Breast Cancer Now Forum

Thanks Micky, much appreciated. I’m here too….. hope you have a good day. Bernie x ... View more

Hi Lisa, It’s very early days, no wonder you feel emotional. I spent the first few weeks feeling bewildered by everything- the diagnosis, tests, phone calls and all the waiting…. I found that once there was a treatment plan sorted, I began to feel more settled and into some kind of routine. My treatment is palbociclib, letrozole  and denosumab. I’m almost at the end of my 9th cycle, and I have found that the side effects have settled down as time has passed, so that I can get on with my day reasonably well.  I know its different for everyone, but so far so good….. 🤞🏻 I hope that you will feel better as time goes by. Sending you love and positive thoughts. Bernie x   ... View more

Hi Micky, Wishing you well for your call on the 28th. I have a call on the 21st, don’t think I’ll find out much this time, but at least I can ask some questions! Look after yourself. Bernie x ... View more

Micky53, I know what you mean about the challenge of staying positive, I have been struggling recently, and am just trying to take one day at a time. One thing that keeps me going is that so far my treatment seems to be working well, and also there are other options available, with lots of research into new treatments too.  I really hope that you will hear about counselling soon, waiting is hard isn’t it? Sending positive thoughts your way. Bernie    ... View more

Hi micky53, I am so sorry that you are feeling so alone at the moment.  Like you, I’m fairly new, and have only posted once before, but when I read your post I knew I needed to reply. I am also on palbociclib and letrozole plus monthly denosumab, and am on my 9th cycle, so just ahead of you. I don’t know what to say to make you feel better, but I can identify with how you feel. It is such a shock to receive this diagnosis, and there is so much to come to terms with, as well as the treatment, appointments, scans etc. It is no wonder you feel the way you do, and you are certainly not alone. Is counselling an option for you? I had some sessions through my local hospice, and found it very helpful. It was a relief to talk to someone, and it helped me to see a way forward, although sometimes easier said than done….. Also, others speak very highly of the BCN nurses, perhaps you could consider giving them a ring. Yes, the professionals are busy, but your wellbeing is important, and they will listen I’m sure. I am sending you lots of love. Bernie ... View more