Hi everyone, long time no speak.
Sorry I haven't been on for ages but thank Mary for keeping everyone posted that I'm still here.
Oh dear what has happened to our care - it seems to have gone out the window. M1YU what the h.... are they playing at the way you are being treated is outrageous. I'm so glad that your mum will be back with you shortly - some good news.
Mary, thanks for keeeping in touch. Again outrageous being given tne wrong results. I'm at a loss for words - which is unusual for me!!!
Nicola sorry you are having such a hard time, you cannot carry on like that with the washing. Why not ask MacMillans they assist in situations like that. I do hope things improve.
Sarah fingers crossed for your ct scan results. I had an MRI scan weeks ago and no-one has mentioned it so neither have I - talk about putting your head in the sand - I just don't want to know any more.
I'm having weekly chemo now which is not as bad as it sounds just find 6 hours at the hopital tiring and few days afterwards don't have much energy. Really hope to go back to work beginning of February but that depends on getting off the bloody painkillersw as brain won't work when taking them.
Julie - thanks for pm and thinking of me.
Hi Wayne, Sarah, Ros and all you wonderful people. Going to crawl out of my cave in the Highlands and keep in touch. Everyone seems to be going through a hard time at the moment. As Mary says - spring is on it's way,that will help.
Missed you all, lots of love and hugs Anne xxxxxx
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Had first rad today as consultant forgot to sign the form for yesterday and was on day off grrrrrrrrrrr.
I had a terrible night of pain and was in poor shape when I got to the hospital so they are going to admit me to the hospice to try and get pain under control. I was resistant at first but can't carry on with this pain so off I go. They say it will be just for a couple of days but I suspect more!!!!!
Don't know when I'll be able to post again so sending lots of love and big hugs to you all. Will let you know how it went when I get home - can't wait.
Lots of love Anne xx
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Thanks for your lovely welcome it is good to be back with you, I missed you and thought about you always. Great news that your lumps are still going down M1yu, I’m sure as you say Louise’s are doing the same. Good to hear that things are going well for your friend and thank you for sharing her story – I am so pleased rads have worked for her and it gives me hope. I just couldn’t understand how radiotherapy could help a potential fracture but now I know it works – bring on the rads tomorrow!!!!!!!! Thank you also for the link it will be good to understand what they plan and how it works. Bad girl not doing your exercises but good news that sleeve helping already. Your normality will come you are well on the way there.
Belinda I love your idea and you have got my mind working overtime and planning wee projects when I’m over this hurdle. I also do picture framing as well so could do that for wee pressies, it’s a brilliant idea and I will enjoy doing it.
Hope you are feeling better Sandra and please contact doctor tomorrow if you still feeling so low you should not have to suffer when there is support there. Big hugs.
Hope you had a good weekend Mary and getting over your tiredness.
Must go as bed beckons – me and my bloody collar!!! Hopefully by this time next week things will be better and I can burn the thing!!!
Love and hugs to you all and hope we all have a good week ahead,
Love Anne xxxxxxxxxxxxxxxxxxxxxxxx
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Thanks for your message about your friend not having to wear her collar for years now - it certainly gives me hope. As you say sleeping in it is a nightmare, I am so tired at times I get to the stage I could sleep standing up. I fell asleep in the MRI scanner on Friday - they had to wake me up as I was moving - very embarassing.
My daughter asked me ages ago to knit her a jumper what a wonderful idea to leave all my girls something I knitted. I used to knit all the time and Sarah has inspired me to start again with her gingerbread men. Only problem is there not a good wool shop in Inverness - do you get your patterns and wool online? I know we can't post web sites on the forum but if anyone has any good ideas could they please ph me them. I have also made my girls samplers with their birth dates on them. I do framing so hope to get them done if neck improves and let's me move again, or rather when it improves again!!! Like you I can't bring myself to write anything, love your idea.
Thanks for your good wishes and I hope your chemo is going well.
Love Anne x x
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Sorry haven’t been on for ages but have been thinking of you all. Have been having a crap time recently and haven’t felt like moaning but I’m ready for a moan now so that’s probably a good sign!! After getting over the bloody cough I started getting severe pain again in my neck. It got so bad that they wanted to admit me to the hospice – now way I need to be at home. Anyway I am now on Ketamine to add to my ever increasing list of meds. Evidently the cancer has damaged a bone in my neck and there is a danger of fracture and I am stuck in a bloody collar night and day. Onc has stopped my chemo due to neck although it seemed to be working on skin mets etc so I am disappointed about that and want to get going again as soon as possible. Anyway we now have a plan and I start a week of rads on Monday then I’m going to get some sort of injection in my neck for the pain – sounds too good to be true – evidently it lasts for 2 -3 months, brilliant I do so hope it works as well as it sounds. They are then talking about injecting cement into the damaged bone to strengthen it so that sounds great too. I can’t wait to get out of this collar it is so limiting, hence not being on the forum as difficult to get a comfy position. Great to feel like moaning again though!!!!!!!!!!!! I have been trying to catch up with everything but apologies if I miss anyone out or get mixed up – 'heids a bit mince’ as we say here in Scotland with all the bloody meds – I wouldn’t mind so much but they don’t stop the pain just decrease it. So like Sandra apologies if I get anything wrong.
