I have had various compression sleeves both from the NHS and my local Hospice Lymph Clinic. Sigvaris is by far the best sleeve you can get and maybe if you 'google' you can find a supplier. I believe they cost around Â£27.
I use a sleeve with a half hand type and stretches upto my armpit with a non-slip top to stop it rolling down my arm. But.....I don't pay for mine as they are supplied by the wonderfully charity funded hospice, and I am forever grateful. I found I could get treatment at a nearby hospice after doing a lot of searching on the internet, as I couldnt get MLD when I went to the NHS clinic (cost cutters!), and everyone is absolutely brilliant! They offer bandaging therapy along with MLD and are now using the kinesio taping method....so they are quite up-to-date. AND of course....I am a fundraser to quantify my top class treatment.
May I suggest, searching the internet and you will be surprised what turns up in your area. But be careful you choose a lymphoedema nurse that is recognised by the UK Lymphoedema Network.
Best of luck in whatever you do!
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I am new to forums, particularly on this subject. I assume when you say mets you mean secondary cancer? If that's the case then I feel for you, as at least my cancer has been & gone and besides my lymphoedema, I am fit & healthy. I now feel my complaints are trivial and really do hope things work well for you.
Best of luck and many thanks.
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In Feb 1995 a 1cm tumour was removed from my right breast, followed by axilliary clearance where 9 lymph nodes where removed. Fortunately the cancer had not spread and only slight swelling to my arm & hand that didn't cause any concern.
10 years later returning from a trip to Prague, I awoke to find my arm swollen to twice its size and the hand looking like an inflated marigold glove! I believe that carrying hand luggage over my inner elbow joint had caused this, and not the flight as was thought.
My GP referred me to the nearest NHS Lymphoedema Clinic where I was measured and issued with pretty useless compression sleeves & instructions on SLD & skincare. But the clinic operated only one day a week and appointments were hard to get if problems arose.
As I got to be knowledgable about the condition I decided to search the internet for better treatment, found that my nearby local Hospice had a Lymphoedema Outpatients Clinic. Once again.....I was referred but this time I got far better treatment, where I had MLD followed with bandaging therapy. The treatment & the nurse are fantastic but she also serves the ward in the Hospice so her time is limited.
I have been getting repeated cellulitis infections. I had 7 infections in 2008 and 6 in 2007. I was prescribed penicillin as a preventative measure, yet still got infections. At one time just one week after completing a 2-week course of 500mg Flucoxacillin I developed the infection again. I am really fed-up & depressed as it is affecting my everyday life considerably in many ways.
Once again, back to the internet! Upon reading lymphoedema forums my next objective is referral to Prof Mortimer at the Royal Marsden as I understand he uses computer imaging followed by MLD and bandaging therapy. I would desperately like to know has any other patients had treatment from Prof Mortimer & his team? Please let me know, if you can, it would be greatly appreciated.
We all know the danger & shock in discovering you have cancer, but this lymphoedema is worse as it is so dibilitating and distressing. Most GP's would say we are lucky to be alive after cancer, but having lymphoedema and cellulitis is so life draining & depressive. But we all have to carry on, and carry on I will......seeking better treatment all the way.
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