has really settled down and i have even been out for a very slow jog this weekend which i found ok - just need to take care of the pressure on my heart and take it easy as i think this is one of the side effects of chemo. My plan is 4 rounds of EC (3 weekly) followed by 12 weekly rounds of Paclitaxel (sp?), then surgery and finally radiotherapy. so all in all about a years worth of treatment i expect! My tumour was 12cm (yes 12cm!!) and is grade 3 with lymph node spread so I think the MDT decided to try and shrink it before surgery, although it was a close call between which to go for first. I am ER+ and HER2neg. Best wishes to you all xx
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17-05-2021
10:37
Has anyone experienced bone pain setting in after the chemo? I’m on day 7 now and my thigh bones are starting to hurt a little. I took the Pelgraz injection 24 hours after my first EC last week and have heard it’s that injection which causes the pain as the bones are hard at work making new bone marrow x
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17-05-2021
10:35
@Love running I hope today went ok for you x
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16-05-2021
09:50
1 Hug
I hope you’ve all had a good weekend. Good luck to those having treatment this week and positive vibes for those feeling a bit rough x
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14-05-2021
11:33
1 Hug
@TicTok first of all deep breaths. I hear you! None of us can know what that lump is. All I can say is after my breast biopsy and node biopsy I had massive lumps appear where before I couldn’t feel anything. In my case it was swelling from the biopsy and took weeks to go down again. If you are worried call your BCN team and I’m sure they’ll be able to help you. lots of love x
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14-05-2021
09:45
Quick question for those on EC... I am on a 3 weekly cycle but have read about ‘Dense dose’ which is given every 2 weeks. My oncologist said it made little difference but I read a few studies in America that said long term survival rates can be increased with the dense dose. I just wondered if anyone else had experience of 2 weekly cycles instead of 3 weekly? thanks x
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14-05-2021
09:41
2 Hugs
Hi ladies, I had my portacath fitted on Monday and started EC Tuesday. They couldn’t use the port as it was too swollen but managed to warm my hand enough to get a good vein. I cold capped which was fine after the first 10 minutes. Hoping it helps even a little!! I had a restless night Tuesday as felt emotionally drained and my brain was running round in circles with all the new info. But I’m pleased to say that since then I have felt more or less ok!! I took my anti sickness meds which seemed to have done the job. Now my mouth is starting to feel a little dry but I have a good mouth spray from Boots which does the trick. I just wanted to say hi to everyone and welcome to our new joiners. My diagnosis is grade 3, inc spread to nodes. ER+ HER2 Neg. I am having 4 rounds of EC followed by 12 weekly rounds of paclitexl. Then surgery & radiotherapy. So I am at the very start of my journey. lots of love to you all xxx
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11-05-2021
08:10
2 Hugs
First EC session today, feeling a little ‘blurgh’. I had my portacath fitted yesterday and I managed a good nights sleep but woke up in pain this morning. Just waiting for the meds to kick in before getting up and ready for the EC! What a day! im going to try cold capping - anyone else tried this? I realise I haven’t introduced myself - I’m 41, have 2 young children (4&6) and live in SE England. My diagnosis was Invasive ductal, grade 3. ER + 8/8, PR4/8 and HER2 neg. 10cm tumour (which j can’t even feel. Talk about sneaky) in my left breast and it has also spread to the nodes. PET scan showed it hadn’t spread elsewhere - long may it stay that way!!! @noodledoodle Sending you lots of strength and good vibes today. Be kind to yourself and take it easy x @TicTok enjoy your holiday! You deserve it.
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10-05-2021
07:11
@noodledoodle well done for today!! How are you feeling? Yes that feeling to just get started is quite powerful - I need to start tackling this thing! Sending you all lots of positivity x
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10-05-2021
06:31
2 Hugs
Hi ladies, So here I am. I find myself joining this thread and seeking support and solidarity amongst the May 21 warriors here! I had my portacath fitted today which was ok, and have my first EC tomorrow. I am super keen to get this show on the road, but at the same time it’s so surreal isn’t it? How did I end up the patient who has grade 3 breast cancer?! threads like these make me feel less nervous - I see other people asking the same questions that have been running through my head and I realise I am not alone so wishing you all the very best of luck in your treatment journeys and here’s to a strong start for us all! 💪💪💪 xx
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06-05-2021
06:35
Thank you @Love running I will join the May group as my first session is next week. I’m determined to get at least one final 5k in before then!
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05-05-2021
03:15
1 Hug
I have my first EC session next week and just wondering how other people have felt after the first session? I’m early 40’s, fairly fit and healthy, hoping to go out to visit a friend the day after my treatment - is this even worth considering or am I mad? Thank you!
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29-04-2021
07:38
3 Hugs
I just wanted to come back and say thank you to everyone who has replied. Sending lots of love to those people who have found themselves in a similar position whether that is now or in the past. my diagnosis came last Friday. I’ve had a week of ups and downs but have found I managed to concentrate on a bit of work this week with the support of my team who have been brilliant. I’ve dipped in and out and that’s been fine. I’ve had a PET CR scan and MRI scan this week and get the results tomorrow along with the hormone biopsy results. What an emotional roller coaster!!! Soglad I found this site as it’s comforting knowing I am not alone, despite the fact this is a really shitty place to be. You ladies are all awesome x
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25-04-2021
07:53
5 Hugs
Hi all, I have been lurking for a while but have unfortunately now received my official diagnosis of breast cancer. It’s grade 3, 77mm tumour and cancer in the nodes. I’m still waiting for PET scan, and the hormone results, and once I have those my treatment plan can be finalised. hopefully that’ll happen this week. Treatment will be either chemo followed by surgery, or vice Versa depending on the rest of the results. My head is absolutely spinning. I’m 41 with 2 young children, and only found a lump in my armpit a few weeks ago. Now it feels like my world has come crashing down and I can’t do anything to stop it. ive got a few more tests results due this week, PET scan and Breast MRI. I don’t think I can go to work and concentrate at all. I feel nervous all the time, I keep bursting into tears and the thought of having to work in between appointments and tests results fills me with dread. I just need to know what I am facing and what the treatment plan is. I’m hoping for the best but aware it might be terrible news, as far as cancer diagnoses go. what have other people done about work? I’m very lucky I would get paid sick leave so I don’t need to worry about finances. I don’t think I’ve taken a day off sick in years, but I honestly feel like I couldn’t concentrate in meetings or get any work done this week. I do feel like once I know my treatment plan i will want to carry on working as much as possible. I need to keep busy and distracted, but this week I feel like I need to get on top of my life and concentrate on me. Is that ok?how have other people dealt with their diagnosis and juggling work expectations and personal life? sorry for rambling and hello to everyone on here. Your stories and inspiration have kept me positive the last few weeks xx
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