Dianne glad you enjoyed the pink champagne just the right way to celebrate the brilliant news. Thanks for letting me know it fair cheered me up that night and I joined you in a glass to celebrate – lovely. Hope you are ok someone mentioned a bad back are you ok my friend? Thanks for your kind message on facebook.
Roz so sorry to hear about your toe, makes me cringes just thinking about it you poor thing!! Hope it mends quickly and you are both over your colds. Mine seems to have left me with problems I can’t help thinking that all that coughing did my neck no good. Sorry to hear about your mum – hope some good news there soon.
M1yu rads are all finished yippee but take it easy it does take time to get your energy levels back, don’t overdo it. Just read your post about coming to Scotland, how wonderful. Will definitely have a think about where you should see and would be lovely to meet up!!!!!! I am so glad that you are doing bits of work as well, isn’t the normality of it wonderful. Good grief just read your post about the pharmacist – unbelievable and what a cheek asking about your condition at the reception as well so unprofessional!!!! Pleased it’s sorted out now but what a hastle, glad you are strong enough to cope with it all now.
Good to see you on the thread Belinda.
Sarah hope the knitting is coming on well. You have really put me in the mood for starting something so gonna start looking for patterns. Hope you got a nice gilet and great se’s are so manageable. Love you ground breakingnews and very happy DN. Hope you enjoyed the game and film. Now you half way there with chemo the rest will fly in.
Teresa, hope you feeling better and have started you ad’s. well worth it if they are going to help you, we need all the help we can get in our situation, I do hope they help.
Louise Glad you had a holiday in Edinburgh first, it’s such a beautiful place. Love your ranting idea!!!!! sorry you are having such a bad time, you are bound to feel like this that’s why we are all here. Great that rads are finished but you are quite right rest is what you need now, I too found I tiredness was worst after they finished. Be good to yourself and rest, your body needs time to recover now do what it tells you. I do hope you managed out with your oh last night so important to forget about everything and do normal things for a change.
Belinda good to see you on the threat, hope all well with you.
Wayne it’s a bloody roller coaster isn’t it but things are much better than they were a few weeks ago, walks by the sea and day’s out. Well done with the fund raising – I would loved to have seen you dressed up!! Don’t apologise for the moan – that’s what we are here for. I do hope Maryann’s back has improved and she can get out and about again, if not definitely contact doc on Monday.
Nicola how good to read your good post after your bad one as I catch up. So pleased that the pains have gone, what a worry for you. Great news and your post is inspirational!!!!
Love the ashes story Val.
Oh Sandra, sending you big hugs and glad you shared, that’s why this thread is so wonderful we can have a good moan and we all understand. I so understand what you mean about the frustration of not being able to do anything, with my collar I can do nothing and it is driving me mad. There is light at the end of the tunnel for both of us though although it seems to be taking for ever for them to sort out your chest problems. Sorry you are having such a hard time with se’s. Have you thought about anti depressants or being referred to a counsellor? M1yu seems to have had benefit from her counsellor and some of the women find ad’s have helped, perhaps worth thinking about. Sending big hugs and hope things improve. Like you I am a very active person and I think that makes it worse when you are used to being on the go all the time to be reduced to just doing nothing, the frustration is awful. Good idea about second opinion, I asked for one once and it was the right things to do, hope you get an appointment quickly. Glad you enjoyed your trip to Brighton – love the waves, sounded like good break.
Julie good to hear you on good form and thanks for message on facebook. I was feeling a bit down and it was lovely to be remembered, thank you x
My dear Mary thanks for letting everyone know how I was and that I had not forgotten them all. Your emails have helped me in my darkest moments, can’t thank you enough for that. Hope you have fully recovered from your friends visit. You are so right we pay back afterwards but it is worth it. Hope you taking it easy.
Well having not posted for some time I apologise for the length of this one. I do hope I haven’t missed anyone out or got anyone mixed up – blame the Ketamine (I thought they gave that to horses!!!!!!). I do hope that everyone has a good weekend and to those having a rough time sending lots of love and hugs. I missed you all my dear friends and hope that I can get back to posting regularly again having at last found a position that is manageable. Can’t wait to burn this bloody collar on the fire – hopefully in the near future.
