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muddy2
Member
since
01-01-2010
56
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2
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05-11-2010
05:17
I'm not sure about this. i have travelled to Spain several times on Xeloda with no problem. I did have some difficulty getting insurance to go on a Med cruise as they said the risk of infection on a boat was higher. I did get in the end though,
Ask your oncology team. I think a holiday is a great mood lifter so good luck.
MuddyXX
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09-10-2010
01:44
Thank you all for taking the time and trouble of posting.
I feel a bit better and am looking forward to a wee break to Spain next weekend.
I think my nephew turning 21 brought it into focus for me. I am quite close to him and I suppose the thought that I wont be here for my own boys made me think a bit deeper than I normally allow myself.
Thanks again ladies you are a great bunch.
MuddyXX
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07-10-2010
02:33
Hi
Bit of background - secondary diagnosis Jan 09 and on Xeloda and Herceptin. Age 40 with boys aged 14 and 11.
Normally I'm upbeat but the last few weeks I feel as though I'm living under a big black clud. Keep crying and feel really low.
Know if I didnt have my boys I would not see a future for myself.
Just cant seem to shake off this feeling. Know I wont see my boys become men and feel I lie to them to protect them and their innocence.
Just thought I'd share my post.
MuddyXX
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20-09-2010
09:27
I can only give you experience of Xeloda having been on it for 1year and 8 months continually.
It sometimes makes me feel a bit ill when I take it. I take Metroclopromide (Sp?) along with it for sickness.
I have never actually been sick with it but some days feel really rough like a bad flu.
I had to have my dosage reduced to 2000mg twice per day from 2250mg and also from 14 days to 12 days as my bowels were shocking (enough said).
My hands and feet are red and I've put on 3 stone. My Oncologist did not suggest a diet as it's a side effect of drug. I actually eat much less than I did before diagnosis but that's life . I.m just happy to be fat and living!
Good luck
MuddyXX
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06-09-2010
04:59
Hi
I've been having my Herceptin over 30mins for quite a few now. No porblems at all with it. Also I used to get Paracetamol and Anti Histimine with it but not now. Again no problems with it. Means I'm not sleepy with it. I'm on Herceptin number 42 and find that the shorter time means I'm out and home before kids are out of school which works well for me.
MuddyXX
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28-08-2010
05:40
Not sure why CT - perhaps its to check if its gone into organs such as lungs or liver. Have never asked!
Thanks
MuddyXX
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27-08-2010
05:51
Bit of background - original diagnosis in June 07 - spread to bones in Jan 09. So far only one spot. Had a CT yesterday and got my results and all the same. No more spread. Feel very happy to say the least. am on Hercptin every 3 weeks, bondronat every day and Capcetabine.
MuddyXX
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10-08-2010
05:00
Hi
On number 42 Hercptin and main thing is runny nose. Can be a bit tough as sometimes talking to someone and feel a drip coming. Hankie always up my sleeve at the ready.
Also eyes a bit runny in breeze!
MuddyXX
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10-08-2010
04:56
2 Hugs
Hi
Just to say I too have bone mets. Brief summary - initial diagnosis June 07 . Bone mets in Jan 09. Feeling ok. On Capcetabine permanently(until it stops working) also on 3 weekly Herceptin. Feel tired and need regular naps. Not pleasing at 40 . Married with two angels of boys aged 14 and 11 and a saint of a husband who puts up with my regular tears for a life thats gone and a new one with a very uncertain future.
Have another big scan coming up- I hate the fear and dread they bring. The drinking the rotten stuff, the hunt for a vein and then the wait - oh my, the wait for results!
So far one bone met on spine 2cm which at last scan was stable. Please God may he have mercy for the next scan.
MuddyXX
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19-07-2010
06:41
Quoted £49.00 so happy with that.
Heading on Thursday. FLy to Palma then its Corsica, Naples, Barcelona, Toulon and somewhere else - not really in that order!
Looking forward to it but energy levels not great so hope I'll pick up!
MuddyXX
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18-07-2010
05:51
Just on this point i tried to get a quote from MIA who i have used before but because I am going on a cruise they wouldn't quote. said the risk of infection too high. I did get insurance from Pink insurance.
Its a blooming horror this whole cancer thing!
