Breast Cancer Now Forum

Hi  I also agree re emmerdale it’s scaring me to death! My mum was diagnosed in May with stage 4 cancer spread to lungs and bones and spine and she hasn’t started any treatments yet and lost lots weight. This site has kept me positive with all the stories of people being able to be managed and that it’s not an instant death sentence. My mum is also following Emmerdale and I don’t understand why she is being told already it’s not working and she’s dying next week! It’s freaking me out and worrying me!  ... View more

Hi Pam  Sorry to hear your news, is the tablet the chemo tablet you are going to be taking?  My mum has an appointment with the oncologist Friday to have a discussion.  She doesn't want to have chemo either the IV one .. hoping they will give some kind of treatments.   How are you doing? x ... View more

Hi Liz  thank you for your message it means a lot. That’s such positive news that you are four years on from secondaries in same places as my mum .. that’s really lifted my spirits and so glad you have had good scan results.. it’s all so scary and it’s not even happening to me .  I want to be strong for my mum and support her just so scared of loosing her. I have booked a weekend away every month till end of year to all the places she likes to go so she has things to look forward too ..  I have made notes of the treatments your on so I can ask questions when we next see someone .. I really appreciate you responding and telling me about yourself . I saw my mum earlier today and she said we should talk about end of life care after yesterday and I just went to pieces! But tomorrow I am going to Go and see her and show her the positive messages I have got and try and get her back in fight mode xx ... View more

Hi Gina G thank you for responding it means a lot and thank you for the name of that bone strengthening injection. I will write it down and ask about it when we next get to see somebody.  I feel a bit more uplifted after reading the replies, I haven’t been able to go to work today as was so upset after yesterday! Spent most of the day crying! Xx ... View more

Hi Jill1998 thank you for responding it means a lot, they said they will be in contact with a date over next few weeks for MRI scan to see best place in spine to do biopsie then week later do the biopsie then will refer her to Weston Park hospital (in Sheffield where we live) and that she probably won’t go back to The Hallamshire hospital again. Where we were yesterday ..  I just felt totally down after yesterday as reading all the posts on this site , I know everyone is different and will respond differently but I read there are lots of treatments that can be tried but they just didn’t say that .. and that’s what’s been keeping me going that it’s not an immediate death sentence .. and just hoping I have my mum around for a bit longer ., I keep praying for two years! Obviously I want her around forever but that’s not realistic .. but I wan to make memories and make sure she is living her best life now while she can xx ... View more

Hi just looking for some advise / positivity.  My mum whose 73 has been diagnosed with secondary breast cancer, 8 years after primary.  She’s been in a lot of pain since January and lost two stone .. loads of tests and finally chest X-ray which picked up tumour in lung, in the lung lining and the chest wall and rib.  We went to the hospital yesterday to get results of her bone scans etc and they said there are also mets in spine and pelvis.  They want to do a biopsy in her back and MRI scan to see if it’s acting the same as primary . The consultant seemed very doom and gloom and said we will do all we can but it’s widespread. We were then left with the macmillan nurse and she said you know it can’t be cured which we knew anyway. I then asked about treatment and my mums on letrozole last 8 years but obviously it’s not worked. My mum said she won’t have chemo again and I said to the nurse could she explain to my mum that the chemo wouldn’t be like the first time and aggressive treatment and it’s more about being able to keep her as well as they can for as long as they can etc and also tablet form and won’t loose hair etc. and the nurse said she didn’t think my mum would be offered chemo then I said what about the bone mets and I had read people having some kind of bone strengthening treatments and she said they don’t do that for breast cancer I said I have read all the online forums and people are on those treatments ..  my mum left the room with the mindset it’s game over and no treatment is going to be offered and that she hasn’t much time left ..  I am frozen with fear as I can’t bear the thought of loosing my mum ..  I just wondered if there is anyone out there of the same age as my mum that can offer me any hope of my mum being round a while yet and what treatment could be offered and why chemo won’t be an option?  Thank you all xx ... View more

Hi  How is your mum doing?  My mum been diagnosed with the same, age 73 and worried sickx ... View more

My mum went to the breast Clinic on Wednesday and they told her that it wasn't breast cancer, they did a mammagram and ultra sound and said don't know why the doctor has sent you here, there is no cancer in your breast of lymph glands.   I called her doctor and she said that the radiographer's report said it was showing all signs of mestastic cancer in chest wall, ribs and a 2.6cm tumour in the bottom soft tissue of her lung ..   A team are meeting next Wednesday to discuss as it could not we another cancer but they don't know where the primary is .. so it just gets worse by the day and my mum is getting weaker and in more pain by the day ..  I just am so heartbroken and don't understand why they are taking so long  ... View more

Thank you and so sorry about your mum too. I am just so scared as my mum says she won’t have chemo again and so I am worried they can’t do anything to prolong it . It’s spread to lung, rib and bones.  We are waiting to see the breast cancer clinic . I am trying to be positive but I am really scared and just feel like my world is ending at the minute xx ... View more