Take care everyone, thanks so much for thinking about me, lots of love and hugs Anne xxxxxxxxxxxxxxx
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I have briefly read this threat that lost it's meaning and support along the way. I don't really want to coment on all the posts but would urge all the women thinking of leaving not too. None of us are perfect and I suppose we all say the wrong thing at the wrong time or get caught up in our own mindset when we are distressed.
This forum has been my sanity since starting this horrible journey and to loose you al with your knowledge, wisdom, wit and compassion would be a great loss to my life. You are all wonderful and I hope you all reconsider.
Lots of love Anne
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Had hectic day but too tired to explain just now – was 6 hours at hospital mainly sitting around. Whole hospital computer system crashed so it was chaos. Just wanted to pop on and wish you good luck in your visa application M1ju - it makes me so angry that you have to deal with this with everything else you are coping with. Half way there now, get plenty rest, drink plenty water and slap on the cream. Thanks for your advice it has been very reassuring and my chemo is going ahead tomorrow thank goodness.
Oh Mary it’s so lovely to say you are feeling ‘normal’ it’s the best place to be – stay there!!!!
Thanks for your kind wishes Sandra. I do hope that you se’s wear off so that you can have a good weekend. Take it easy at the moment and don’t over do it. Hope you find the normality very soon. It is so good to have that feeling and deserve it, I know what you mean about the grind, hope it gets easier soon.
Roz know how you feel you poor thing hope you bit better today.
Hope everyone is having a nice evening and managing to relax. I am going to bed, so tired and more of the same tomorrow. Why does treating us have to be such an exhausting experience.
Sweet dreams my dear friend. Lots of love Anne xxxxxxxxxxxxxxxxxxx
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Sandra I can’t believe what you went through it is just outrageous like something on a TV dispatches case!!!!!! It drives me crazy when a doctor hasn’t even bothered to read my notes before seeing me, I know they are busy but it’s so patronising and bad manners apart from being appalling practice. Oh Sandra I so feel for you but glad you got pampered and loved when you got home to your nice bed. Moan away any time you like -you certainly deserve it and we are always here to listen. Sending lots of hugs and hope things get better for you very soon.
M1yu thanks so much for sharing your experience of weekly taxol. Did you have to go to the hospital twice weekly? For some reason I have to see onc one day and get chemo the next – can’t understand why and when I asked the nurse she said it was standard practice!!! Will be really difficult to manage work wise if this is the case but seeing onc tomorrow, chemo Thursday so will see if this routine can be changed. You said you used the cold cap, I thought weekly there was less chance of loosing my hair – did I get that wrong? Really don’t want to loose my hair again, didn’t mind too much last time as off work but dread it this time if working. Moan over if it works it is worth anything!! Good to know you get a break every 3 weeks that’s something!!
Teresa sorry you are having such a hard time as well. If anti depressants are going to help then I would say go for it girl. No point feeling so bad if they will help and judging by Sarah’s experience they have been a big help. Sending big hugs and hope you get the right support.
Sarah good for you £30 for a beautiful jacket sounds bargain, love the sound of Ruby Red, get those needles clicking. You really have got me thinking got to get something on the pins, such a great way to relax – enjoy. Good luck on the gilet quest will keep my eyes open for you. Really want to get some winter clothes shopping done when I feel up to it. Your kids sound lovely. Good to hear you sounding so upbeat – it rubs off on us all reading it.
Louise hope you are recovering after your op and taking it easy. We live in the sticks and dread the thought of not being able to drive. I was once told not too because of my neck but had selective hearing that day!!! I do hope you get your license back soon and not the two years mentioned.
Mary and you are so right the van is always there as soon as we can we will be hitting that road. Thanks for that thought really cheered me up!!! Will let you know how appointment goes tomorrow when head more together and I ask right questions.
Dianne seems you are getting everyone into Fairyland – sounds like a nice place to be!! It’s nice to have time to yourself sometimes with oh away, I’m sure you won’t be bored with all the garden watering you have to do lol. Have fun as always and thanks for thinking of me x x
Oh Ros so sorry you got this bloody cold, I totally sympathise with you it completely knocked me for 6. Just do nothing, not that you are fit to anyway, you just have to give into it, drink plenty, take paracetamol for temperature and watch loads of crap on tv. You have my sympathy, I’m getting over it slowly but still no energy or strength. Take care and sending lots of hugs.
