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Slendablenda
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01-05-2012
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22-05-2012
12:06
Charhie is right. It sounds as though your employer is being discriminatory. The Equality and Human Rights Commission will be able to advise you of your rights and options.http://www.equalityhumanrights.com/
I'm just about to return to work 1 yer after surgery and it'll be six months since end of treatment. I'm scared - also have quite a lot of effects still, but my employer has so far been great. I'm going back to a less strssful job nearer to home starting 2 short mornings per week. Wish me luck!
Please let us know how you get on.
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06-04-2012
09:43
Surely 18months of treatment, and it isn't easy, is preferable to the possible alternative?
I told myself "why go the doctor in the first place and then decide not to follow their advice?" No contest.
It is scary, but good luck. I think we are so lucky to have the NHS.
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01-04-2012
02:30
The worst I've felt through this whole thing was constipation - so I can sympathise. Had follow up with Onc at the hospital this week. I went to the loo before my appointment. It all came flooding back (not)!
MOVICOL and drinking lots of water was the only thing that made me feel like I didn't want to die.............
Good luck.
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01-04-2012
02:23
Cheers Choccie - I know exactly what you mean from Mrs.Tee - aka Slendablenda. Hope you feel better soon xx
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22-02-2012
04:16
Hello Carly
I've been diagnosed with low mood/depression too although I'm triple negative so no Zoledex or Arimidex.
My GP has referrred me for CBT (Cognitive Behavioural Therapy) which uses psychology rather than more tablets - could be worth a try?
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22-02-2012
04:07
Hi Nicky,
I had an elderly cat Gazzy Wazzy Doo Dah (Garfield originally). She lived till 22 although she developed milk kidney probs from 16 - just drank more and peed for England. I hope it's similar for your cat.
My current 4 year old moggy Mayfair is asleep contentedly in her basket between me and the radiator.
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18-02-2012
11:19
I have it too in my hands and feet. Right hand is particularly painful and wants to curl up especially after I've been asleep. I have 2 pairs of boots and 1 pair of flat shoes that I can wear. I walk like an old lady. It makes me feel very fed up. I had 4 AC followed by 4 Paclitaxol
every 2 weeks from July to August 2011 followed by radiotherapy which ended just before Christmas. Also am still losing toenails although fingernails are now improving. No sign of an improvement in the feet.
Onc says it may improve gradually or may be permanent. I am sitting now with feet up. Really fed up with it all. Now treatment is finished I just want want to feel better. I was quite positive all the time, but now i'm feeling really sorry for myself.
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18-02-2012
11:07
Oh Leeds, feeling sorry that you are feeling like that. Just think, although it is tough it's temporary (ish).
If it saves your life it is worth it.
Good luck for the rest of your treatment.
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16-02-2012
05:24
Hello everyone,
Thanks for remembering me Jane. I do pop in for a look and to catch up on how everyone's doing, but haven't posted much lately.
To be honest I am struggling even though my treatment ended just before Christmas. I didn't have much time off sick during chemo and rads. My boss was great and enabled me to work form home whenever I felt able.
In january I tried to step it up and increase my hours and drive into work sometimes, but doing sort days. I realised I really couldn't cope.
Still had blistering and soreness from rads, neuropathy in hands and feet which is still ongoing, severe fatigue, vision, memory and concentration all still affected, have gained weight which I don't have the motivation to try and lose, toe nails coming off so can only wear roomy flat shoes and boots. Also my job is going so I'm going to have to learn something new when I can't even do my current job.I felt so despondent and useless.
I had a 5 week follow up with my Oncologist who told me not to be so hard on myself and expect too much too soon. Said I shouldn't consider work till 3 months after end of treatment and then on a phased return. He said I should concentrate on getting better before thinking about work. So i'm signed off now for 2 months. It is a relief in a way. GP has referred me for counselling due to low mood/depression. Hopefully it'll work for me so I can get my motivation back and start to feel positive again.
I know I'm lucky that I haven't had any severe complications, but somehow that doesn't help my mood.
