Breast Cancer Now Forum

VioletLizzie

Hi - I'm day 16 -and hair started to fall out big time today - bit of a weepy day to be honest. PICC line goes in on Wednesday and hopefully 2nd EC on Thursday. Have seen breast surgeon again - I already had WLE - but margins not clear so need mastectomy - and they want to do it within a few weeks of chemo finishing ( I have 2 more rounds of EC then Herceptin and Docetaxol x3). Keep thinking that I am the only one wishing for the end of the year as it will all mainly done by then. Feel slightly more prepared of what's to come this time - anti sickness and laxatives at the ready! Thanks for whatsapp invite - friends and family are being brilliant - but grateful for you all being there as well. Take care

VioletLizzie

Dear Jennett I'm Day 5 post first chemo - just been overwhelmed with nausea and constipation ( yes, both ends going at the same time!) Have felt so tired - like I've done a long haul flight and kept going the next day! Appetite all over the place - craving food and not wanting it when it arrives. Drinking is hardest = mouth feels awful - using biotene mouthwash - which is like rinsing with spearmint chewing gum flavour - but it strangely feels very soft. Yes, also finding the injections hard. Yes - my second EC 5th August. With very best wishes to you all - thanks for being there. VioletlIzzie

VioletLizzie

Hi Thinking of you - I'm should be on first dose of EC on Thursday. Will catch up with you on the "other side" next week.

VioletLizzie

Hi - yes I'm having EC (3 cycles ) then doxcetaxol ( 3 cycles ) and Herceptin for a year First dose next Thursday Have asked for Port "but we don't do it at this hospital" - every time I have been to the hospital its such a fight to get everything. I don't want a PICC as have disc damage and can only lie on my right side - Breast cancer is in left breast. So thought that PICC would get in the way. Hair being cut on Monday - this for me is the worse bit - feel like Ann Boleyn going to beheaded! Have already had Wide Local Excision - but need to have more surgery before radiotherapy. Been shopping today for lots of fruit and veggies to make into smoothies. Have been freezing grapes and ice cubes with mint in.

VioletLizzie · ‎01-07-2021

Hi I don't know if anyone can help - due to start Chemo this month, then herceptin+docitaxol. Consultant then wanted me to have mastectomy followed by radiotherapy. I want to have reconstructive surgery at the same time - so have pushed to have radiotherapy first then mastectomy and reconstruction and lymph node clearance early in 2022 (all treatment should have finished by mid December 2021). I have been met with massive resistance to this plan (they won't know where to target ). My concern is that if have mastectomy first - followed by radiotherapy that the skin tissue will be damaged in order to have reconstructive surgery later on - again told that they won't do reconstructive surgery at the mastectomy op due to radiotherapy and silicon implant ( currently I am veering towards DIEP anyway). Any thoughts?

VioletLizzie · ‎01-07-2021

Hi - due to start Chemo on 15/7/21 - 3 cycles of EC, then Herceptin and Docitazol -3 cycles then 15 sessions of radiotherapy. So this takes me up to Christmas. I had guided wire excision in May. Will need mastectomy ( and have decided to go for double mastectomy) and lymph node clearance sometime in 2022. Have not really got on with BCN's - found them very patronising and "drip feeding " me information every visit that I had - despite me asking them to "tell it to me straight". Hoping that the oncology nurses will be better. Have appt. with "wig lady" next Monday as told definately all my hair will fall out with EC treatment.

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