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Carrot
Member
since
01-05-2012
47
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Hugs
03-06-2015
08:02
Portacaths are brilliant, getting it put in really isn't much to worry about - a pleasant woozy state (and I slept afterwards cos of late night night before). They work like a dream. Mine doesn't always give up blood but always lets the drug in, and it's not nearly as bad giving blood from the arm. It really does make life easier. I love it! Carrot
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03-06-2015
07:59
I was told 2-3 years, 3 years ago. I decided I didn't like that and was going to live longer. I do think it helps to be a bit pig headed! Bumpkin - do you know what the other drugs are the onco has in his cupboard for you? I did get mine to give me a list (wanted to see how long it was!) - have had 'em all apart from the vinorelibine now, but hopefully some new ones soon. Carrot x
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03-06-2015
07:54
SS, fab news re your results! So pleased 🙂 What a relief ... I know how things go out of our minds in those appointments! Even if I've written things down I'll 'edit' the list as I look at it and then kick myself afterwards! Would be interesting to hear who is the brca expert - he didn't mention (I'm not sure whether we're supposed to mention names here) anyone with initials AT? Am so pleased for you! Will drink a half pint in your honour (gov) ... now you do something really lovely to celebrate and enjoy a bit of anxiety free time for a while (til the next flippin' scan!!) Cheers, Carrot
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02-06-2015
10:51
Thanks funnyface 🙂
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02-06-2015
10:50
SS ... {{{ hugs }}} ... also ... I'm the same when I'm scared ... I think I want to see people but actually I don't want to keep having to try to put a good face on it. It's v tough that you can be BRCA which is almost triple negative but not quite (weakly oestrogen recep) and the general public are beginning to twig that most breast cancer is treatable. So after years of being positive which I'm sure has helped me fight it, when the chips appear to be down it's hard to hear them say 'oh be positive'. You might ask the doctor about alternative antidepressants - sertraline for example, also helps with anxiety. I'm pretty sure Prozac doesn't help with anxiety. I got engaged on Prozac once, sadly the marriage didn't work out (tho he is a very kind and supportive ex). I was defo a different person on Prozac. But I so empathise with what you say about not knowing who you are. I am not used to feeling so grumpy as I am at the moment, with uncertainty about treatment and whether there is any avaialbe that is worth taking. I don't know whether you had epirubicin at an earlier stage, but that was utterly surreal - I looked at myself in a mirror at some stage and really, really didn't feel that I was that person. Almost an out of body. Weird. Will be thinking of you if that's any help, and sending good vibes. I will light a candle and that'll remind me to think of you and a couple of other friends in trouble. Carrot
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02-06-2015
10:43
Apparently I don't fit the profile for the one he was hoping for. He was going to speak to a BRCA expert in London. Another friend of mine suggested the hospital in Manchester, I have yet to suggest that to him, not quite sure how he will feel about me coming up with stuff! But I haven't heard all week so I guess the London option hasn't come to anything or I'd have heard from him. I need to go in and get my port flushed out anyway so at least will see the nurses. Have been feeling jittery and disconnected with all the uncertainty of the drugs, or the alternative which is even more uncertainty! Someone in my knitting group made a most interesting suggestion about my poor intestines who are not loving life at the moment, about something I could smoke (if I could work out where on earth to get any) which is also apparently good for nausea. But since I don't know how to find any it will remain an interresting theory. Also, I don't smoke anyway. Perhaps acupuncture could be good for pain, nausea and indigestion! Carrot
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02-06-2015
10:37
A quick hug to you after your horrid day, come and join us in a hammock (you can have your own one near us, or I foresee tipping out problems!!) looking at the stars and giggling amongst ourselves...
