Breast Cancer Now Forum

Thank you so much all for sharing your experiences. Her oncologist doesn't seem to have any advice on the taste change... He seems to be concerned about the results of therapy more pthan anything else... She also prefers soups over anything else, bus she needs to have a richer diet I assume. She doesn't have any soar throat, she says the food tastes bad/bitter. We will see her oncologist tomorrow with new test results, please send us your prayers 🙏  ... View more

Hello all, My mum has secondary breast cancer with bone met in several areas. She is on Abemaciclib, letrozol, and xgeva, starting in September 2023. The treatment has been effective so far in reducing tumor markers and size of tumors. However, she has been developing a very bad taste in her mouth since she started the treatment. She does not enjoy eating anymore and refuses to eat… she has lost about 7 kg over the past few months and we are so worried that even though her cancer condition is improving she is weakened due to not eating well. I wonder if any of you have had similar experience with the treatments I mentioned above and do you have any recommendation? Thank you very much ... View more

Hi all. My mum tumor marker test results came today after being on hormone therapy for 5 weeks. CEA marker has decreased from 26 to 7, while CA 15-3 has increased from 142 to 191. Has anyone had any experience of increased CA 15-3 while starting Abemaciclib and Letrozole? We will see the oncologist soon but still very worried... ... View more

Hi All, fist of all, it is really inspiring to read all of your stories. Honestly, spending sometime on this forum everyday has been a tremendous help in the past few weeks to me as we have been faced with a new shocking reality that my mum has bone met now after 23 years of primary cancer. She is 62 and while we all thought she was a cancer survivor, it seems to be back causing met in spine, femur, rib, pelvic, and sternum, also under skin lesions, which are like red lymphs. she is on Abemaciclib, Letrozole, and Denosumab. One oncologist really scared me but I talked to a couple of more and they have been really positive on this treatment. It’s been a month since she started therapy but she still has pain sometimes in her ribs. I wonder how long the med takes to be affective. The under skin lymphs seem to very gradually shrink. Through all of this, they figured out that thyroid also has a tiny tumor and needs to be removed but doctors are still figuring out if they should do the surgery now or after a few months so no to interrupt the therapy… She will have a tumor marker test in 10 days, they told us scan will be in three months after start of the therapy.  So, again thank you so much for all your positive energy. I check this forum every day now… ... View more