Well girls, onc tomorrow then into the new unknown with new chemo on Thursday. Let’s hope this one bloody works!!! Youngest off to London for her 21st birthday treat so it was lovely taking her and her boyfriend to the airport today to see them off. She is so excited I haven’t had a chance to get down about latest developments. I think I’m as excited as she is!!!! My eldest lives in London and she is hoping to get them into the BBC audience for Russell Howard tonight, my youngest’s favourite comedian so fingers crossed. They are going to see Les Miserables tomorrow night – I am jealous but just so excited and happy for them, they home on Friday. My other two daughters are coming up for the weekend so full house which will be lovely.
Sorry to anyone I missed out I hope things are not too bad for you all this evening and wherever you are you can snuggle down and relax. Sending lots of love and hugs to you all my dear friends. Anne xx
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Hi all- remember me?
Sorry it’s been so long since I posted I have just been trying to catch up with you all. I was knocked for six by this dreaded cold/cough that was going around, temp up so no chemo boo hoo and I have generally been feeling - well just crap!!! I also have had problems getting onto the bc website which is so frustrating when you have written a speel then can’t get on to post it. Moan moan – I’m afraid that’s what I’ve been doing the last 2 weeks. Am on holiday but didn’t get away in our lovely van. My oh had the lurgy too so between the two of us we didn’t have the energy to pull the wheelie bin down the drive far less the caravan!!! Don’t know it it’s the same one that you had Dianne but boy does it knock you out. I do hope no-one else has got it but I’m on the mend now slowly so want to catch up with you all again now got a bit of energy back. I have been thinking of you all my dear friends, especially Louise, so good to hear that your op went well and you are making a good recovery. Good for you for pushing to get home to your own bed, there’s no place like home for a good sleep!!
Mary I hope you are avoiding that dark tunnel and thank you for keeping in touch and hauling me back from it when I have been feeling low. You are such a dear friend looking out for us all. Hope you not having too bad se’s from Zometa this time around, it’s great that going onto 4 weekly has helped. Freezing up here hope weather better with you and you are getting out for walkies with your new wellies. Good for you buying new pointy toe boots – bet they look fab, Dianne will turn you into a fashion icon yet!!!
Dianne, love long cardi’s and boots, your shopping trip as usually sounded very successful. Thanks for your fb message my dear friend. I saw a long cardi in Next so think I will treat myself when I get out and about again. As soon as I’m fit I think I’ll treat myself to some nice cosy winter clothes. Bet you pleased to have finished your antibiotics - bring on the wine and gin – probably better for you anyway. I have finished my antibiotics but can’t say I feel any better for taking them. Perhaps I should try the wine & gin approach myself!!! My late husband’s sister who I am very close is just like you with her wardrobe and her hubbie ended up making a huge walk in one the length of their attic as she couldn’t throw out anything. It’s an amazing place to visit, like Aladdin’s cave – you would love it. Love the sound of your new boots – really inspired me to get myself out of the house and go shopping!!
Sandra glad that things are looking up for you and hope you got your plural infusion if it was needed. Can’t believe it depended on whether bed available.
M1yu good they have got to the bottom of your PICC line and that it was an allergy, and it clears up quickly. Hope you not to achy after your Zoladex yesterday. Good news that your friend can at least get her treatment at home I so feel for her and do hope that everything goes well for her, lovely that she has such good family support. I know what you mean about the rads taking up so much time, I am so sorry you are having to go through the visa application at the same time it is so unfair as you have enough on your plate. I am pleased you got a referral to the lymphodema clinic, better to keep on top of it and get advice now to stop it getting worse. Sorry you having such a difficult time. Sending big hugs x x
Alison what a wonderful experience and good for you taking part and being an advocate for us all in London. Great to hear that women from all over were making their point I do hope it will make for a better more even service in the future although the cuts they are talking about terrify me for us all and those to come. The Haven sounds lovely and 9 pampering sessions sound amazing. Enjoy!!!!!!
Sandra good news about the lump softening it is such a wonderful feeling when you know that chemo is starting to work, I am so pleased for you, bet you left the hospital with a smile on your face that day. Your Christmas egg cosy covers sound lovely – have you anything planned to make for this year? I am hoping to make my own pressies this year but will need an energy boost if I’m going to get there. Sounds like you had a lovely birthday – belated greeting from me too. I adore olives, pesto etc and love the sound of your new tights!! I know what you mean about being doo lally these days– you and me too lol. My onc department always runs hours late so I always take a book to stick my head in!!
Ros what a lovely evening out and you must be so proud of your granddaughter. I do hope your daughter gets better soon what a painful thing to have and what a pest not being able to drive. Good job she has her mum to help out!! Made me laugh at your mother in law suddenly being able to lift logs when Alan not well!!!! I do hope it’s not the same cold we have had as it is a really b****r!!!! Hope he gets well soon and that you don’t get it.