So that's why I haven't been posting - don't want to be a misery.
I'm usually a positive person who feels in control, or should I say I used to be. Hopefully she'll come back. In 2 months it will be a year since my diagnosis. I had expected to be further ahead than this, but I know it's just going to take however long is necessary.
It's good to read of people getting on with their lives. Loving the fact that Rach has a new baby harp to play and Ninja is away and Wandy is fighting the foxes. Go girls. xx
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06-02-2012
04:12
Good luck Gissele.It's just the news none of us wants to hear, but great to see positive posts from other ladies on here.
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06-02-2012
03:57
Thanks Ragamuffin, I feel like Mandy B did in July. Somehow it does help so much to know others feel the same although we wouldn't wish this on anyone. I'm sitting here looking through the posts because my feet hurt. Had to wear shoes to go out today.Toenails still coming off and neuropathy in hands and feet. Am feeling very fed up, but glad to know things should improve.
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06-02-2012
03:47
Peacock - wishing you luck with your pipes. I hope you have some progress. When everything works we take it so much for granted. I'm waiting for the electrician who said he'd be here an hour ago - plus ca change!
Lisa, not much longer to keep that willpower going. Tell you what - I'll have the vino for you - least I can do!
Snow was an anti-climax here. Typical, just when I don't have to drive to work at the crack of dawn.I love watching my cats trying to lift their legs up higher than usual and losing their scent trails when it's snowy.
Looking forward to listening to Just a Minute on Radio 4 this evening. OH and I went to London in the Summer for the recording in between surgery and chemo. I felt so well then.
Thanks Nicky, I'm not embarrassed that I have depression and don't mind telling people. It's not surprising after everything we've had to go through. After all the body and head are joined together....
Lily I'm definitely more a savoury person than sweet. Usually I love cooking and entertaining. I hope that'll come back.
My lingering side effects are different from yours. I don't have any trouble with foods or digestion.
I'm still having trouble with my nails, fingers and toes.Have pain in my feet and hands, especially the right hand which keeps wanting to close up - doing lots of flexing exercises.Dexterity is poor - keep dropping things, hard to do up buttons, put in earrings etc. Sore eyes,impaired vision,rubbish memory and limited concentration.My hair is growing back now, but I'm developing fluffy little sideburns I've never had before! I've read that others get this too and it may go of its own accord. I hope so. I've got very little stamina, get really tired, have no trouble going to sleep, but wake up about 3.30a.m. and then can't go back. Apart from that and feeling fat and sorry for myself I can't think of anything!
Usually I'm a busy, positive, capable person - I want her back - pronto.
I have 2 weddings to look forward to. My brother in may and best friend in October. She had bc about a year ahead of me so lovely to see her life back on track.
I hope all you Snow Angels are starting to thaw out.
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05-02-2012
05:50
Me too - I'm triple negative, so no herceptin or tamoxifen. Finished rads just before Christmas and have now noticed fine fair sideburns. Never had them before and don't want them now.
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05-02-2012
04:10
So glad you enjoyed your bufday Lily in the bosom (sorry!) of your family and good news about Victor too.
Frozen pipes and no water AND broken rib - poor you peacock.
All that talk of French food and seafood - yum, love it all including the oysters. When I was much younger I lived in Zurich for a while, first came across Steak Tartare there and it quickly became my favourite.They also used to check that I knew it was raw. I loved the ceremony with the waiter adding all the flavours and raw egg.
Today OH took me out unexpectedly for a local pub lunch. I had rare roast beef. A favourite, not found in many pubs.
Here at the Sussex seaside we had a short flurry of snow yesterday evening which was quickly washed away by a night of sleet and rain.Not a sign of white now and quite a mild day compared with the last few. Birds are singing and getting amorous outside. I hope none of you have had any frozen mishaps.
Saw GP on Thursday, she's referred me for some CBT. She thinks these lingering side effects and not being able to cope with work have resulted in depression. Unfortunately I think she's right. I'll give it a go. Have to phone on Tuesday to make an appointment.
