Breast Cancer Now Forum

Hello Perla.  If you are able to make a post in this group (as you have) then you are a member.  ... View more

HI Micky140 Yes I'm a member of that group on facebook, and eagerly follow up for updates. It's very, very frustrating to know that we have a potential cure for this miserable disease, yet it seems to be setback after setback. To be honest I lost a lot of enthusiasm for ErSO when Bayer handed it back. I can't understand how that could happen after so much money was invested into developing it. Although I've been told since that happens regularly, I'm no expert in pharma.  I'm more excited to read about the new SERD's that are in final stages of trials, and hope that they are available soon for us. Don't lose hope!  take care Jools xx ... View more

https://www.systemsoncology.com based in Scottsdale, Arizona are researching ErSo according to the Facebook Group ErSo activism.  The majority of the members are American, and seem to have as many difficulties with the FDA as we do with NICE.  But it is a very informative group and the members are active on chasing up progress and information, and lobbying senators and petitioning FDA ... View more

It goes on and on. I had a nine month wait for a telephone consultation with my cardiologist, two weeks before it was cancelled and I was told they didn’t know when they’d be able to offer another! This is now medical negligence, so I have requested my case notes and consulted a legal team. Not after money just need that hospital to get its act together and provide a proper service. It’s quite disgraceful.  I do believe it’s not entirely each hospital or doctors fault. The government has been running the health service down for at least 15 years and bringing in private services by stealth just like they did with dentistry. One day they will sell it off wholesale and guess who the buyers will be. Ruddy Americans. Watch out Britain our precious health service is under greater threat than you realise. Another rant I’m afraid! ... View more

Hi I have Densonub in Upper arm every month and injections in buttock no problems awaiting the results of my scan on the 25th August.  ... View more

Thank you @micky140, that is very reassuring to know everything stayed stable. Xx ... View more