Nicola I am so proud of you doing the interview and it really sounds as if you have put across exactly the perspective needed to help people understand what secondary cancer feels like. Not much wonder you got emotional, I have a tear in my eye just thinking about it!!! You are some amazing woman and a voice for us all. Well done, I would love to read the article can you point us in the right direction of it or pm here or on fb? Not much wonder you are tired with being back at work and everything else. Don’t overdo it and think of yourself first sometimes and make sure you get plenty rest!!!!!!
Julie sorry to hear the Zometa making you tired, why do all these treatments make us feel so rubbish. Wouldn’t it be great to be told ‘and the side effects of this treatment will make you feel full of energy, your hair will grow long and thick, your skin will be marvellous and you will feel very very happy’. Your wait for CT results sound awful – they just don’t seem to have a clue what we go through waiting for results, it beggars belief the half hearted attitude of onc’s. You deserved that good rant!!
Ros – brought back memories for me, I must admit that we always enjoyed a power cut when the kids were small, particularly on a snowy winter evenings. Luckily enough we have always had a real fire so all used to camp out in the living room with candles, fire and made toast, toasted marshmallows and popcorn in pan on fire. Great adventures at the time, the kids loved it. Glad you weren’t cut off for too long, not such an adventure when you not feeling like it.
Well my chemo has been changed again and I will now be on weekly Paclitaxel (Taxol). Onc felt Vinobermine not doing job quickly enough and wants to hit me with something harder – oh joy. I also have to go to the hospital twice a week once to see onc and second day for chemo - haven’t got my head round that as brain pretty mush at the present time. Am seeing onc again next week so will write down questions for that appointment to try and get my head round it all. I’m sure I read one of you had had this chemo before so any advice would be appreciated. Se’s of this one are meant to be worse so I’m concerned about how I will manage with work but will have to take that one step at time. All in all pretty pissed off that couldn’t manage our holiday but at least I’m not back to work until a week Saturday so plenty time to recover and get my strength back. This bloody cold/flu!!!
Sorry this post has turned into a novel but so much to catch up on. Good to feel up to posting again but I have been thinking about you and missing you my wonderful friends and will keep up to date again now. Sorry if I have missed anyone, welcome to the thread Zelah totally agree with pain playing with your head. All this coughing has made my neck pain much worse and the old mind games!! Wayne & Marianne, Teresa anyone else I have missed hope things still going better for you.
Lots of love and hugs to all you wonderful women. Anne x x
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I'm sorry I hve no experience of brain mets but know that waiting for any treatment to start is the hardest time. I was on a chemo break during the summer and whilst it as lovely to be off all tablets for a while you do naturally worry that tumour is growing. It's getting the right balance so that your sister in law is fit for treatment yet not deteriorating, I hope she has a good onc supporting her. I'm sure someone will come alone soon with advice as you say the ladies on this site are so knowledgable and wonderful.
I wish your sister in law all the best and she is lucky to have family like you supporting her.
Love Anne x x
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Sorry haven’t posted for a few days got the dreaded cold which went to my chest so on antibiotics and waiting for them to kick in.
Dianne your party sounds wonderful well worth feeling a bit jaded for. What a star your daughter is and the cake sounds lovely I am so pleased you had such a great time. Party sounds a bit like our mad house when we let our hair down – haven’t done that for a while but think we will have to find an excuse soon!!! Have a good rest now to recover.
Thinking of you today Louise I do hope it goes well for you. Julie you sound shattered take it easy. M1yu glad arm is feeling better and hope they have everything sorted for you now. Wayne – keep smiling – Yoda I love it!! Mary thinking of you as always. Ros, Alison, Sandra, Sarah, Teresa et all catch up later.
In bed and must get some sleep as working tonight so hope to get a chance to do a proper post later and catch up with you all properly. Take care of yourselves my dear friends and speak later.
Lots of love and hugs Anne xxxxxxxxxxxxxxx
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Good grief Nicola that was a bit drastic – just goes to show the medics were wrong, your hip must be getting stronger!!!!! Take care of that arm maybe you should get it x-rayed and your head just in case - handy having the pain killers though. Hope you ok, think you should be spoilt for the evening can imagine you lying groaning and them sleeping!! Love the idea of a pilgrimage round the country to meet you all – think I’ll wait till next year so I can share all your sunshine.
Dianne how sweet of your oh with a tear and a card and a dozen red roses what more could you ask for as proof of love after 25 years, how lovely. I would love to visit you - you would definitely have to be off painkillers for that visit!!!!!! Pleased to hear you are getting tooth sorted out and good idea to wait till Sunday so you can enjoy weekend. Alcohol probably better than pain killers and antibiotics anyway. We love you, you nutter x x My daughter’s fiancé calls me a nutter and I take it as a compliment!!
