Breast Cancer Now Forum

I meant to also say that I’m continuing Herceptin every three weeks, 8 more times go to get to 18 rounds. Additionally I started taking Ibandronic acid after my mastectomy at the end of October. I will take this for three years.  love to All x x x 🧚🏻‍ ♀️ ... View more

Thank you Yvonne ❤️ Thank you too for your wise words and support.  I wish everyone on this fab forum every best wish at whatever stage of their journey they are in too.  love and healing to us all ❤️ 🥰 Fairie 🧚🏻‍ ♀️ ... View more

Well done Beth 👏 Glad you’re through chemo and surgery and hope very much that all goes well from here.  I too had surgery end of October. Mastectomy. Healing nicely but still going in weekly to have a drain done. All painless and straightforward.  my hair is sprouting too! Things will be wild on my head shortly I can feel.  I too have dipped in and out of contact in this lovely group as and when I’ve been able to, but everyone I’ve read about and heard from stay close in my thoughts as we do this journey together.  lots of love to you Beth and all you lovely ladies ❤️ Fairie x ... View more

Hello simplyeve x Bless you you've had such a lot going on whilst being on your own personal journey of treatment and surgery.  im glad you are being kind to yourself and giving yourself time to heal. I had to finish chemo end of July and I’m only just beginning to feel more like my normal self. It takes time.  I had subcut targeted therapy in my thigh last time (10th Oct) and for me it took 5 mins and had to stay for 4 hours to be monitored. It was fine. They told me next time I’ll stay for two hours and gradually the time will lessen for waiting.  Take good care and time dear Yvonne x Fairie  x 🧚🏻‍ ♀️   ... View more

Hi x just had my mastectomy and I was nervous which is natural, but once surgery is done it’s such a relief. You’ll be drinking the tea and eating toast feeling relief soon lovely  lots of rest after important  Fairie xx 🧚🏻‍ ♀️ ... View more

Stay steady babybunting 💪🏼 👊🏻 Xx Fairie 🧚🏻‍ ♀️ ... View more

Glad nothing to worry about x i think we are all on hyper alert for anything else lumpy or bumpy or painful.  I just had my mastectomy and before that I had convinced myself there was a lump on the opposite side collar bone. Surgeon checked and and said no it’s nothing! I think ( from previous experience of BC 15 years ago) this being so alert settles slowly. it’s totally understandable.  Fairie xxx🧚🏻‍ ♀️ ... View more

Oh that’s annoying Louise! I’m sorry you had so much time wasted 🥴 xx   can I ask if anyone has experienced water retention on Herceptin or at all?  Love to all xxx Fairie 🧚🏻‍ ♀️ ... View more

Dear @Flower123  Bless you! I’m so sorry you’ve been so poorly.  I hope sincerely that you feel stronger and better soonest.  sending healing wishes and lots of love xxx Fairie 🧚🏻‍ ♀️ ... View more

Hi @hopeful1974 and everyone thank you for response and wishes for me yesterday.  I am still in shock as the surgeon told me my 5cm tumour was undetectable!  this just goes to show that for all the harshness of chemo and side effects we suffer and Herceptin can work.  I will still have a mastectomy, although surgeon said I didn’t need one and possibly just a lumpectomy, I don’t want to keep my breast. This is my second BC and I had mastectomy 15 years ago. So we all agreed ( hubby too) that for me it was the best option. I will remain on Herceptin until next summer. Radio therapy will be decided after mastectomy but she said I may not need it. Lymph nodes remain looking okay but these will be tested whilst I’m asleep and if anything detected she will do a lymph clearance. She thinks they should be okay. I am in shock! I can’t quite take this news in! I’ve been tearful and for me I think it’s about coming back from that edge of waiting to hear bad news again.  a gentle weekend ahead of doing house chores, shopping and gardening and walking will I think help me by doing normal things and of course Strictly tonight.  so my friends… keep positive! my surgery will be on the 27th Oct and I’m told I will go home the same day! Wow how things have changed from 15 years ago 👏 my love to each and everyone of you xxx Fairie xxx ... View more

