Hi Kay
I started Xeloda in December 07 for mets in the liver, bones and lymph nodes of the chest. Back then I couldn't walk more than 15 steps without becoming out of breath. Things gradually improved and my latest scans showed significant shrinkage of the tumours.
My greatest problem with Xeloda is that initially it made me lose my appetite and I lost a stone in weight. I've gained half of what I lost now and feel much better. I have level 1 hand and foot syndrome (redness but no pain or peeling) but I've been applying aqueous cream faithfully every night and morning. Keep a note of all side-effects and mention them each time you go to the clinic. There are lots of medications that can help and your oncology team really do want to make you as comfortable as possible.
As regards work, I think it's an individual thing. I haven't been working since my mets diagnosis but that's because I still get tired and need my afternoon nap! Make sure you apply for Disability Living Allowance under the special rules. You get the care component automatically as long as your GP agrees to give you a DS 1500 report and you can even get it if you work.
Other than this all can say is good luck. It does get easier, I promise. You just find your way of coping.
Hugs,
Lolax
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