I am an acupuncturist (and 3 months into my own breast cancer/mastectomy/chemo experience).
Please, if anyone suggests needling the arm on the side of lymph node removal, they are NOT properly qualified and you should avoid them like the plaque, it is contraindicated.
Acupuncture is wonderful for all of the side effects of your treatments and for helping to prevent recurrence of your cancer.
Please chose your acupuncturist from the official site of the British Acupuncture Council : www.acupuncture.org.uk. You can be assured that they will be properly qualified to a very high standard, working to documented high standards of cleanliness and safety, and fully covered by insurance.
You should also make sure that no-one else punctures or puts pressure on that arm for at least 2 years after node removal (eg nurses taking blood pressure, giving injections or innoculations, kittens & puppies playing, manicurists cutting cuticles etc etc).
Good luck all!
... View more
Thank you so much everyone who has contributed here, I can feel that it will be so helpful to me in a few weeks.
I'm off to see Professor Chemo tomorrow to learn what cocktail he plans for me .... you have given me so much info ... my list of questions is now twice as long!!!!
Love and light to you all
... View more
Liz you are a marvel - thank you for an insight into how confusing and changeable diagnosis can be - knowing that makes me less scared, believe it or not. It shows me how I must keep my mind open and stop trying to tie everything down and secure in neat little 'boxes'. Go with the flow, as my friend says. Your information sounds as if it is all history/up to 2 years in the past ..... how are you doing now/today?
You all use initials ..... WLE, FNA, LNB .... I've started a list so I can keep up until the terms become familiar!
Jen - I surfed the internet this morning looking at pictures of bald women, in readiness for the 'boiled egg' look in the near future after my mastectomy is over. My son took some photos of me this morning, he's going to air brush out my hair so I can get an idea of what I will look like. Hair loss for me is so sad - its is a small price to pay for my life I know, and I feel guilty being so vain. I've already decided that I shall have my head shaved at the start of chemo - it breaks my heart to see my patients getting up from the couch and leaving so much of themselves behind - I don't believe I can watch that happen to me. I am told there are lots of good wig makers out there ..... have a feeling I will be like you and sensitive to the itchy sweaty aspect. Do others of you have experiences to share about wigs?
I am enjoying reading all of your different experiences.... its comforting. Although at the same time am horrified that so many of us are going through these experiences.... mind blowing
Big hugs for Monday, Di.
Monday is the day I get to know full extent/spread of my cancer, lymph involvement, and date for mastectomy. I wonder if I shall find some new initials to add to my reference list!!!!
... View more
Hi everybody, Tania in particular.
I was diagnosed with an 8cm Grade 2, Invasive Lobular Carcinoma on Aug 27th. I've had more tests to determine full extent, and will be seeing the consultant on 8th Oct for results and 'plan of action' - first indications are that mastectomy is most sensible option, because it is 'Classic' ILC - so Oestrogen/Progesterone +ve/HEP2 -ve therefore hormone/chemotherapy will have little/slow effect in shrinking the tumour. I agree with this, I've known since I found the lumps (both breasts, but only left has 'taken off') that I want cut out.
As an acupuncturist I have some knowledge of cancer and have treated several women through treatment and out the other side. Sorry to say, this it little comfort when the problem is with yourself! I'm scared!
My Breast Care Nurse sent me the booklet that is published by this website - it's called 'Treating Breast Cancer' .... it is marvellous .... my advice is to ****GET HOLD OF A COPY NOW****. It covers EVERY aspect, tells you where to get more information, lists the questions that you need to ask so that you are fully informed..
On the subject of questions ... if you want to know anything ... please start a list .... and don't be frightened to call the nurse and talk to her. Don't be frightened to ask the surgeon. Please don't think that your questions are small, irrelevant, insignificant, THEY AREN'T!!! They are what YOU need to know. We are all paying, through PHI or through NI contributions for these people to help us - and they are trained to help us - please use them, they are there to help put us at ease.
Good luck to you all
Love and luck to everyone
Jan (petrified, as we all are!)
... View more