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Pengu1n
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since
09-11-2021
33
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32
Hugs
04-04-2022
04:27
I was in a similar position in February. Initial plan was bilateral lumpectomies and radiotherapy. Then cells were found in lymph nodes one side so those were removed. The lymph nodes were a surprise and showed the cancer cells were acting out of character. It was then the chemotherapy word was used. I was ‘on the cusp’ for recommendation for chemo but my oncologist seemed keen. I asked for some time to consider it all and driving home with all the info whizzing round my head my decision became clearer. I was very afraid of chemo and all it brings. I was also very afraid of how I would feel if I said no and a few months down the line, when it would all have been over, i was left wondering. I begin my third cycle of seven on Saturday and can honestly say it has been much better than I feared. I have a lovely wig which looks just like my hair on a good day and a couple of beanies. I will be glad when it’s all over and I still have radiotherapy on the horizon but at least I know I am doing all I can. All that said, this decision I think was right for me but you will be bound to weigh up all the pros and cons for your particular circumstances. good luck whatever your decision is, I hope this helps. X
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31-03-2022
11:44
1 Hug
Thanks Unicorn. That’s very reassuring. I didn’t know if we are more likely to get it due to low immunity. I too normally have quite a good immune system so hopefully chemo will have left me with some. I appreciate you taking time to reply. x
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31-03-2022
08:59
1 Hug
Thank you for your advice Shi. I now have a PCR test just in case I get symptoms and I know who to contact. I just wondered if anyone has first hand experience of how well antivirals work when on chemo. I am still being quite cautious regarding distancing and wondered what the general opinion is on this with COVID numbers increasing. thanks all.
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30-03-2022
10:53
1 Hug
Hi, just wondering if anyone has experience of COVID and antiviral treatments while having chemotherapy. I’ve had 2nd of 7 cycles and have been sent a PCR test to keep just in case with instructions to contact hospital if I test positive, I’m 69 as of yesterday’s birthday Are we at a lot more risk of COVID due to chemo?
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23-03-2022
12:32
I had a PICC line fitted last Friday with chemo on Saturday. It was fine. Local anaesthetic so no pain. A bit of a fiddle with cover to shower but nothing worth being concerned about and that will get easier with confidence I’m sure. alison x
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23-03-2022
12:02
1 Hug
Just wondering if anyone else is finding their legs and hands shake a few days after chemo. I had shakiness for about a week after the first infusion so my dose was reduced for my second EC on Saturday but still I’ve got the sssshhhaaakkkeess. Tried putting my eyeliner on this morning and ended up looking like Alice Cooper! I’ve been quite lucky so far with other things though.
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12-03-2022
01:37
2 Hugs
Good to read your reply to Mel1989, Sephie, as I too am currently on EC but moving to Paclitaxel after the next two cycles. Yes, we are all different but being in the mindset that it will be better can help I find.
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05-03-2022
07:50
I’m on EC so my experience probably won’t line up with yours. It’s like a lottery, not knowing what each day will bring. Hope you’re over this phase soon.
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05-03-2022
03:26
2 Hugs
I have had tummy issues too. V constipated for 4 days then the opposite for 3 days. I know I’m blaming everything on chemo at the moment but this is my first cycle so it really is the unknown. Maybe tomorrow will be a good day. X
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27-02-2022
01:54
1 Hug
Did my first injection at lunchtime today. The meds checklist says at least 24 hours after chemo so your plan sounds ok. It wasn’t bad to do. I won’t worry about doing it tomorrow at all. I did shout ooowww as I did even though it didn’t hurt more of a distraction. At least there was no one to hear me. Good luck with it.
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27-02-2022
10:49
1 Hug
Good to hear how you are getting on. Like Mel1989 I had my first EC yesterday, it didn’t take as long as I expected, quick and easy.. My PICC line was put in on Friday but it didn’t go to quite the right place so it was removed after infusion yesterday and will be put in again the day before my next one. These things happen. At least I’ve got a few days without a PICC now. I’m not experiencing any strange effects at the moment but don’t want to get too optimistic too soon. Next project, first self administered injection at lunchtime today. Fingers crossed (actually crossing my fingers probably won’t help, haha) Best wishes to everyone in the same boat. x
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23-02-2022
10:53
1 Hug
Glad to know you’re feeling better. Thanks for asking, I am a little anxious about my 1st chemo but it’s got to happen so I just want it over with really. I am also wondering how I will get on giving myself injections but I guess that too will be ok once we’re used to it. This week I have blood test, optician, dentist, Picc line and chemo. I will certainly consider myself something of a medical expert after that lot. Keeps me busy though.
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20-02-2022
09:04
1 Hug
Hi coki32 good to hear that your first chemo is behind you and that you didn’t feel too bad. Well done. I look forward to your future posts.
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19-02-2022
06:43
2 Hugs
Thanks for your message. The District Nurse is going to visit to do my Picc line so I expect I can arrange for the injections too if I find it daunting. Good to know.
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19-02-2022
06:40
1 Hug
good advice, thanks. I will be given all the necessary bits and pieces either when I go for my Picc line on Friday or 1st chemo on Saturday. I will give it my best shot, excuse the pun.
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19-02-2022
02:13
1 Hug
I meant to ask this in my last message but…….mind’s elsewhere. I have opted to self administer injections at home but I haven’t done this before. Can anyone give any info please. I’m sure I will be able to but I’m a little apprehensive.
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19-02-2022
01:54
It is really helpful to read all your messages and to know it is not all bad news. I have my first chemo on Saturday 26th and the closer it gets the more butterflies I am getting. I do like to gather information and your posts are a reassuring way to do that. Thank you all.
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16-02-2022
02:40
1 Hug
It really is a steep learning curve. Totally out of the blue but no big announcements. Each appointment and conversation fed the creeping realization that what started as a routine mammogram was becoming a much more significant event. Thank goodness for routine mammograms though.
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16-02-2022
09:41
2 Hugs
Thank you for all this information, it’s so reassuring to hear from people in a similar boat.
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16-02-2022
09:37
1 Hug
Hello MrsD Your treatment plan sounds almost identical to mine. I am having 3 cycles of EC followed by 4 of placotaxel. I’m having PICC on Friday 25th and first chemo on Sat 26th. I know exactly what you mean about mixed feelings. I regularly sway from ‘let’s get this over and done with’ to ‘this can’t be happening’ and back again. Good luck next week, thousands get through this so why not us too. Keep posting please. It’s interesting to know how others are getting on.
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