Breast Cancer Now Forum

Hi Sue, please have a look at this fabulous website founded by women who have had/have lobular bc.   https://lobularbreastcancer.org.uk/monitoring/ especially at this bit: "If your tumour was missed on mammogram or the full extent was not seen, you may want to ask for on-going annual MRI monitoring too. To help you with this ask, we have produced a template letter for you, containing some of the latest scientific evidence about lobular and MRIs, to send to your medical team if you wish to ask for this monitoring in the future. The letter can be downloaded here and please contact us if you have any further questions or concerns about this." You can email them for advice, they're very responsive!  Also, MRI does not use radiation, but strong magnetic fields: there are no side-effects from the scan, but there may be from the contrast agent. Sorry to keep it so brief. I'm off on a holiday tomorrow morning after finally finishing my 3 week rt course, hooray! All the best!!      ... View more

Hi SP87, yes, fantastic news, congratulations! And thanks again for helping me when you were in such a stressful situation yourself. Big 🤗 ... View more

Hi SP87, Thank you very much for your message and explanation. I'm going to keep trying to get more info. about why the tumours were missed. And if I'm not offered an MRI and an adequate reason for this, I will seriously consider going privately, I hadn't consifered that yet. All the best to you xxx ... View more

Dear SP87, I am keeping everything crossed for you that it will be ok 🤞🤞🤞 Giving you a very big hug 🤗 🌟 I feel bad about straying from the subject, but I have a question for all of you: it sounds like all of you have been offered MRIs as follow-ups, is that the norm? I have had my lumpectomy, now waiting for radiotherapy and have been sent an appt. for a mammogram in May 2023. I asked my BC nurse about future MRIs, but she said I wouldn't be getting any "as I would already receive a lot of radiation from radiotherapy". I don't think MRI uses radiation though? I asked because my BC was missed on a mammogram in Dec. 2022 and then 'underestimated' when I had a contrast mammogram & ultrasound in Feb. (it wasn't 1 cm, but nearly 3 cm). There is a bit of DCIS, but the invasive growth is the largest and is a combination of non-specific and lobular: I understand lobular is easily missed on mammograms and MRIs are best to pick up lobular cancer. Has anyone had to insist on an MRI?  Many thanks for any reactions ❤   ... View more