Hello Eavesdropping on various forums has helped enormously through chemo, surgery, RT and now Letrozole, Resdronate and Abemiciclib. This thread is particularly welcome 🙂 so I thought it high time to start an account and join in. I have been on Abemiciclib nearly 6 months apart from a short break when neutropenic and then for RT. For me the big D started the first night after my first evening dose of 150mg. I was up in the early hours with stomach cramps whilst it felt like the world fell out of my bottom, as a particularly humorous patient on a different forum aptly put it. By the next day the Loperamide (which I believe is the same as Immodium 🤔), had kicked in but withina few weeks I was really struggling to leave the home without problems. I now have more good days than bad on a reduced 100mg x2/ day dose, but only manage by a greatly altered diet . I believe taking food soon after each dose is what has helped me most, as long as it is low fibre. My Clinical Nurse Specialist previously worked in colon cancer and her advice to take foods containing gelatine has also been a game changer. Not much help to vegetarians, and I feel bad now eating so many animal based products , but what can you do when the patient leaflet suggests avoiding cereal, fresh fruit and veg? Plus if anybody deserves the privilege of animal products it surely has to be us long suffering cancer treatment patients. Thanks so much to all you strong women for sharing your experience and advice. It really helps so much to know what to expect and I take my hat off to all of you who have returned to work and/or continued caring responsibilites throughout. We are so lucky to get this drug. Good luck to all Warm thoughts and hugs Abemified
... View more