Thank you coffeefiend xxx    ... View more

Hello all friends  this is Fairie (Sharon) im sorry I’ve been elsewhere lately, busy with settling my mum back at home and sorting out all kinds around that. I see my surgeon for MRI results on Friday and to discuss surgery likely due 27th October.  I’m continuing on Herceptin for another 12 treatments.  I think of you ALL often and I hope once things settle more with parents I’ll be on our page more 🙏🏻 🤞🏼 im a bit nervous about Friday and what my MRI will reveal but can feel the lump I presented with is much smaller so I will go hopeful that she’s pleased with progress so far. I heard from the genetics team and an told I don’t carry a faulty gene and this second time of primary Bc is just bad luck. im trying not to blame myself and I’m told it’s nothing I’ve done, but then I find myself questioning myself! Did I not exercise enough, did I drink too much vino, I’ve gained weight since my first journey of bc 15 years ago, I could have eaten more healthily 🤦🏻‍ ♀️ And I have to stop myself as it doesn’t help!  what I did do right was trusted my intuition 15 years ago that something wasn’t right and despite being told I was 99.9 fine I pressured to be checked further thank goodness!!  and again this time I just knew something wasn’t right and I was right.   Anyway.. I must go to sleep as didn’t sleep a wink hardly at all last night, Side effect of Herceptin, so hope to catch up with sleep tonight 🤞🏼 Love to all xxx Fairie        ... View more

Thinking of you Louise and sending healing wishes and lots of love xx Fairie ❣️ ... View more

Thank you for your kind thoughts.  glad you’re almost at the end of chemo! And glad you are getting out and about doing lovely things.  I am continuing in three weekly P and T ( Herceptin) treatment and have a MRI this week ahead of surgery on 27th Oct.  Wishing you and everyone a gentle lovely Sunday xxxx Fairie xxx ... View more

Hello friends Sorry I’ve been off line for a while. My mum was taken into hospital 26th August. She has severe altzhiemers and is still in hospital u til Weds. it’s taken all this time to find the right care she needs at home. I’ve been caught up with all kinds since this happened. my oncologist came back from holiday and we met to discuss my treatment. He was in full agreement with his oncology professor colleague who saw me whilst he was away, in terms of me not having the final chemo. He said the risk of infection whilst having such horrendous side effects from the chemo was too high and there would be very little benefit in having the last one and it could have caused longer term bone marrow damage and digestive issues, so I felt relieved as I was worrying that I had failed myself and him!🤦‍ ♀️ I still have Herceptin every three weeks and have a MRI booked for 22nd Sept, meet with surgeon 8th October to discuss result and surgery and then surgery is booked for 27th Oct. After Surgery I will be out on a drug called Ibandronic acid which oncologist described as it paints the bones to protect and strengthen them.  I will have Radio therapy soon after surgery.  I am still experiencing hair loss and chills and headaches but feeling generally a lot better since chemo stopped.  I think of you all often and know you are out there doing a similar journey and it’s comforting to know you are all there and we can be in touch.  sadly my mum is coming home for palliative symptom control care on weds. She has no understanding of my journey at the moment as she’s too unwell now.  I’ve struggled emotionally as feel sad but feel a bit brighter today.  I send my love to you all and will keep in touch xxxx ❤️ ❤️ ... View more

Dear @Louise65  what a exhausting and worrying time you’ve had. I hope you continue to recover and feel much better soonest. so glad for you about not having the gene.  Enjoy your ice cream tonight! sending feel much better wishes... Fairie (Sharon) xxx ... View more

Thank you so much.  important that each of us is different and even though some of us on same chemo regimes we will all respond differently and decisions will be made on each individuals response to the treatment.  I have always had a very sensitive digestive system and so when I had FEC chemo 14 years ago I managed five out of six but was admitted to hospital after every single one as they couldn’t keep on top of the sickness for me. this time it’s been both ends non stop and again meds weren’t sorting things out enough, although better than 14 years ago, so we all different in our responses.  I’m just glad I managed three out of four.  huge love xxxxx ... View more

Dear @hopeful1974  Bless you for thinking of me xx it went well and reached the decision to stop chemo now due to such debilitating side effects to digestive system. He said the percentage of the benefit of having one more was very small for me weighing everything up around my diagnosis and potentially could cause long term issues, so I will continue with Herceptin which is vital. I will soon go for surgery but no date yet.  my love to you and everyone as alway xxx Sharon aka Fairie xxxxxx ... View more

Dear @Mum2boys Thank you for your encouraging understanding words.  di you know what? I use senakot to help with both constipation and loose bowels.. you can get both types of senakot to treat both issues. It’s more gentle I find.  Sending feel better wishes to you all...  much love and thank you for helping me 🥰 ... View more

Thank you Sian your words have really helped me! May I ask if you had any nodes affected?  I am also on docetaxel and carboplatin. And the two Herceptin drugs P and T.  ❤️ ❤️ ... View more