Breast Cancer Now Forum

Morning all Lemonsqueezy the wait is so difficult I expected my SNB results last week and we’re delayed too - the impact on mood is real, I am struggling with coping the lack of control.  People say focus on control the controllable- when it’s you in the middle it’s really hard.   Zippyzoo the take life by the horns approach is great 😊 definitely something we must all strive for.  I use Calm app and the message to live in the moment and do what makes you happy are strong. Currently it’s the little things that make me smile 😃   I also had my main op cancelled should be today!! Due to staffing, provisionally rescheduled to 24 Aug 🥺 3 more wk of waiting with it still in there festering.  Kind of takes a bit of the news my breast care nurse rang with yesterday... SNB results are clear .... will use my efforts to focus on that to get through the next 21 days with 🤞🏼 op goes as planned on 24th. Hoping your results are not too long now, we have the mind to do what makes us happy however small and remember we’re all moving forwards. Every day reasons to be cheerful Nic xx   ... View more

That’s fab news @ZippyZoo  🎉 🧸 My SNB was uneventful and recovery is going well, still a little achy 1st thing in the morning but nothing paracetamol isn’t helping.  Waiting for results ahead of main surgery on 3rd. Luxuries & treats definitely the way to go and embracing that advice when writing my hospital bag lists 🛍 The delivery of body wash and nose cream for surgery prep from Thu makes my next step real-er if that’s even a thing! I hope we all ride our unique rollercoasters 🎢 with our arms in the air and eyes wide open as much as we can and embrace all the love & support offered to help us through the white knuckle bits 🦹🏼‍ ♀️ 🦄 💗 lots of togetherness love Trick xx ... View more

Great news ZippyZoo 🌸 Love the hints & tips Shi will defo invest in the dots and de-pine cone stuff 😂 The decision making is sooo personal Corina!  Spoke to my BCN on Wed to talk thro mine before confirming surgery choice (MX and immediate own tissue recon) in case I’d missed any consideration.  Lean on yours for support 💕 Date confirmed for 3 Aug - no time wasted the pace is over whelming, trying to see it as positive- get the fooker out!! So op 1 still Fri 16, hope it’s as straightforward too 🦹🏼‍ ♀️ 🦄 💕 We’ve got this girls Trick xx ... View more

Hey LemonSqueezy 🦹🏼‍ ♀️ Try Fearne Cotton’s books Quiet, Calm and Happy.  There’s lots of little exercises probs would go thro in that order xx Also Calm app is fab or it works for me 😉 short 10mins meditations and Jackanory story telling to help you nod off xx Any surgery is daunting, I was agog at the detail my surgeon’s gone thro so far (SNB on 16th then MX & recon early Aug) I found myself asking if he could actually do it?? And without a pause, eye roll or snigger he simply looked me in the eye and kindly and confidently said ‘this is what I do’ those words calmed me. We’ve got this, together 🦹🏼‍ ♀️ 🦄 💕 Trick xx ... View more

Hey Doodlebug - one fact at a time was the tuffest step for me, my natural want is all the options and answers on a timeline I can deal with most things that way.  This.....is nothing like that, it’s taken a couple of weeks to get my head around that, bring your focus to the immediate next thing and focusing on that one step at a time plus getting comfy with ‘it’s OK to not be OK’.  Another alien step however beginning to find it quite liberating and the support from BCN, clinic and friends & family has been amazing xx Sharing is caring and all those cliches are close to true in our situation we’re in it together 🦹🏼‍xx ZippyZoo my SNB is 16th, eeeek!! Step one on the way forward to better things 💐   ... View more

Afternoon Ladies i am only 2 weeks diagnosed and yesterday had plastics consult to confirm viability of TUG reconstruction.  I have HRE- ER+ in left side with MX only option so decision has been on recon type - initially own tissue had been ruled out but thankfully plastic specialist has given a ‘green for go’ altho it is a double TUG which is daunting!!  Implant simply wasn’t sitting comfortably with me. Your stories here I read yesterday after clinic and again today and I truly feel this is the best decision for me personally long term.  I will be starting my list for shopping against your recommendations 😁 Any other helpful hints & tips welcome......I was dreaming of She Wees last night 🤣 Hope to hear from you soon Best Wishes xx ... View more

Afternoon Ladies Great to read your positive experience Tizzy wishing you well xx Yesterday appt on next steps took a turn for the better, initially own tissue recon had been ruled out but consultant wanted a plastics specialist to absolutely confirm option in or out.  I was squeezed into plastics clinics yesterday aft and it’s back on the list!!  I appreciate everyone’s experience is very different and the surgery choice massively personal - this one feels the right one for me. I now have my sentinel node op next Fri and MX with immediate recon early Aug.  Found a forum link a couple of years old on TUG recon which has been useful - this is such a support to talk to you ladies on the topic however different our detailed plan.  Going to hopefully use the Someone Like Me to chat more on the TUG experience to help prepare. Wishing you all happy thoughts Trick x ... View more

OMG the nice people are the tuffest to deal with!! Like you I’m dealing with the facts ok but as soon as anyone turns their attention to me and my feelings I crumble!! Getting ok with being not ok is a challenge!! Lots of Leeds Love Regards Nic xx ... View more

Hey Big Hugs xx   sorry if I’m missing other replies I totally feel your anxiety 😟 1st attack last Tue after a nurse meet (aren’t the breast care nurses A Mazing !?!) After many years of giving advice taking your own medicine is a totally new experience!!! Outside my comfort zone ... seeing consultant tomorrow to discuss MRI which wasn’t what I wanted down to 2 from 4 options set for surgery on 21st 😬 lots of love to you all on this roller coaster we’ve got this xx Trick xx ... View more

Evening  Got my results on Monday invasive lobular ER+ in 2 maybe 3 sites, MRI tomorrow and a meet with breast care nurse to talk thro surgery options and real life outcomes.  Feels like it’s happening to someone else at the moment, at 47 been relatively fit & healthy.......GP and 1st dr at clinic thought lump was dense tissue, it was but my 1st ever mammogram found the little bleeders!!  Been in a ‘is this is really happening?’ bubble this week with hubby cos been on ‘holiday’ both back to work tomorrow so the whole who and what to tell people building up trying not to pressure myself to do everything quickly - time to reflect!!  Glad I’ve found you guys to take this journey with, one step at a time 👋🏼 xx  I find the Calm app really helpful with anxiety control and sleep 💤 Need to get back into that habit and truly start putting myself at No 1 Priority - not one of my natural strengths!!!   ... View more