It’s lovely to hear you sound so much more upbeat Sarah and planning nice things. I haven’t had FEC so can’t advise but these things do take time. M1yu the expert on FEC and look at the amazing results she had from it. By the way where did you get your hats patterns would like to make some for Chrissie pressies. The look good feel good thingie is excellent with lots of lovely goodies. Good for you spoiling yourself. I got my hair done at last on Friday and feel so much better for it. Love the idea of facial and nails done – go for it girl!!!!
Wayne how lovely if you managed to get a holiday abroad. I’m with Dianne here about insurance but I’m a bit of a risk taker. Whatever you decide I do hope you get away, will do you and Maryann the world of good.
Sandra just finished the second book when having chemo yesterday – it is brill would definitely invest in it. Sorry you have not been feeling so good oh the joys of chemo. I just find I have to do what my body tells me but a potter in the garden always helps, hope you managed it and still feeling better.
Glad sun is shining for you Teresa you are so right what a difference it makes. Hope your counselling helps boost your confidence - it does so help if you can get out a bit. I don’t like going for chemo but find sticking my head in a book does help pass the time. I agree that writing days off when you are tired is good idea as I find I get down if I mull over all the things I want to do. Now I just give in and do nothing on these days and don’t feel guilty.
Ros you & Dianne meeting up sounds lovely you never know one day I might be sharing a bottle of wine or two with you both. Haven’t planned exactly where we going yet but a week Thursday I am off work so watch out world here we come!!!!! Will keep you posted but will probably go to the West Coast now midgie season over.
Good grief M1yu another mix up – good job you are on the ball but shame you have to go back on Friday. Sorry to hear about your arm have you been referred to the lymphodema clinic – perhaps you should be getting a sleeve or advice about massage? Hope its better soon xx
Hope you are feeling well Mary and managed to get down to the studio today. Thinking of you.
Lots of love to everyone else, going to make tea then early night as busy shifts before we go away and needing to rest.
Have lovely evening my dear friends. Love and hugs to you all Anne xxxxxxxxxxxx
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Great you got your scan over with Julie and not as traumatic as last time. I totally know what you mean about the support being with you, when I have a difficult appointment I imagine you all there and it helps so much, so glad it helped get you through and all done and dusted now. Hope the results are good news and not too long to wait for them.
Wayne such good news about new sickness drug and I agree – why the wait – ridiculous. Must have been great for you and Maryann to get out and about I am so pleased, coffee & cake at garden centre how wonderful to feel ‘normal’ again and do ordinary things. Please tell Maryann delighted that things improving and getting under control. You really made me giggle with your description of your dad, he sounds a right character. You may not have any hair Wayne but you have a heart of gold – and bald men are sexy just look at Bruce Willis or Yul Brenner – phew having a hot flush here!!
M1yu sorry you having horrid period – I had the marina coil put in years ago as mine were so bad so I totally sympathise, hope they stop soon. Had to laugh at your mum saying to change your team allegiance lol, very sweet. Hope you feeling better today.
Dianne happy wedding anniversary - hope you have a lovely day, despite dentist. Give roz a hug from us all and have a good chin wag. Are you doing anything nice with oh later? A week Wednesday I am off for 2 ½ weeks so planning going away in our lovely van, can’t wait Dianne as you say life’s too short!!!
Mary I don’t know when you get your results but you are constantly in my thoughts I do hope good. Sending love and hugs. Hope you pleased with new wellies.
Well sun’s shining here so I have a couple of hours before due at hospital, just finger prick today then chemo an hour later so think I’ll go and pull up a few weeds.
Lots of love to everyone else and I do hope you have a nice as day as possible and sun shining for you.
Hugs & kisses my dear friends Anne x x x x
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Sorry haven’t posted for few days been sooo busy with youngest’s 21st and working last two nights. Trying to catch up now – goodness me the thread’s busy which is lovely to see, all supporting each other with love and understanding so good to read, although takes ages lol.
Dianne – as you know I’m now a religious person but what a lovely thought to light a candle for our Mary and writing a prayer for us all – brings a tear to this old atheist’s eye!! Fingers crossed for dentist tomorrow you have all my love and support I am not good at dentists, really hope it goes well. Hope you have nice refreshment afterwards to celebrate your 25th wedding anniversary tomorrow - 25 years how lovely. Hope you had an absolutely fantastic weekend and I agree with your sentiments wholeheartedly.
Mary my thoughts are with you today whilst you get your bloods. I have everything crossed that last time was a blip and better results today. Sending lots of love and hugs. Love hearing about your shopping trip – wellies!!! That’s our girl x x
M1yu love the idea of you giggling on the planning table!! I am so sorry to hear about your workmate – I can’t believe that 5 years thing – if you are suffering and it needs investigated why don’t they just do it not get the stats out!! Oh M1yu I so feel for her please send her my best wishes and encourage her to join the site. If I were here I would be forever thinking ‘what if’ they investigated sooner. My heart goes out to her, really good she still has fighting spirit and a wonderful friend like you.
