Breast Cancer Now Forum

Felixfelicis · ‎13-02-2022

How’s everyone feeling? I had my first chemo (EC) on Thursday and haven’t been too bad with nausea but the tiredness really kicked in yesterday. I’ve just slept for an hour and a half too and only got up because the phone went or I’d still be lying there. It was supposed to be a 10 minute lie down after I’d done the hoovering! Is anyone else feeling so tired?

Felixfelicis · ‎05-02-2022

@annie0000 I’m starting on the 9th Feb too. Dreading it in someways but also looking forward to getting started if that makes sense.

Felixfelicis · ‎04-02-2022

Thanks @Angelface45 @I’m really glad to hear your treatment worked so well and that you’ve been cancer free for 5 and a half years. I start chemo next Thursday. I’m dreading it but at the same time looking forward to actually starting treatment if that makes sense. I’ve to have 3 sessions of EC 3 weeks apart then I move on to carbo / pax weekly but I don’t know how long for yet.

Felixfelicis · ‎29-01-2022

Hi, I’m just starting out on this roller coaster having been diagnosed with TNBC a few days ago. I was told that the biopsies, scans etc showed cancer in the lymph nodes under my arm, the breast itself and the skin (biopsy taken from a red mark about an inch above my nipple). To say I’m terrified is putting it mildly. I have an appointment with the oncologist next week and will start chemo a week or 2 after that. I’ve not got all the details yet, I suppose that is what I’ll get at the oncologist appointment, but the consultant told me that I’ll have 6 rounds of chemo 3 weeks apart then I’ll have a mastectomy to remove the left breast. The consultant also said that I’d lose my hair and that surgery first before chemo wasn’t an option as they wouldn’t get it all away. I’m just so shocked just now and would welcome any tips on dealing with what’s ahead of me and any support, words of advice or stories of positive outcomes from anyone on here who’s going or has gone through a similar diagnosis and treatment. Thanks.

Felixfelicis · ‎27-01-2022

Thanks @Shi I’ve definitely learnt my lesson about Dr Google after terrifying myself last weekend! Newbie question - why do I need to monitor my temperature during chemo? Thanks x

Felixfelicis · ‎27-01-2022

Hi @eeyore58 We certainly do share similarities, it’s my birthday next week and this is certainly not how I’d planned it! I also have GAD and although I’ve developed coping mechanisms over the years, this diagnosis has really knocked me. I think I’ll be starting chemo around the middle of February so I won’t be far behind you, perhaps we can keep in touch and share our journey on here. Good luck x

Felixfelicis · ‎27-01-2022

Hi, This afternoon I was diagnosed and told I have invasive ductal breast cancer. The biopsies showed cancer in the lymph nodes under my arm, in the breast and the skin (biopsy taken from a red mark above my nipple). The doctor said it was localised to the breast area and there were no signs of it having spread to my organs or other areas of my body which is some good news at least. The doctor also said there was no oestrogen present in the cancer cells but didn’t mention any other hormones so I don’t know if it’s triple negative or not. I see the oncologist next week and shortly afterwards will begin chemotherapy followed by a mastectomy. My head is all over the place and I’m in shock. Is there anyone else on here with a similar diagnosis that would be willing to share their experience. Thanks.

Felixfelicis · ‎27-01-2022

Thanks @TV1980 I won’t lie, the waiting has been hard. I find it helps if I can keep myself busy and distracted by other things. It’s always in the back of my mind but more manageable that way. I’ve also been falling asleep at night in front of mindless TV rather than going up to bed and lying awake over thinking. You might find it helpful to talk about things with a friend, your mum, partner or whoever you’re closest to. If you feel that you don’t want to worry them, then I called the helpline here and the nurse was fantastic. Whatever you do, don’t search things on Google, it’ll terrify you and make everything seem worse. If you really can’t resist doing some research then use more reliable sources such as this site, MacMillan or Cancer Research. Take care. xx

Felixfelicis · ‎26-01-2022

Hi, I’m in Glasgow and things have moved quickly for me. I called my GP surgery on 31st December to make the initial appointment about my concerns and my GP saw me the same day. I was referred to the breast clinic and had my appointment there on the 19th January. I go back tomorrow for the results. 😬 I hope things move forward for you soon and it turns out to be a false alarm. Good luck. x

Felixfelicis · ‎23-01-2022

Thanks @Rudy1 Yes, I never thought I’d have a need to be on a breast cancer forum. I doubt any of us did. It’s a great community though. Thanks for the info on what to expect and I hope everything works out ok for you going forward. 😊

Felixfelicis · ‎23-01-2022

Hello @Slightly Lopsided Thank you much for taking the time to give such a detailed reply, I really appreciate the information and will definitely get a copy of that book. There’s so much info available that it’s hard to identify the good sources from the not so good ones. My mum is coming to the appointment with me on Thursday and although I know that she will be as stressed as I am, it’ll still be good to have her there. In the meantime, I’ll try to keep busy as you suggest and not panic too much. I’ll post an update after my appointment to let you know how it went. Thanks again. 🙂

Felixfelicis · ‎22-01-2022

Hi Jill, Thanks for your reply. It certainly is a roller coaster ride! I felt a bit calmer earlier on but I’ve wound myself up into a frenzy again. On Wednesday the doctor said I’d likely be offered treatment rather than surgery and I foolishly looked up what that might mean hoping it would be less serious. Let’s just say I didn’t get the answer I hoped for. The sensible bit of me knows that she didn’t have the biopsy or CT scan results at that point so don’t have a full picture but I’m so panicked by it all.

Felixfelicis · ‎22-01-2022

Hi all, I’m just starting out on this terrifying journey. I had a hospital appointment on Wednesday when they did a mammogram, ultrasound, X-ray, 2 biopsies and a skin punch biopsy and a CT scan. It was the longest day of my life! Then the doctor told me the images were suspicious of breast cancer. I have my next appointment in 5 days time once the doctors have analysed everything and know what treatment is best for me. To say I’m absolutely terrified is putting it mildly. Can anyone tell me what to expect at this appointment please and what sort of questions I should be asking them? I’m a control freak and right now I’m just being swept along which is adding to my anxiety. If I know what to expect and can prepare and plan for it I think I’d feel a bit better. Thanks x

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