I am 38 with a 6 and 1yr old and was DG 31st Oct2008. Had WLE for 3.1cm lump with thankfully no lymph involvement. I have to have E-CMF for 8 cycles, 5 wks radio then 1 year Herceptin. Had 1st Epi on New years Eve and my 2nd yesturday. I too was horrified at all the side effects to expect and just didn't know how i would cope wth a family and gonig to work! Thankfully and wth the help of 3 different anti-sickness meds i have suffered minimal of the side effects and have been able to continue wth day to day school/nursery runs and part time work. I had my wig sorted out and cut the same as my hairstyle as i personally did not want people to know what i was going through (eg. the playground mums!) not that i am ashamed just didn't want to discuss wth people who i don't really know. I have choose not to tell my 6yr son as i feel that he would only worry, we never talk about the 'C' word in front of him and all our family and friends no not to call untill after 7pm when he is in bedif they want to see how im doing. So far i've been lucky enough for this awfull disease not to have too much impact on our lives and just hope and pray that this will continue
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Just thought id share my experiences with you (esp Bev). I DG on Ot 31st 08 with 3.1cm lump, Had WLE on 13 Nov and was lucky enough not to have any lymph node involvement. Lump was HER+ so under NICE guidelines for me to be accepted for the wonder drug Herceptin i had to have Chemo and Radio 1st. Im on the E-CMF regime. I was absolutly full of fear as it was a step into an unknown world. Had 1st Epi on new years eve! Got home around 7pm and was just waiting for that sicky/ill feeling to arrive. I was extremely lucky (and with the help of the 3 different anti-sickness tablets given) that i have not experienced any of the awfull side-effects mentioned. I have a 6 and a 1 yr old so to me this was a godsend. As i felt ok i returned back to work after the weekend of 1st chemo and have worked since (through my choice- understanding boss). I know that i am very fortunate to be in this situation and no i am not wonder woman. This is the way that i have choose to face this awful disease, i am not going to let it rule my life where possible. Had my 2nd Epi yesturday and did feel very sicky last night so went off to bed at 7pm. Feel ok again today and hope to go back into work tomorrow. Im just taking 1 day at a time but for me i just want as much "normality' as possible. I decided not to use the cold cap as i didnt want to be in Clatterbridge for any longer than i needed to be (fantastic hospital) and i went to hairdresser on sat and had my hair cut to a bob and my wig styled to my shoulder length hair (before being cut). I went into work on Monday with my wig on and all the girls thought i had just had my hair coloured (slighter darker shade). Must admit after 8 hours started to itch a bit so once home took it off. My little boy hasn't noticed and my partner thinks it amazing. On day 22 now and my hair is alot thiner and my parting is getting wider!. Carn't run my hands through my hair as im left with handfulls of hair everywhere. Havn't decided yet whether i will shave it off suppose it depends if i or everyone else in the house gets sick of picking up/eating my hair!
Please don't think that i am disrespecting all you ladies who have not been as lucky to get away with less side effect but i just wanted people to know that there is a remote possiblity that they too might be as fortunate as myself.
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Hope you don't mind me joining but found you comments encouraging. I had my 1st cycle of Epi yesturday and so far so good. I know i won't always be feeling this well but i'll take each day as it comes. I have a 1 & 6 yr old so im hoping things will not be too bad as i have the usual school & nursery runs to deal with.
Carmel your experience has inspired me, i was lucky enough too in having excellent treatment - 19 days from GP to operation which was a god send as it was a grade 3 aggressive. Im being treated at Clatterbidge and u can honestly say they have been wonderful, anwsering my many many questions. At the moment i am living in fear of what to expect and when during the rest of my treatment (x 4 EPI & x4 CMF) so i would appreciate if you could give me some 'inside knowlegde' . Already woke this morning expecting to find my hair on the pillow!