Sarah, good to hear you sound much more upbeat. Thanks for best wishes for my youngest – I know what you mean seems like yesterday she was just a baby – mind you she always will be. Sampler all finished at last. I did ones for my other two daughters years ago so they are all in the workshops waiting to be framed – next job. Glad you like your wig and it sounds like it has really cheered you up, great news. Good no further spread and early days for FEC. Hope you enjoyed your posh nosh and retail therapy, sometimes window shopping is best.
Sandra sorry in last post I spoke about you knitting hats and of course that’s Sarah – chemo brain!!!! Great news about boiler – sorry about clearing up!! Loved your wigs analysis – I had the same relationship with my wig without seeing the old dears in the pub lol. I’m on the second book of the trilogy ‘The Girl with the Dragon Tattoo’ can highly recommend can’t put it down, totally addictive end of seat stuff. Got the trilogy off amazon for £11.30 including p&p.
Wayne you too sound a bit more upbeat. I know things are so hard for you and Maryann but you both seem to be keeping your sense of humour, so important where would we be without it. I do hope Maryann’s sickness gets better and docs give proper advice next time – honestly don’t get me started!!!!!
Louise know the duvet feeling well, sometimes it does you good if you need rest but sometimes just pushing to get out makes you feel so much better although so hard to do. I’m sure you will feel so much better when you get treatments started waiting is the pits.
Nicola you sound fantastic so pleased you had a great weekend and enjoying all the beauty of autumn. Having hol in caravan soon so can’t wait to get out and walk on secluded beaches – will keep you posts of plans. Don’t have a clue how to advise about your article – it would be nice for people to know the truth about bc and that it is not the ‘curable’ disease often portrayed in the media and how it really feels to live with secondary’s but how to do it – I really don’t know. I wish you luck with your decision and know you will make the right one. I get so bloody sick of the press portraying it as ‘treatment – cured – back to normal’ And even worse when they portray as it as our own faults we got it in the first place ggggggggggrrrrrrrrrrrrr. Go get em Nicola.
Oh Julie what a horrible time you have had so wish one of us could be with you to hold your hand and tell them – if you can’t bloody do it get someone who can before they reduced you to great pain and tears, honestly they make me mad, the chemo nurses are sooo good why not go for one in the first place. Oh you poor thing, I am so lucky with my veins I do wish I could lend them to all of you when you need them. At least they have it right way round next time and hopefully chemo nurses will sort you out. Will be thinking of you and holding your hand today – ready to punch anyone who hurts you!!!!
Roz trying to picture your onc doing his examination with eyes shut – very strange, sorry making me giggle!!! Hope he opens them when talking to you. Pain in the neck about not doing bloods – sorry of our lives thing being forgotten. Thanks for you b day wishes for my girl, have a great time with our Dianne when you meet up wish we could all be there – maybe one day.
Alison great news about your cards – there are lots of good folk out there – the press only reports the baddies!! When are you coming up to Glasgow don’t know if I will be free with work, chemo etc but will be going down to visit friend sometime that month so you never know perhaps we could meet for coffee? Hope your cold better. is a miserable one. My oh had it for about 2 weeks, thankfully I didn’t get it despite being on chemo!!
Teresa so glad you got your lung drained at last and that it was not too painful. Great you got the head guy supervising, I have read a lot of scary stories about how painful it can be so pleased it was not too bad 1 ½ litres sounds like loads. Sorry you feeling a bit low again, I’m sure the family leaving is really affecting you, I cried for weeks each time one of mine left – still do when I go and sit on their beds! Sending big hugs and hope you feeling better soon. I agree with Mary when we are physically down it makes us mentally lower. Don’t know about tamoxifen but sounds like good advice to change times of taking it. Hope counselling helps - 6 weeks to wait but worth it.
Goodness me hope I have caught up at last they might ban this post for being too long or might post it on the ‘for insomniacs’ thread lol For anyone that is awake we had an absolutely fantastic birthday party for my wee girl’s 21st. She burst into tears when opened our pressie of a trip to London and tickets to see her favourite musical Les Miserables and couldn’t stop crying – of course that started everyone else off, especially me – what a sight we were, make up all down our faces!!!!!!! It was such a lovely evening with her surrounded by the people she loves, great meal and a beautiful birthday cake made at local bakers. So relieved it all went according to plan and worked our perfectly. Have busy shifts, chemo etc for next week but a week Wednesday I finish for 3 glorious weeks so plan to get away to the West Coast in our lovely van and totally get off the planet for a while. Well I do hope I haven’t missed everyone but sending lots of love and hugs to everyone. Sun shining her but I am relaxing today and reading my really good book.
