Breast Cancer Now Forum

Thank you, so do I! Hope everything's going well with you and your treatment xx ... View more

Hi ladies, I hope you don't mind me messaging you but I was following your posts last month as I had been through similar and just wondered how you were both doing? I started chemo in March and am x 4 rounds of EC down, hopefully should be finished all chemo and radiotherapy by end of July then long term medication. I really hope you're both ok as I did feel for you and recognise all your worries and fears, waiting for full diagnosis is absolutely awful and I wouldn't wish any if this in anyone, I had to wait 8 weeks for the results of a FISH test to define if it was HER2 negative or positive which was the longest and most stressful 8 weeks of my life. Hope everything is going well, take care x ... View more

Hi, I'm on round 4 of x 6 EC and had been hoping that my eyebrows and lashes would stay the course until my son's wedding in a month's time. Unfortunately my eyebrows are definitely going AWOL and have reduced by about a third recently and my eyebrows are looking more sparse too. Can I ask, at what stage did you ladies totally lose your lashes and brows? Am hoping to still have some by the wedding but don't know if I'm being overly optimistic? Have been using lash and brow serum throughout but it's looking that there's only so much that can do! Thanks x ... View more

Hi Katkat and everyone, you're doing amazingly well:)) Yes, I think you're right, if we all had a cast iron guarantee that might help. I'm the type of person who always reads the last page of a book to make sure it's all OK (I know, what a spoiler!) before I read it but you can't do that with this! Just need to keep positive and accept the highs and lows and that we're going to have different emotions along the way. These feelings have surprised me though because as I've said, I'm normally a happy bod not the grumpy Atilla the Hun I've turned into this week! Normal service is being resumed though:) Really hope the next stage on your treatment goes well, Katkat, maybe speak to your team and see if you can factor in a short break to give you the boost to take you up to surgery? Think we're going to try and fo that too. Big hugs to you all girls, love this group and all the support we give each other. Onwards and upwards!🥰 ... View more

Thank you, Shi, that makes me feel better too. Am feeling a bit more positive this morning and am going out with a friend so that's a plus too. Maybe we all beat ourselves up too much and need to appreciate that we can't always be positive for everyone around us and recognise what we're going through, thanks again x ... View more

Hi Riddler, I'm so pleased for you, that's amazing, fantastic news, so good to hear, definitely makes it all worthwhile!  I'm thinking that maybe it's only just hit home properly so maybe that's why have had these feelings, good to know I'm not alone, thank you! Hugs xx ... View more

Omg too! I nearly deleted this post this morning as I thought you'd all think that I was a complete nutcase and am so glad I didn't, you have both made me feel so much better, it's obviously not just me then, maybe it's all part of the "journey" (can't remember signing up for this one though and going "ooh, that looks good, let's give it a go"🤨 Feel awful for feeling like this and yes, I feel resentful too, Riddler, if anyone else mentions a holiday at the moment, might just scream! Not that you wish they weren't going, just want to go too, deep breath, we will, just not quite now. Thank you girls, nice yo know I'm not alone. Good luck for your ultrasound today, Nixi, hope it goes well xx ... View more

Hi all, Just wondered if anyone else had/is experiencing this? I have been massively positive apart from a few wobbles ever since starting this journey being diagnosed at the end of last November and am now just about to have EC4 out of 6 next Wednesday. I've been fairly lucky regarding side effects so far but this last round has hit me harder, generally feeling quite ill and fatigued but physically am feeling better now. However, I've been in tears for the last couple of days and feel fed up, bit down, resentful and to be honest, bloody angry.  Angry that I've got this, angry about not feeling well and know there's a likelihood of being worse after next treatment, angry that I can't do what I normally can and haven't got the energy, angry that I can't do the stuff that everyone else in the whole wide world is doing eg trips, hols etc and this isn't me! I'm sounding like a miserable, grumpy, self centred, selfish old bat and I hate this because this isn't who I am, Im usually a calm, happy, sunny individual! I did have a radiotherapy appointment last week and the Dr went through the next stages following chemo and went through my previous notes including tumour details, grade, treatments etc etc and am wondering if after all this time, that's just made it hit home, if that makes sense? I also can't help but worry as we all probably do, that is this beastie going to come back as it did with my Mum albeit many years later. I looked after my Mum until she passed away 2 years ago (didn't get the treatment she should've had because of lockdown and totally incompetent GP, will leave that there as it still upsets me) and that is worrying me.  Is this anything to do with the build up of EC? I know I'm so lucky in lots of respects and my mantra is normally "turn a negative into a positive" but I don’t like, recognise who I am at the moment, help, any helpful suggestions please, really want to go back to being my normal, little happy bunny self not a resentful, grumpy ole moo x ... View more

