Hi Jackie. I am not very good with computers or finding my way around sites but will have a look for bcpals. Is it on this site? I have never spoken to anyone else that has had IBC and it would be great to swap stories. Will let you know how I get on
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Hi My name is lorraine and I am please to meet other people that have had to deal with IBC breast cancer. There are not many of us out there I will post my biography.
I was shocked when I was told I had inflammatory breast cancer Sep 06. December 05 I went to a private hospital to have biopsy,scan and mammogram. I was given the all clear and was told it was mastitis. August 06 my breast had grown and was inflamed. I went to the NHS hospital (beatson also there)l to be told a few weeks later it was a rare cancer and difficult to detect. By this time it was 19cm by 20cm. Never heard of anyone having such a large tumour. 6 treatments of chemo reduced the tumour to 9cm by 7cm. Had mastecomy and reconstruction in March 07 then radiotherapy. Finished treatment early June. Apart from waiting on results I got through the treatment without any problems. Only now sometimes I think the worst. Not all the time but every day it does come to my mind. Because this is such a rare cancer there's not many people I can talk to about this. Everyone else's story seems to be a lot better an outcome. Not sure if I can say its treated and gone. There was cancer in my lymph glands so had to have them removed. Waiting to see what the future holds. Trying to be optimistic for the sake of my family.
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