Muddy XX
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03-06-2010
09:11
Good luck with the Capctabine. I've been on it full time since Feb 09 and managed not too badly.
Tiredness is a big issue so take it easy. Also found that my tummy would sometimes be upset and I get doses of the runs!(Nice)
Overall very doable - my hair is ok and strangely after years of bad skin my skin is now clear- I put it down to the fact that nothing could survive chemo!!
Good luck
Muddy
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02-06-2010
04:55
Thank you all for taking the trouble to reply. I feel a bit better now that the 'big 40' is over.
I have tried counselling but since I used to be a youth counsellor as part of my work I found it all a bit too familiar and almost could predict where the conversations were going - and lets be honest at the end of the session I still have a life threatening cancer!
My boys age 14 and 11 keep me going. i don't know how I'd cope without their humour and practicality.
Thanks folks. Hopefully I'm not ready for the scrap heap just yet.
Also it is 3 years this week since primary diagnosis and my worst nightmare came true with secondary spread to spine. So a lot going on.
MuddyXX
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31-05-2010
05:11
I had my 40th birthday last week and can't help but think how many more will i live to see.
Everyone made a big effort and I played the part well. I have put on so much weight(my oncologist has told me it's the medication).
I currently have secondary in spine and wonder when it will spread.
Sorry to have a moan but I look around me at my lovely children and family and wonder how long I will be around to enjoy them. A good friend died after Christmas with breast cancer and since her passing I feel no one really understands the frustration and worry.
MuddyXX
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15-04-2010
06:28
I just wanted to give you all my good news. I was diagnosed with secondary to spine in Feb 09. Inital diagnosis June 07. I am on Xeloda (4000mg per day) and bondronat (Spell?). Well my latest scan has shown all is still stable.
I am so grateful and happy that all the drugs are holding it at bay!
Just thought this might give a wee boost to anyone else on Capcetabine.
Take Care ladies.
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01-02-2010
05:44
Hi
I'm looking to you lovely folks for advice. I have secondary spread to my spine and am currently on Xeloda (Capcetabine) and have been for nearly a year.
For the first time I've been told my white blood cells have dropped to 1.45. There was a query as to whether I could get my chemo drugs but as the cut off point was 1.5 they let me have them.
My question is this - can I do anything to help them improve? I'm currently resting a lot (am only 39 and feel like a granny!)
Any help appreciated,
Thanks
MuddyXX
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01-01-2010
11:40
I am gutted. My friend died on 27th Dec leaving behind two adorable boys aged 8 and 4. She was only 34. I feel so sad and empty. I have secondary cancer too and in away am mourning not just her but also knowing my own future is not secure.
Her husband feels she is in Heaven but feels robbed of a wonderful wife and devoted mother,
Life is so cruel and yet bad people seem to sail through it - life is not fair.
Muddy
XX
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09-11-2009
05:40
Hi
Just wanted to say how i empathise with you. I am 39 have two gorgeous boys age 13 and 10 and I look at them and wonder how they will cope when I die. I was diagnosed with secondaries in Feb this year (primary in June 2007) so not much of a break before my bad news.
I go to my oncologist too scared to ask questions as I cant face the truth.
I will say that life does take on a normality. It has to when you have young children. My boys dont know my caner has come back - I want them to enjoy life as long as we can before I have to break their hearts.
Hang in there.
MuddyXX
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09-11-2009
05:26
Hi
I am on cycle 9 of Capcetabine and can relate to your probelms.
My dose was reduced from 14 days to 12 but I still find when i am on my "week off" my diahorrea is not nice. I take Loperimide but to be honest I sometimes feel I might as well take smarties.
On the positvie side (see my other post) my lastest scan showed things are stable with my bone met and that has to be worth it. When my diahorrea is bad I just go to bed for the day - not easy with a 13 and 10 year old.
Good Luck
MuddyXX
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09-11-2009
05:19
I just wanted to share my good news and maybe offer a bit of hope for you other ladies on the same regime as me.
Summary - diagnosed with secondary to spine in Feb 09.(age 39)
I had a scan a couple of weeks ago and they said everything is stable.
I was almost sick with worry. I know this is not a cure but the capcetibine combined with 3 weekly herceptin and Bondronat seems to be working at present.
Thank God - and I mean that.
Hope all you folks out there doing ok
Muddy
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