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02-06-2015
10:36
Hi Belinda I have One Staedler red pencil, the 'lead' is so wonderfully soft. Must try to track some more down. This one will probably be about fifty years old!!! Found my Derwents :-))) and also a small tin of 'Inktense' ones which you can darken with a paintbrush... ordered a gardeny colouring book. But I have got a couple of drawings to colour in. Come to think of it, I always wanted to colour in the line drawings in my Puffin books when younger. Also liked to make tents in the garden - so will join you lot with that - another lovely thing is looking at the stars from a hammock, perhaps strung between two old apple trees ... and listening to all the creaky rustling noises which is the snails and co going about their nightly picnics. I'll have a nice glass bowl of raspberries, strawberries and great, I presume in this cafe that people who are lactose intolerant now can eat cream :-))))) A couple of cats are sitting on me purring as we sway gently too and fro, and I can smell the night scented stocks, the roses and the tobacco plants. And the lilac (hmm mixing me months a bit here!!)... there's also the haunting lovely song of a couple of nightingales.... bliss ... Carrot x
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01-06-2015
11:52
Colouring books - am going dotty trying to find my lovely Derwent colouring pencils .. Can only find a cheaper set where the leads break when you sharpen 'em.. What's your fave pencils 2catlady? One of my 2 cats is celebrating her 13th b'day today ...
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01-06-2015
11:49
What happened to all that hot? I'm back to hot chocolate here.. Bed socks & hat! Wind is wuthering, rain lashing the windows. Off to dream of having a glass of Sauvignon with no consequent acid reflux, on a grassy bank on a sunny day, surrounded by wild flowers & birdies, hamper with grapes & strawberries to hand, and good friends to joke with 🙂 Have a good night everyone, and keep safe in the wind! Carrot
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29-05-2015
04:45
You can admire Mr PH's buns all you like chook - but would you like a real life calendar of him? Some friend gave it to me for Xmas (I was assuming as a joke) - asked around my knitting group and nobody wanted him either… If you want it PM me 🙂 Otherwise it's on its way to the charity shop 😉
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29-05-2015
04:37
Hi Bluebell, Have you thought of putting peach juice into the prosecco? I read in a book it was ace. Then you could have a peach cake with it …. just a thought 😉 It'll be served on a tray by Colin Firth...
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29-05-2015
04:36
You can't have Ross, he's mine. um. actually I rather like Demelza, but not in That Way, ok, but she's beautiful to look at and not unsettling like he is! And I get she can knock up a Cornish gansey in a week! Ducks head… as the ladies spin their plates at me frizbee style ….
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29-05-2015
04:33
Have I missed it, for my praying mantis? Who er .. prays whilst dancing the fangando?!!
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29-05-2015
04:28
Hi Helen Ace move! I'm sliding in here and have just got a mocha & an exotic fruit salad to mooch over. I'm dead pleased there's a craft corner here cos that's what is keeping me sane! I knit and make historical style dolls - mostly cloth so far but have also carved one in wood. I wasn't too sure about doing dolls, until showing them to my autistic goddaughter, we ended up playing with them all day and her rearranging the dollshouse (my DD's) and her actually talking. So, there we go. I enjoy sewing too, and when I have the energy and ideas, like to paint, preferably not walls but people painting sounds great 😉 Just send Ben Whishaw up please... Also currently waiting for the rain to stop giving my washing a third rinse and let me take the dogs out. After that, I rest! Hugs to you all 🙂 Carrot
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29-05-2015
04:14
Hi Orse, Your oncologist has no business telling you a life expectancy. It's just a statistic, you don't have to be in the two year part of it. I was told this in 2008 - lymph node also enlarged in chest, in my axilla, but not reconstruction because I use chicken fillets instead. {{{ hugs }}} Carrot
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29-05-2015
04:11
Hi Stresshead Just wanted to send you some {{{ hugs }}} from pretty much the same position as you. I hope something turns up for you 🙂 Carrot
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29-05-2015
04:06
Hi folks Onco has just texted me to say that there are no local trials and that someone I know working on something - there's no treatment for me out of this. Not much progress.. I ought to sort my stomach problems out anyway, in this waiting time. If I can! (or if the docs can)... A bit up and down mentally but quite often managing to stick to Mrs Ostrich which siuts me most of the time (head wedged firmly in sand). My washing I put out because the forecast said it would clear up, is getting its third extra rinse as we speak 😉 Carrot BRCA2, almost triple neg. Done most of the drugs. Everything quite well contained but ... almost no more drugs.
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