Just to add on to my previous message, that I understand mobility is also of enormous importance when it comes to avoiding and managing lymphoedema. (I would find it a very difficult decision to know what 'best' to do in your situation). I have also recently had shoulder mobility issues (I developed post surgery cording in my arm pit down to my ribs) and was advised by NHS physio to complete the exercises she recommended at least 3-5 times a day, for the rest of my life. She indicated that this is what she personally definitely would do in the same situation, following any surgery/lymphoedema diagnosis in that area. The exercises she gave me have made a HUGE difference and I, very fortunately, now have full mobility (fingers crossed it continues). Best of luck with this difficult decision, I hope the pain and lack of mobility turn out to be a temporary situation for you.
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Hi Sue Sorry to hear that you are struggling with your shoulder. I understand that you are asking a nurse for advice however I thought you may possibly also like to hear from someone who has been diagnosed with lymphoedema and who has received a lot of advice from various professional sources in the UK. I had two breast cancer operations last year (the cancer had spread to my lymph nodes but I was spared chemo due to an Oncotype gene test) and, following radiation therapy in October, developed lymphoedema in my 'at risk' arm. I am currently not showing any lymphoedema swelling (fingers crossed) entirely due to the invaluable and amazing support of a seemingly very well informed private lymphoedema practitioner (fully professionally qualified). She has advised me to completely avoid having any invasive 'treatment' (of any type) on any other part of my body and particularly never on my affected arm, unless there is a medical emergency of course. She even says that invasive treatments on any part of the body can also potentially trigger lymphoedema in that part of the body, now that the lymph flow is compromised due to the axillary lymph node clearance. I discussed with her having my chest breast cancer Radiation therapy tattoos removed (via laser treatment, as suggested by my NHS breast cancer nurse) and she advised me that it was best to avoid anything invasive, that even very tiny wounds can cause lymph flow issues. I also recall her saying that acupuncture elsewhere in the body was best avoided too. (My NHS breast cancer nurse suggested acupuncture when I was struggling with insomnia, due to cancer hormone therapy, and I discussed this with my practitioner.) Sorry, I realise this is information you may not wish to receive but I thought I should pass this information on to you ... It is the first time I have ever contributed to any chat conversation in my whole life but I thought it might be of interest to you; a lymphodema diagnosis is life changing and obviously I assume it is something you are very much trying to avoid. Best wishes with your recovery.
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