Dear Jan Thank you so much for your lovely caring reply. So kind of you. I hope that you are ok. You didn't mention where your secondary breast cancer is. I've had more dramas and was admitted to hospital last weekend for urgent MRI and other scans. The tumours have now spread to my spine and conus. Treatment is more radiotherapy and I'm waiting for the appointment. It's certainly a very challenging journey but I'm determined to keep going and learn from it all. There's many people who I would never have met if I hadn't been on it. You included. I'm in Cornwall. Where are you? I wish you well too and a good recovery. We can get through this. Take very good care of yourself. Big virtual hugs Jilly x
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I was diagnosed with TNBC in May 2019 and had surgery, 6 months chemo and 3 weeks radiotherapy. I was experiencing new symptoms in May/June 2020 but due to covid wasn't seen face to face until October 2020. In November 2020 had a PET scan done and it showed the TNBC was still active and hadn't gone away. Started on abraxane chemo and immunotherapy. A month ago I collapsed and was rushed to the hospital with a suspected stroke as right side of body had stopped working CT scan showed that I hadn't had a stroke. Then had full MRI scan which showed it was secondary TNBC tumours throughout my brain. Biggest one 2cm plus lots of smaller ones. Just completed 10 radiotherapy treatments to the whole of my head a week ago so still feeling the side effects from it. Tomorrow I start on erublin chemo only. The other treatments are being stopped. Feeling scared and in shock as its all happened so fast and everything is changing so quickly. I'm not allowed to drive anymore and I can't do things for myself that I'd normally do. I'm 64 and live alone and hate causing worry and stress to others, especially my grown up children. Thank you for reading and any help and advice would be greatly appreciated.
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