Thinking of those having treatment and hope everyone has a good day. Lots of love and hugs as always my dear friends Anne xxxxxx
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My children lost their dad to cancer when they were 6, 12 and 14 and their gran after that. Although they all reacted differently it was only when my youngest was 17 that I actively sought out support for her and ended up paying for her to see a private psychologist who was excellent and helped her work through her grief and the bullying she experience at school after his death. You have already had excellent advise from the other women - your GP might also be a source of knowledge about what supports are available in your area. I do think that support when the children are younger is so important and we often do not acknowledge the effect a parents death has on them and blame the child if they are acting differently. Your grandchildren are lucky they have an excellent gran who loves them and is looking out for them. Good luck, let us know how you get on.
Love Anne x x
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Hi girls and boy
Just a quick as loads to do before my big girls comes up – pressies to wrap etc. We are having a nice evening in with her favourite meal and watch a musical in front of the fire. Big day on Friday with a birthday meal out with her friends and family.
No time to reply to all the posts but sending love and wish you all well. M1yu blood markers fantastic!!!! Lots of love to everyone else, had long lie to recover, busy week.
Bye just now my dear friends will post properly when I get a chance, thanks for all your birthday greetings for my girl – can’t believe she 21!!!
So sorry about your cousin Mary and everyone else who is having a hard time just now - sending hugs x x.
Lots of love and hugs and best wishes to you all Anne xxxxx
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Goodness me what a lot of posts can’t keep up!! It’s lovely to see so many people posting and shows how lovely and supportive this threat is.
M1yu – hope se’s are still minimal and things going well for you. Thankfully I have managed not to catch oh’s cold so delighted about that as chemo tomorrow. Day in Bath sounds lovely I have always wanted to go there. Hope all goes well with your rads tomorrow are you getting set up and tattoes?
Sandra I do hope you managed to relax and switch off a bit, so hard to do but lovely it you can forget about bc for a wee while. How’s the hats going? Thought I might do some myself for Christmas pressies. Great news that your chemo is starting sooner there is nothing worse than the waiting and that vulnerable feeling. 4 week old granddaughter you lucky thing and I love her name - nothing better to take your mind off everything. Will be thinking of you on Friday.
Teresa sorry to hear you are having to have your lung drained but hopefully it will get rid of that nasty cough and breathlesness for you. Good luck tomorrow will be thinking of you.
Louise, Julies right perhaps you should go somewhere and have that good scream and get it all out. You do seem to have faith in your onc thought and say he is straight and honest with you. I do hope you get your date soon, sending big hugs and hope things get easier for you.
Wayne hope things get easier for you both and you managed to get some much needed rest.
Alison hope you got your card sorted out what a pain in the neck!!
Dianne please to hear your cough is going and you are on the mend. I do hope that bloody tooth of yours sort itself out – are you going to dentist or seeing what happens. Hope nose bleed was a one off if not – go to doc!!!
Good to know that all well with you Nicola. Hope you enjoying being back at work part time – I must admit it sounds appealing at times!!
Glad you are feeling better than you were yesterday Mary. The weather here has been awful it seems to have turned into winter overnight, heating on, warm clothes and all the perennials are dying off!!!!! Where did the summer go?
Julie glad you enjoyed your wine at the wedding. It’s lovely for a treat sometimes. Shame about the funerals – I just hate going to them always have. I know what you mean about scans I’m still waiting for a date for my next one just don’t want to do it – or rather wait for the results!!
Roz, cold wet and miserable up her in the North too – at least we are not the only ones getting it at the moment lol.
Well I have been pretty knackered all weekend. Guests left on Friday and it was lovely having them but it’s catch up time now. Busy week with chemo tomorrow and then youngest’s 21st Wed. Party on Friday so busy busy – will definitely need a break in the caravan to recover.
Sending lots of love and hugs to you all, sorry if I have missed anyone out.
Lots and lots of love Anne xxxxxxxxxxxxxxxxxx
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I am so pleased to hear your wonderful news and thank your for sharing it with us. You must be so proud of your talented wife, I hope she plays the solo. Inspiring news and I am so happy for you both.
I also agree with your sentiments about the constellation.
Love Anne x
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I think Sarah says it all and it is about being given choice as to what we feel most comfortable with. Me, like Sarah am quite happy to strip off and jump on the table. For women who don't feel comfortable with that there should be other options, but certainly not ones that make them feel more uncomfortable. Of course some women won't feel up to complaining to the staff so perhaps we should challenge the practice in our hospital to improve proceedures if we feel they could be improved.
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