Hi Riddler,   Glad to hear you're getting through your treatment, well done. Would be interested to hear how your acupuncture goes, my nightly hot flushes are increasing on EC too, thought I'd finished with all of that! Good luck with your appointment on 15th, let us know how you get on. Hugs xx ... View more

Thank you so much for your openess and honesty and for addressing the "elephant in the room". This is a really important part of our relationship too but feel that things have changed a bit since my diagnosis, on chemo at the mo, worried about effects of long term meds too but your posts are giving me hope! Just to say, I use Replens too but use it at night just before I go to bed which seems to work and isn't all "gloopy" during the day if you get me. We're carrying on but things aren't quite the same as before dbut that may well be as my poor little bod has/is going through a lot and I don't feel very sexy being a baldy! Hoping things will get better though worried about meds. Good to talk though as I really want an indepth chat with someone but don't know who to ask. Thanks ... View more

Good to hear you're doing ok, Jo, two weekly must be tough, you're doing good! I loved the LGFB course and just couldn't believe how many goodies we were given, definitely lifted the spirits. How is everyone faring on the "morning sickness"? I'm eating some weird and wonderful things, can’t go near meat at the moment but am trying to eat as as possible as lost too much weight last time. Have doubled up on all the Dulcolax etc so big time hoping that's not going to be an issue again this time either! Otherwise, fingers crossed ok🤞 Hugs to everyone, really hope you're all doing ok, keep those spirits up! Xxx ... View more

Thanks, Shi! Am armed and ready to go (literally!) this time, have got the lot! ... View more

Morning ladies, how are you all? @Jolo81 Same here, I have third EC later today, not looking forward to the cocktail of drugs and hoping to avoid the impacted bowel this time, have additional "dynamite" from the GP which will hopefully help. Good luck, Jo, hope it goes well. Love and hugs to everyone💞xx ... View more

@rbc59 So pleased to hear the good news on your lymph nodes and tumour, that's excellent news!🥰 xx ... View more

Sorry @Nettle too! ... View more

@Fraserfig @Ruthiella @Nutmeg What a lovely thing to say, I love that! Big hugs to you all girls, this is a lovely group, we can do this🥰xxx ... View more

Hi there, First of all I'm sending you a big hug because I think you need it😘 I think it's very normal to catastrophise everything especially as this has come as a huge shock but on the positive side, even though it can sound very scary and is, the hospital now know what they're dealing with and can start putting your individual treatment plan into place. One of the hardest bits is where you are now and the waiting and not knowing what's going to happen but once those appointments start rolling in and treatment starts, I think it's easier to cope with. I think we all have similar thoughts to start with as that's only natural but the treatments for breast cancer are good now, you're going to be ok and will get the treatment you need to see your lovely boys grow up. My friend is 39 with 4 children and I know her and her partner benefitted from speaking with a counsellor at our local Big C, I've also been matched up with someone on the Breast Cancer Now Someone Like Me programme who has had the same type of breast cancer and treatment as me in the past which has helped, maybe this might be of help and support to you too? You're also now part of the wonderful BCN Forum support network top now and there are some truly lovely people on here. It may not be easy over the next few months but you will find a strength you didn't know you had, let people help you too, I don't think we're always very good at that as Mum's and partners as we're usually the ones doing the support and  protecting bits!  Not sure if this has helped at all but I hope so. You're not on your own, you will get through this, sending you another big hug and lots of love😘xx ... View more

@Aurora chaser Glad to hear you're on the mend, that's excellent news. Thanks for the top tips too, I was thinking yesterday that maybe having a bag ready to grab and go if needed would be a good idea but will have to wait til I've got some energy back.  Must admit that at the mo, I feel pretty blooming awful and have the most horrible cold x 10 probably cos my little immune system isn't firing on all cylinders for obvious reasons. I won't attach a piccie as it isn't pretty at the mo🤣 Today is going to be another day of doing "not a lot" though my eldest son is popping round later so that will be lovely🥰 No Casa NHS at present, they're happy for me to stay here and so am I, temperature is still OK so need to  stop whingeing and get on with it! Have a lovely day everyone, hope you're all ok🥰xx ... View more

@chaz2418 Good luck for your 2nd EC today, I'm second EC plus 12 days. Love your little lad, that's sweet, good to turn things into a plus, think you might need to show us your new hair, sounds good😃xx ... View more

Thank you, have just rung in and need to monitor my temperature which is 36 normal for me. A day of doing not a lot methinks and catch up TV🤧 ... View more