The light is starting to fade now, going to put the fire on and snuggle down for a cosy evening. Stay warm everyone.
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04-02-2012
12:04
Hello Chicci
I had similar problems, but not until after rads had finished. I had been using the Aqueous cream, which I had kept in the fridge, twice a day. When the sore redness and blistering came it was very painful. I went to the GP and he prescribed hydrocortisone cream which took about 2 weeks to calm it all down.I'm still feeling rubbish and very fatigued. My rads finished on Dec 23rd.
I hope you feel better soon.
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01-02-2012
07:15
Oooh Lily, Poor Victor - it's a bit unsettling for someone who is usually so well. Poor chap probably doesn't know what's going on. I hope it turns out to be nothing serious.
I had a nice day today. My sister came over from Kent, she and I had lunch with my Mum in the care home where she lives (we were just practising!!!).
Freezing cold here by the Sussex coast, but beautiful sunshine today.
OH going out for a well deserved drink with his friends tonight (rather him than me(. I'll be here warm and snuggly with my 2 cats and a bottle of red.......poor me. xx
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31-01-2012
05:26
blxxdy hell peacock, how frustrating - hope you are wearing your Marigolds!
Sorry I haven't been around lately. I went back to work, although only part-time at the beginning of Jan, 2 weeks after rads finished. Bit off more than I could chew really, boob blistered, toenails coming off etc.
and still get so tired. I felt as though I was going backwards.
Had follow up with Onc last week.He seemed amazed I should have considered going back before 3 months. Now signed off until end of March. I feel disappointed and relieved in equal measures.
I'll go back and catch up on everyone's news.
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31-12-2011
01:15
Well done Rexi, good luck next week Sandy.
I agree with you LindyLou, back in June it was impossible to imagine this far ahead. It has been months of just following medical appointments and being "done to". I am aware that many of you have had more set-backs and complications than I had. I hope your treatment goes more smoothly from now on.
Tidily for me my treatment ended on Dec 23rd. I'm still feeling surprisingly tired, no- exhausted, no energy. I keep reminding myself it is only a week since my rads finished.
Thank you everyone for this thread. There's been so much support, useful tips and shared experiences.
Here's to us for 2012 ladies. Happy New Year. xxx
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31-12-2011
01:08
Good for you Nicky - lots of good things coming up and to look forward to.
I'm feeling like that too - my brother and his fiance have just set the date for their wedding in May and significantly my closest friend who is about a year ahead of me in her recovery from BC is also getting married in October.
I do feel positive about the future and look forward to 2012, but at the moment I'm just exhausted and have no physical energy.
I keep reminding myself it's only a week since rads finished.
I've had to buy some new bigger clothes for going back to work and that's made me feel fed up.
Jan 1st - start lose the weight.
Back to work next week, thanks for your advice to take it gently at first - don't think I could do otherwise at the moment - lots of bits not working properly yet.
I just want to wish everyone a happy, healthy 2012.
Happy New Year girls. xx
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28-12-2011
11:23
Hello,
I did venture out to the Sales early this morning in a small town nearby where they have a selection of small stores of high street retailers. I'm going back to work next week, but not much fits me at the moment and I can't wear any of my heels due to s/effects from the chemo, so bought a couple of pairs of flat shoes, some flat fur lined boots and a couple of dresses and the ubiquitous black trousers. Should see me through until I get a bit slimmer and fitter.
Good news,my friend had her dialysis machine replace on Christmas Day
and
today my brother set the date for is wedding, end of May so I've got time to get my act together. It will be slightly more than a year since my surgery. GULP.....
Yesterday we had a couple come to play a board game (13 Dead-end Drive)and have supper. We had a super time, the supper was lovely. All shortcuts, but you'd never know. Today I'm absolutely shattered.
I'm sitting here with my feet up and cat on lap which is lovely and off to bed in a mo. Goodness knows how I'll manage with work.
Sounds like some of you have had busy times over Christmas. I hope that'll be me next year.Goodnight everyone.
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