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Michy1
Member
since
13-06-2021
34
Posts
22
Hugs
2 weeks ago
Hi, Does the Denosumab bone strengthening infusion take only one day every 3 months. So only one visit to the hospital for the infusion every 3 months. Does it take all day? My employer wants to know about future treatment. Michelle X
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2 weeks ago
Hi Karen, Thanks for replying. Have eaten a bit better today but still not loads. Am on sickness from work don’t know how they expect you to work with this. Michelle X
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2 weeks ago
Hi, Is the week off Palbociclib easier, than the 2 weeks on it? Michelle X
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2 weeks ago
1 Hug
Hi Cathy, Thanks for replying. Was sickly last night but a bit better today. Didn’t expect the back pain. Made myself get out of bed today. The fact that you’ve had shrinkage spurs me on. Michelle X
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2 weeks ago
1 Hug
Hi Liz, Thanks for replying. Have just eaten a bowl of berries so at least something. Got 2 different drugs for sickness and diarrhoea, been taking the sickness one. Have just shopped and got a load of healthy salad food, so should eat something as light. May take my Pablociclib a bit later on as take in just after tea a moment. Sending hugs and kisses back. X Michelle
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2 weeks ago
2 Hugs
Hi, Just started the combined drug therapy letrozole/palbociclib on Friday. Have been in bed all weekend with tiredness, pain (though this seems to have decreased today), and feeling nauseous. I haven’t eaten much since starting the drugs. Is this normal? I can live with the night sweats. X Michelle.
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2 weeks ago
2 Hugs
Hi Clairew, Also I had an ablation(removal of tumour;not curative) and cement technique carried out on my mets in the hip joint which I believe is carried out on spine mets too. It lowers the risk of fractures occurring in the future and reduces pain. X Michelle
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2 weeks ago
2 Hugs
Hi Clairew, I have mets in my pelvic bone and just got my treatment plan of letrozole and palbociclib on Friday. I have had 3 months of tests and a stay in hospital. Know you will feel so much better when you get your treatment plan. X Michelle
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2 weeks ago
Hi Daisy, Was in hospital for 1 week with an infection in my abdomen and mass. On IV antibiotics for 1 week then 1 week on tablets. Found out on Friday the mass is inflammatory, fortunately, but they will keep an eye on it. Also found out my treatment plan which is letrozole/pablociclib and a bone strengthening drug later. X Michelle
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3 weeks ago
Hi, After nearly 3 months of abstaining from alcohol, does anyone have the occasional drink now and again? Could murder a G&T. I have tried a few no alcohol beverages. I know we are not really meant to mix alcohol with opiate based pain relief. X
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3 weeks ago
Hi, Thankyou for replying. I have decided that I need privacy regarding my SBC diagnosis- only my boss and family and close friends know. X
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4 weeks ago
Hi, I ended up in hospital for 1 week with a pelvic region infection and oral thrush. Out now and just finished all antibiotics. X
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4 weeks ago
1 Hug
Hi Jaybro, Thanks for replying. Have just been on the phone to Macmillan and they were very helpful. Got a lot of things to think about now and forms to fill in. X
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a month ago
2 Hugs
Hi everyone, Just been in hospital for a week. God this disease is scary. I have been off sick from work for around 10 weeks. I get full pay for 6 months and half pay for 6 months. With me taking sick pay and I couldn’t have worked as newly diagnosed with SBC if I apply for ill health retirement, would my ill health retirement be affected. Or if I went on to take 6 months half pay would this have a deterimental affect on my ill health pension. X
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18-06-2021
12:00
Hi, Has anyone been hospitalised because of thrush. Know it’s at least in my mouth think it’s in my gut too. Feel awful. X
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16-06-2021
04:28
Hi again, Will give flaxseeds ago. Drink 6-8 glasses of water a day. Will try the charity that gives nutritional advice. X
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15-06-2021
09:57
Hi, No worries. Good luck on Thursday and take care until you get treatment. We are brave. X
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15-06-2021
06:44
Hi, Thanks for replying. I have told my close friends and family and boss but have decided when people ask I will not respond. There’s a confidentiality policy at work for this type of situation. X
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