Breast Cancer Now Forum

Hi Can I ask what you decided to do, are you taking Abe?  Whatever you decided I wish you all the very best xx   ... View more

Hi I've only just seen your message and wonder whether you are back to work next week?  I found I was very tired for the first couple of months on Abe, managed this by working from home every other day and napping for 30 mins in my lunch break.  Also for the first 3 weeks I worked from home as I had a lot of diarrhea and stomach cramps and was a bit worried about having to rush to a shared office loo.  But we're all different and hopefully you won't have this much of a problem! All the very best with your return to work, hope you can have some flexibility as you get used to Abe.  Good luck with it all xx ... View more

Very glad you have had the opportunity to take Abe.  I haven't had any hair loss at all, hope that's reassuring.  Our newly grown hair is precious!   Good luck with it all xx ... View more

Hi hope you've got some Buscopan and the Immodium is doing its job.  I don't go anywhere without them now just in case!  We're all different but I haven't had any hair loss at all on Abe and Tamoxifen, so hopefully you can carry on rocking your pixie cut! Good luck with it all xx ... View more

Hi I'm so pleased to have found this thread.  I started Abemaciclib within 12 weeks of Tamoxifen and am now on cycle 3 (3rd month) of Abe.  150mg twice a day.  I had a grade 3 tumour with 3 lymph nodes affected so fit the criteria for 2 years of Abe.  I've had the same side effects as everyone mentioned here, the diarrhoea was horrible off and on for the first couple of months and also nasty stomach pains.  These have definitely eased off now and when they do occur I'm quickly on the immodium and also buscopan which my oncologist recommended for the stomach pains.  Also the low blood counts (I was tested every fortnight for the first 2 months, now monthly) and the need to be careful around infection. I'm very grateful to have the opportunity to take a drug so recently approved for people in my situation, my oncologist said it could potentially have the same effect as chemo in terms of recurrence risk reduction.  At the same time I am really tired most of the time and find I get easily overwhelmed if I'm really busy at home or work.  Then the hot flushes start (think that's the tamoxifen though?!) It's not easy trying to keep the wheels on everything!  I'd like to say hang on in there to everyone else on the same combo as me, it will be worth it.  Also if anyone has any tips for managing the fatigue or even just to tell me that needing a nap on the sofa after work is normal that would be great!     ... View more