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Im new to the site but just thought id share my experience with everyone with the hope it might help someone. I was DX 31st Oct, WLE 13th Nov. Had 3cm tumor which was Eos+ HER+ but thankfully node negative. Im to have x4 Epirubicin and x4 CMF. I had my 1st cycle of Epi yesturday and have been absolutly dreading it. Think it was the fear of entering the unknown. Should have been there approx 2 hours, however due to Dr not signing conscent for ended up being there for 4 hours which was hell! Anyway enough moaning had the treatment and walked out feeling ok. At home went the loo and had loveley red wee, other than that so far i am very fortunate not to have suffered any other side effects YET!!! Have taken my anti-emetics religiously and drank lots of water. Keep checking my shoulders for hair loss and now becoming paronaid about it and its only the next day. Im sure that my next post may not be as positive but fingers crossed. This makes my life a little easier as i have a 1 & 5 yr old and also hope to carry on working through treatment. I know that there will be many days when i don't have the energy to get out of bed but thankfully my boss is aware of this. I have ordered my wig which was yet another experience i never thought id ever end up doing in my lifetime. I took a very good friend with me for her honest opinion and i was surprised at how real some of them looked. I didn't go through the hospital as they couldn't colour match my hair so i went to a shop. Im not brave enough to go for a complete change i just want the closest match possible as i don't want people to notice where possible, not that im ashamed at having cancer just that i don't want to be discussing it with people who i don't feel comfortable with ie: the playground mums. I just hope that can gain the strength that most of you ladies seem to have and fight this horrible disease. Please if anybody is further on with the same treatment i would appreciate there advice and insight as what to expect and where about during the cycles.
Lots Of Love
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Im recently dx with grade 3 ER,PR,HER2 +, had WLE on 13th November and just had treatment results. Got to have 6 months chemo ( 3x epirubicin 3 x CMF) then 5 weeks radio then a year Herceptin! I'm absolutly terrified. I have a 1 year old baby and 5 year old so thankfully the dr said it wld be ok to put the treatment off till new years eve so i cld at least make the most of xmas and son's bday. Im 38 and feel like ive been given a death sentence. Havn't managed to get through a day yet without crying and when i look through the comments from the ladies on this sight i long to found the strength and courage to fight this horrible disease. I know this might sound trivial to some people but i am terrified at the thought of loosing my hair. Please if anyone has or is going through the same treatment plan as myself, could you advice me on how it went. Will i wake up one morning in 2 wks time and find my whole head of hair on the pillow? Going to the hospital on Tue to see the "wig woman", on my goodness never did i dream that i wld have to attend such an appointment. Would be gratefull if anyone cld advice me on what to expect after my 1st chemo as i have 2 little ones to look after and i also need to work - will this be possible? Carn't believe how scared i feel at the thought of not seeing my babies grow up. Sorry to sound so negative to you all but im tired of putting on a happy face all the time to the close people around me.
Love Helen x
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Hi All, im new to the site and just needed to talk to somebody who understands what im going through. Im 38 and dx on 31st oct with BC. Had WLE to remove 2in lump left breast. Results where node negative - brilliant, however the tumor was 3in and multifocal (sorry terminology new to me), ER, PR, HER2 all positive and a grade 3. At clinic on Friday was recommened that i have 6 months chemo, 5 weeks radio then 12 months Herceptin. Im absolutly terrified at the thought of having 18months of treatment ahead of me. I have a 1yr old baby and 5yr and im worried about how chemo is going to affect my day to day life (eg. work - fiancially i have to, being a mum). Another thing which i know sounds really trivial is i don't know how to cope with the hair loss? is it better to wait and see if it all falls out or should i start looking at wigs. I managed to persuade my dr to put off starting chemo till after christmas, which gratefully he agreed so my date now is 31st dec (new years eve). I just hope that one day soon i might manage to get through the day without getting upset. I admire the ladies who have found the ability to be strong and fight this awfull disease, so please if anyone has any words of advice please reply
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