Breast Cancer Now Forum

Hi All I posted on this site quite a while ago and have just re-visited. I take glucosamine, have started to walk a lot more and also do tai chi. Although I still have aches and pains (some days much worse than others).i have found an improvement. Id I sit for too long I am worse. Still cant do a full days housework though. Haven't had a good nights sleep in ages either due to flushes, back and feet pain. Went for bone density scan last Thursday so wait and see what results are. It is miserable I know, but I haven't got the guts to stop taking them!!!!! Hope you all have a good Christmas and great New Year Love Elaine ... View more

Hi Ladies Thanx for all your feedback. Lyndu that was interesting, I dont know what E-cadherin positive is either!!! I must say I was told that if you were going to get BC it was 'one of the best to have'. Obviously I would have preferred none, but there you go. When I was first dx I never realised how many types there are and when you think about it, it is a huge learning curve for us all. Reading a lot of these threads on different pages makes you realise just how many types there are and all the different treatment regimes. Thanks to you all once again. Hope you are all keeping relatively well. Take Care Elaine xxx ... View more

Hi Lynne Apparently it is similar to lubular bc, but the tumour resembles a tube like mass. I assume where you would normally feel a round lump this is more long and thin,but cant seem to find that much about it. Thanks for your response. Love Elaine xx ... View more

Hi snottraggs I also found the chemo worse than the radio like sheana. It can be a long day so if you can take someone with you that would help. Radio is over in minutes and I found much easier to cope with. I was running a pub during both and a couple of days whilst on chemo I was out of it, but on the whole not too bad. If you have a good employer they should understand and if there are days you dont feel up to it you just dont go. I was lucky with rads, had them at the QE Birmingham and they have a unit you are allowed to stay on, like a little hotel, to save you having to commute every day. It was the best decision I ever made. Obviously each individual is different during treatment and its not a rule of thumb as regards side effects. Each day will be different and you just need to go with the flow. Hope this helps a bit, all the best and keep us posted. Love Elaine xx ... View more

Hi kristalou It is tough at the begining. I was dx last October and finished everything by July this year. It is a journey you are about to embark on and each step through is a milestone. I hope you have support of friends and family as this is worth its weight in gold. Just remember with sites like this you need never be alone and everyone is rooting for you and wishing you well. Stay strong and focussed this is about you. Sorry your relationship is breaking down as well, you must feel like you have a mountain to climb. But climb it you will, us women are made of strong stuff!!!! I also still smoke, but feel as if it is after the horse has bolted and all that. I know numerous peopl who have had BC and never smoked in their lives, its down to personal choice. Dont let people give you a hard time if you carry on, they are not the ones going through it!!! Hope things go well Love Elainexx ... View more

Hi everyone Great thread! I am also overwieght since treatment, gained another stone! Was overweight before and am interested in observations that this can cause recurrence. I have a theory about my BC. Could be away with the fairies, but will run it past you anyway. I was given the Mirena coil 8 years ago because I couldn't have hysterectomy due to PE and DVT. Within a very short time started getting cysts on a regular basis. Didn't have periods from begining of coil being fitted, they also produce hormones? I asked if there was a link between the cysts and the coil but it was brushed away!! If anyone has any information would love to here from you. Meanwhile, I think it takes a really strong person to be able to change their lifestyle/diet as well as coping with everything else. I finished treatments/hysterectomy in July this year and started Arimidex side effects are so awful I am rarely going out ,as for exercise, walking is a problem, ther is'nt much of me that doesn't hurt. I hope this will improve but to be fair it has got worse each day. I have ordered a swimming costume to start getting myself motivated ans someone suggested yoga on one of the forums but I feel like my bones will break if I try and get in the LOTUS POSITION!!!!! Sorry for going on Laffeyj2008 Have you got a BC group near you that you could join. I have been to our local one quite recently and believe me the support is excellent, because everyone is in the same boat I feel it will boost your self esteem just feeling like you are part of a 'family'. Love to all Elaine I ... View more

Hi Fuzzyface I'm with S on this. Give it a wide berth. I get really freaked when they try to take blood/blood pressure from 'that arm'. I know the numbness cant be great but maybe it will come back in time with normal physio. Let us know how you get on. Regards Elaine xx ... View more

Hi Jennifer When I told my daughter(24) and son (14) they both reacted differently. My son was angry and punched the tv!!! After the initial shock, I answered any questions he had as truthfully as I could but told him I wanted him to carry on his life as normal, which he has, although he is still angry. My daughter felt that she couldn't break down because I didn't. This led to problems later on for her. She also works at the hospital where I was diagnosed in the histology dept. which made it worse. No one knows how they will react to news like this and I dont believe there is a 'normal'. Try to cope one day at a time and if you need to talk to someone you could always try your moms Breast Cancer Nurse, they will know all about your mom, websites are great but can be misleading. Love Elaine xxx ... View more

Hi Lisa I had hysterectomy with keyhole surgery in July this year. I went in at 7.00am and was home by 10.30pm. I have a small scar in my belly button and two smaller scars below left and right side. I can honestly say it was fine. As for your veins I understand completely as mine have all collapsed from chemo. That bothered me more than the op, they eventually sited the cannula on the inside of my good arm. Started taking Arimidex day after, not keen on side effects from that but hey its supposed to be the best so thats good enough for me. Hope all goes well for you, will be thinking about you. Love Elaine xxx ... View more

Hi Everyone New to this so bear with me. Diagnosed Oct 07. Mastectomy etc. I also am size 18 and 40E boobs my prosthesis weighs a ton, bra straps dig in to my shoulders and have seriously considered having other one off to balance myself out. I really think the bigger you are the more obvious. Should have gone to a party Sat night but just had dog ear removed so could not wear a bra. Nothing i tried on disguised the fact that i had no boob. Didn't go in the end. Regards Elaine ... View more