Breast Cancer Now Forum

@corny did you continue with the cold capping?  why does it have to come back through grey, you would think the hair gods could be kind to us and sprinkle in some other colour than grey! But it’s hair I guess.  ive heard Waterman’s Is good and heard of Elxir though, will have a look.  Thank you and good luck x ... View more

@Jude11 sounds like your experience was very good. Guess your hair will just look a bit uneven while it all grows back but that’s no bad thing.  Did you still use any head coverings?  You sound very positive. Hope you are well on your way through this journey x ... View more

@Cumbrian Lady glad to hear you are doing well and I’m guessing finished all of your treatment?  so what kind of length do you have now if you finished chemo last December?  thank you for sharing your experience, I love to read everyone’s stories. X ... View more

@Sparkle123  Oh wow! That’s really helpful and good to know what to expect or not except. Thank you so much for sharing that.  It’s a long process but sounds like you are well on your hair journey.  really appreciate your advice.  stay strong  ... View more

@Sparkle123  can I ask when you finished your chemo? Guessing your hair started to grow once the Chemo stopped? that’s encouraging to hear your hair has grown back the same colour if not a little wilder, it’s the ‘just got out of bed look’  ... View more

@Sparkle123  Ahh sounds like you had a tough experience with the whole cold cap. That’s not nice when you are dealing with this situation anyway.  Everyone keeps telling me it’s only hair and it will grow back, but it’s a big deal. Thinking of you x ... View more

Morning ladies, thank you for all your messages it’s good to get all different points of view. I have been lucky to get some direct information from Paxman regarding the possibility of reducing how the chemo may or may not be reduced. There is no evidence or papers to support that it does reduce the effectiveness of the Chemo. I still guess there is not absolute guarantee but I’m sure the cold capping would not of been approved if there was any hesitation.  On Monday I had my first experience with the cold cap and it wasn’t so bad at all. Just had a bit of a headache in the evening. I’m still expecting my hair to fall out and will just see how I feel when it does and if that might change my plans of using the cap moving forward.  who’s knows the best way to tackle this journey, I just feel I want to get all the information I can and make the best choice for me.  Good luck ladies and keep the hair convos coming. Any tips are welcome! Xx ... View more

@corny wow you have kept a lot. Well done. Thanks for your reply. Hope you are feeling ok now  ... View more

@Sparkle123  Hi yeah I heard about the exercise bands, did you try them?  ... View more

@louby_lou69 thanks for your reply. I totally understand your view and that’s a fair point. So much to consider on this journey and all options are well.  hope you are doing well.  ... View more

@Katie1988thats interesting to hear. Im in Kettering so not close to you. It’s just put a real spanner in my plans. If he told me completely not to use cold cap then I would go by what he says. But at the end of the conversation he said ‘but it’s up to you’    Let’s see what replies we get!  ... View more

@Katie1988 hey, have you been told the same?  ... View more

@sharlea  evening. I’m glad you mentioned about the different age ranges in the chemo ward. And I guess there are people with all different cancers being treated in there, so different stages and degrees of illness.  I find out tomorrow the whole chemo plan. Not sure when I’m starting it but they did mention the following day. I feel like I need a day to progress it first but guess I don’t get a choice really. Feeling very anxious now it’s approaching. Could be another sleepless night.  all of your info has been very helpful. I’m hoping I could have a port out in but will have to see.  good luck for your next session. X ... View more

@louby_lou69 hmm funny that! I’ll give them a call in the morning and pull out the ‘c’ word. Not sure I’ll even have time to fit an appointment in before I start. Find out start date tomorrow x ... View more

@m123 that’s a good idea. Thank you. X ... View more

@bananasatsuma there is a picture on the group about 14 hours ago of a lady using one. I’ve tried to attach a photo on here but don’t think it will work.  Think if I saw someone else using one during treatment then I would too. Guess I shouldn’t worry about what others think but… Thank you for your advice and tips. Hearing other ladies stories of their journey is really helpful.  Bee x ... View more

Speedy reply @bananasatsuma @thank you!!  like you I have thick hair too. It’s very long but getting it cut today, thinking shoulder length. First time it will of ever been that short.  im in the mind set that it will all go but will try anything to keep a bit.  maybe a bit like you said, I’m more worried about friends and family seeing me. I know that doesn’t matter and they won’t care but still  I did seen that Facebook page. I’m a little unsure about following it as I don’t want every Tom, Dick and Harry seeing it on my Facebook page……I’m not very tech savvy. I did see a couple of ladies using resistance bands over the top of the cap, think I would feel a little dramatic doing that but if it helps 🤷🏻‍ ♀️ Wow that lady sounds hardcore. I’ve got a little blanket to take, do get cold hands so maybe some gloves too.  sounds vein worrying about loosing hair when chemo is going to get rid of this bugger. That’s what we need to focus on! (But it’s still tough)    good luck  Bee x ... View more

Hi @sharlea @thanks for your reply. I didn’t think bout it being quite a busy noisy area. But  stuff going on to watch I guess.  great tip about some fruit pastilles. Trouble is I can never just eat one or two!  Do I need to take any cash with me? Or are the sandwiches and cuppas all inclusive in this chemo package?  Hope you are nearly the other side of chemo treatment.  best wishes  Bee x ... View more

Hey @m123, no g&t’s, now that’s disappointing!  Thanks for the heads up about the WiFi.  I’ve tried to book a dental appointment but no luck before chemo. Heard Ice lollies can be refreshing, obviously for at home.  Hope you are doing well.  best wishes  Bee x ... View more