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Kenni
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since
01-05-2012
37
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30-07-2015
07:49
Omg I just read about Helen. Even though I don't post here much but Helen usually PM to support me through the last 18 months. Condolences to her family and friends. We all here will missed her very much. She was such an inspirational to me with her fight of this disease. She always encouraged me to see the bright side of things even though I am in the downward spiral. Rest in peace now and hope you are in a better place. RIP Helen. Kenni x
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24-06-2015
10:05
Hi Julie Thanks for getting back to me. Can you tell me roughly how many days before the pain kick in after the radiotherapy? Do you think I should get my husband to take me to radiotherapy sessions or can I drive myself? I was told by my oncolgist that I might feel sick after the radiotherapy and said to take an anti sickness tablet an hour before the radiotherapy? Is this normal procedure? Kenni x
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24-06-2015
05:32
Hi Sallyhennypenny and Jam Thanks for getting back to me. It gives me the assurance that radiotherapy might be good for me.Two weeks ago I can't even walk due to the pain from left hip down to my leg. Have acupuncture then and seem to settle down but now it comes back again. Fingers cross that it will help me as well like you, Sallyhennypenny. Kenni x
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23-06-2015
09:30
Hi all, I have been a member here for a while now but rarely post but find inspiration and support from everyone who posts her and shares their experiences. I had breast cancer in 2010 but unfortunately returned in November 2013 in my liver and bones. I have been having chemotherapy (taxol), Cape tablets and zometa treatment since then. So far the treatment has been going well with the cape tablets and the cancer marker shown a significant reduction. However, when I saw my oncologist on Monday my latest bone scan showed the hot spots on my lower back had increased and I have been having dull ache constantly which can be control quite well with codamol. My oncologist has now suggested that for the time being I stop my chemotherapy treatment (Cape tablets) and have a week course of radiotherapy on my lower back area to ease the progression of the cancer there. I have read that the radiotherapy can cause other damage such in the bone marrow, kidney etc and feel very concern about it as I am an anaemic. I am debating with myself whether I should go through with this or not and is driving me mad. Could I please ask for your advice and any experiences from anybody who has been through anything similar. Thank you all in advance for your contributions as these forums have helped me greatly over the last five years. Regards to Helen and hope she gets better soon. Kenni x
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05-01-2015
07:44
Hi Mowser I am completely different from you. My TM is raised but my ct scan show modest shrinkage. My oncologist also don't know why there is contradiction in my TM and scan result. I am on my 5th cycle of Cape and if my TM up again then my oncologist is going to put me on something else. Very worry time for me.
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01-01-2015
02:12
Happy new year to all the ladies here
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24-12-2014
06:34
Hi all, Even though I don't post here that often I would like to wish you all a Merry Christmas and a very healthy year to come. I would also like to thank you all for being there to help me through the tough times dealing with my breast cancer. The knowledge I got from this forum is phenominal and a special thank you to Helen who private message throughout the year to keep me going. Raising a glass of champagne to all of you. Kenni xxx
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27-12-2013
08:28
Hi AK I am definitely interested in meeting up after new year. Just let know when. I am having 3 weekly taxol on every Tuesday. Just let me know when. Hope you have a nice Christmas and better new year to come.
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06-12-2013
10:01
Hi Lej81 I totally agreed with you. We should have regular scan regardless whether it comes back or not rather wait until something happen.
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05-12-2013
08:12
Hi Lej81 I am really sorry you have to go through this anxiety. I can only tell you my experience. I only found out my secondary when I have pain down my armpit to my waist. On several occasion I have back pains which wouldn't go away even after painkiller but dull the pain only. Like you I have been complaining to my oncologist that my ribs are aching after my primary treatment but he said could be gallstone which is quite common if you have tamoxifen. Because of the back pain he sent me for a blood test, a ct scan and a bone scan. It turns out the cancer has spread to my ribs and liver now. Starting chemo all over again. Hope your pain is just what the breast cancer nurse said - after treatment pain.
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04-12-2013
04:46
Hi Nicky Thank you for the information.what you said about zometa incorrect - having a fever and spoken to the doctor and he said wait and see as I already have a fever before I start the chemo. He wants to see meon Friday instead to have a blood test. Have you ever heard of having chemo and rad at the same time. I read that cyber knife is very effective. Thinking of asking my oncologist on Friday about it.
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04-12-2013
09:12
Hi ladies Started my chemo and zometa yesterday. Feeling ok today. I read here that your cancer type can change and I asked my oncologist yesterday about having a biopsy. He said this will delay my treatment. If anyone has a biopsy, how before you could start the hemorrhagic treatment? He also said that the cancer rarely change? Is this true?
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02-12-2013
06:08
Hi Belinda I am starting my treatment tomorrow. I am er+ for primary. I can't remember what my onc said - but my husband think 6 monthly weekly taxol and every fourth week I have a bone strengthening injection. I still prefer quantity over quality as I want to be here for as long as I can for my twins. I would definitely want to be in charge of my treatment this time rather than what the onc said. But at the same time worry that he might get the ump and then not treat me properly.
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01-12-2013
07:45
Hi all I am seeing the onc next Tuesday and any suggestion of what questions I should be asking him? I used to just let him tell me what is suitable for me. I never seem to know what to ask and so is my husband. Any suggestion is welcome. Thank you all
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30-11-2013
11:24
Hi Belinda I might put on a brave face and brave words, but inside I am absolutely an emotional rake. That what the onc said to me re my MRI scan to check whether it has got into my spinal cord. That is what worry me most. I didn't know it is rare to have spinal cord involvement but fingers crossed that everything is ok. I hope to have my result next Tuesday before I start my chemo - i think weekly taxol with the fourth week injection to strengthening the bone for the next six months.
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29-11-2013
10:00
Hi Anniejac I will be praying for you and hope your MRI come back clear. Like you I tried to put on a brave face and soldier on but as soon as I get home, I will have an emotional breakdown. With our positive thoughts and wishes to each other, we are all going to live for a long long time yet.
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29-11-2013
05:32
Hi Belinda Thank you for the encouragement. Like you I don't drink, smoke, eat healthy, etc still got cancer. What worry me most is whether they have got into my spinal cord. I suppose like you said I can't do anything to prevent it but just have to live with it for however long I got. Big talk but inside shrivelling up.
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29-11-2013
05:25
Hi Flapjack Sorry to hear that you are going through the same as us all here. Last time I have ECT for chemo without the F as my onc said it doesn't do anything to the cancer. I was in an emotional state when my onc told me the cancer back and didn't register a word what he said re my treatment - he told my husband he will go through it again with me next Tuesday when my treatment start with taxol. If it knackered you out after just two cycle, I will be in trouble. Last time the chemo laid me off for 10 ten days afterward. Hope and pray that you don't have bone met. I am dread my MRI scan re spreading to my spinal cord. I think if it is in the spinal cord, I don't think there is any treatment for me. Do take care of yourself and thanks for supporting me in this journey.
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