Breast Cancer Now Forum

Loved hearing this welcomed news gives me a spring in my step ,also reading some of your problems an the answers to them from gillyflower I am on lettrozole an plab since June 21 an I must say my knees are blinking killing me but my oncologist said that’s the effects of the meds I’m on feel like a 100 years old sometimes but apart from that I think I’m coping ok last ct scan said I was stable which I was a bit down about as when I had my scan results in September there was shrinkage from 41 whatever it is they measure it to 26 which I was made up with but they did say it does tend to settle then an just stay stable but hearing this good news has given me a spring in my step again so onwards an upwards , well done all you beautiful ladies an good luck xxx ... View more

So great to hear a positive post well done xxx I was wondering when you say you have lots of aches an pains can I ask where they are as I started treatment in June plab an letrozole but have in the last few months been getting really painful knee joints an in the last week or so in my chest wall an sternum (where the cancer is ) it’s not painful but feels sore an tender specially when I touch it there ,it is such a worry because I’m thinking is it just old age wear an tear on my knees as I used to be a carer or the meds I’m on the effects of them , or is it where my chest is concerned , the meds are starting not to work so I’m getting these feelings it is such a web of worry I’ve got a monthly face to face app on the 1st so I’m going to mention it then sending big love hugs to all of you in this bloody horrid club we’re all in xxx ... View more

Hi I to was diagnosed with sbc in may 21 I just thought at first, for the first 3 months that’s it I’m going to die ,I kept looking at my husband an children an grandkids thinking this can’t be ,we have all got a lovely life they need me still I’m 56 an just can’t believe it’s happened again to me . My oncologist said exactly the same look at it as living with a chronic illness ( easier said then done ) .I do forget sometimes as I look fine, but my body is feeling the effects of treatment I’m on plab an letrozole to , my joints are painful but on the whole I can cope I feel like I’m constantly waiting for bad news thou every scan results or blood test I would love to hear of some positive stories Good luck to all you beautiful brave ladies let’s hope we can live long an happy lives  ... View more

Hi I have just finished my first 2 weeks of palb so this is my week off still taken Letrozole .like you have gone off my food have lost about 6lb in weight but I have got a bit of surplus on me lol but try to eat little an often very hard when I just feel sicky . Have been suffering with achy joints ,dry eyes ,diaorrhea an can get very tired a lot of the time .I’ve got anti sickness meds eye drops an just try to have a little nap if I can this is so unlike me but I have to tell myself Karen you have to listen to your body . I’m glad I have read your comments as it has made me feel better that the side effects are the same as you , you always wonder if this is happening for others so thank you for posting . This is such a scary time but it gives us hope when you hear of shrinkage an people saying it’s a good combo makes the side effects worth going through .Good luck an let’s hope things settle down for all of us xxxx ... View more

Hi I have just finished my first 3 weeks of palb so this is my week off still taken Letrozole .like you have gone off my food have lost about 6lb in weight but I have got a bit of surplus on me lol but try to eat little an often very hard when I just feel sicky . Have been suffering with achy joints ,dry eyes ,diaorrhea an can get very tired a lot of the time .I’ve got anti sickness meds eye drops an just try to have a little nap if I can this is so unlike me but I have to tell myself Karen you have to listen to your body . I’m glad I have read your comments as it has made me feel better that the side effects are the same as you , you always wonder if this is happening for others so thank you for posting . This is such a scary time but it gives us hope when you hear of shrinkage an people saying it’s a good combo makes the side effects worth going through .Good luck an let’s hope things settle down for all of us xxxx ... View more

Thank you pawsome for your post this has given me such a high I was only diagnosed in may ,10 years after my first cancer reared it’s ugly head ,I to am on the same drugs as you can I ask what side effects did you have. I have dry eyes dryness down below sickness no appetite an sometimes I feel like I ache as you do when you have the flu symptoms do you have any advice I’m trying to do all the things I did before with my grandchildren an routine an such but the tiredness is unbelievable I’ve never been like this an it’s hard to accept this is a new way of life I’m so pleased for you an pray to god you carry on the way your going sending lots of love xx  ... View more

Thank you so much an yes it would be good to give back to someone that’s been in our boat excuse the pun xxx ... View more

Thanks Diane il give it a go I’m not going till sept so still got plenty of time I’m just disappointed for my family if I can’t go xxx ... View more