Dear Katie Have you had any results from biopsies yet? It must be a very worrying time especially as you are caring for your disabled daughter. Do you have family support? You need friends and family to rally round. I hope you can get some counselling, I got some help from a hospice recently in my area. I haven’t got a diagnosis either but your symptoms were very unusual. I am thinking of you. With all sympathy, Seagulls
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