Breast Cancer Now Forum

Hi, Just wanted to let you know that you are in my thoughts and have my fingers crossed for you Gina xxxx ... View more

Oh Sue Life is really s*** at times isn't it, so unfair. As i don't have you on fb or mobile no. i'm sending you a great big hug on here. Are you still thinking of moving, whats happening there?? Take care Gina xxx ... View more

Hello all my lovely BB. God it's been months since i posted on here but have been in touch with you all on fb and as you know i think of you all the time as you all mean so much to me and have helped me so much through this journy, Thank you so so so much. I have just caught up on 4 pages since i last read last week and i'm sure i wanted to post somethink to many people but i've forgotten most of what i wanted to say so appologies if i've left any one out. Caro- Big hugs to you. Jayney and Al sorry you have had pains and Debs too. You'll know from fb i do too and had a mri which luckily was ok, but we will never stop worrying will we? I know we all have been or are feeling down at the mo especially as for most of us it's been or coming up to a year so sending BIG HUGS to ALL ((((((((((((((((((((()))))))))))))))))) I have my mammo on tuesday but have been told by my lymph nurse not to have it on my right boob because of my lymphodema but instead to have a ultra sound. I'm quite happy with this as the mammo last time never showed by tumour anyway!!! Can i ask Lulu/Rach a medical question? I had a MRI recently would it show up any lumps and bumps in other breast? Reason i ask is that i can feel something but wonder if what i feel is normal! LOL to you all Anyone heard from Pix or Evie??? xxxxxxxxxxx ... View more

Hi I too have lymphodema of the breast. I fifnished rads end of Jan and quite soon after noticed that my boob had a similar appearence to stretch marks all over it and dark spots. My bra then started to dig in quite badly and my boob started to enlarge and became very hard. I had to see my oncologist about some pains and he said i had lymphodema but never suggested any treatment. I had a mri scan which did show alot of fluid on that side but again no treatment was suggested. I was going weekly to my local hospice for a massage, reflexology etc and i remembered that they also had a lymphodema centre so i just mentioned it to one of the nurses and she kindly referred me to them. I now see them twice a week at the mo, one is for an exercise class and the other is for lymph drainage massage. I am then taped up around my boob with some special tape that apparently when i walk, move etc slighly moves the tissues to mimic a massage. This seems to be helping slighty but it is early days and i think i have a long way to go. I also have been showned how to massage myself. I mentioned that i am having my mammo on tuesday and i have been recommened not to have it on the affected breast as it will damage the tissues, my nurse suggested an ultra sound instead. Help does seem to be tricky to find but please do ask for help as it really is a painful condition. Gina xx ... View more

Will we ever stop feeling like this. Rachel i'm in your pocket tomorrow with you and you too Lulu. I am so paronoid at the mo and keep feeling my other boob all the time and keep thinking i feel little pea size lumps but can't compare with the other one as that's full oy lympodeama but sure it's ok and just in my head!!! Well done on the job Lulu. You will make a fab BC nurse. Debbie, hope your sister is ok fingers crossed. Sally XXX To everyone else that i have met through this fab site hope you are all ok (pixie you're very quite) Thought my trip nx week to Istanbul (just me and hubby) was off as b***** BA had cancelled it. Thankfully hubby got on the phone and got us on the nx one a few hours later. Love you all xxxx ... View more

I was dx with CFS in 2002 which went into remission when i became pregnant with my 3 child in 2006. I have been wondering if it would return after being dx with BC last may. As i only completed treatment in Jan this year the symptoms i have i think are still from chemo and rads but may think differently if they continue. Thanks for the info. Gina x ... View more

Hi I'm in Stokenchurch just north of High wycombe. I'm nearly at my 1 year mark (may 8th) but would love to meet. Gina x ... View more

Hi She I like you only had a lumpectomy but now have breast lymp in it which has increased the size of my already large ***. It feels horrible all lumpy and bumpy and i keep thinking that i feel a lump in the other one but i think thats all in my head. If i was given the option to have them removed somedays i would say yes but other days i think i would say no, tho i think the yes is a bit more higher up the scale.(sorry this is no help). Like i think Rach has said could you wait untill you have had the results of your genetic test. And if you don't know by April can you not go back later and say you have changed your mind. Sorry i have'nt help Thinking of you XXXX ... View more

i'm coming too, i'll be on my own so up to sharing. I can only come saturday night tho. xxx ... View more

So so so pleased that you had a great day and what a beautiful day it was. Lots of love Gina xx ... View more

I hope so too as that is just how i feel this week. Could just fall asleep right now but have to collect my daughter from nursery in 30 minutes. I think i overdid things last week and i'm paying for it now. Gina xx ... View more

Anna i have only just come across your thread. I am so so so sorry that this has happening to you. You are sounding so strong and positive, and it sounds like you have so many wondeful people helping you along the way. Good luck for your wedding i too will be thinking of you both on your very special day. Gina xx ... View more

Hi all, Just wanted to say Hi and that i'm still around. I've been reading all on here and fb but have not got the energy at the mo to write much as feeling abit glum over my 3 yo, saying that she has been great today but with hubby working in Italy i'm just exhusted(told him we should have relocated over there with him). I'm also getting pains in my jaw bone, down my neck across my collar bone and into my back probably just stress and tension but i've had it ever since i discovered my lump and mentioned it at every appointment and all they do is feel my glands in my neck, say it's ok and then it's never mentioned again untill i bring it up at the next appt and i'm now really p***ed off about it. Also really upset as my dad's dementia has drastically got worse over the last month and today he said on the phone that i was an imposter and a liar, he's also getting agressive towards my mum, it's just so sad. Anyway hope to catch up more soon xxxxx Love you all ... View more

Bumping for you pauline xx ... View more

Just wanted to send hugs to Hannah Paula and Anna. My thoughts are with you all Gina XXX ... View more

Definatly agree to friend using pictures Rach anything to help. Love you all xxxx ... View more

I like it ...might put it on facebook as my status!!! ... View more

I hate to tell you this but i couldn't walk up the staires unless i was all fours for about 6 weeks after fec and tax and walking any distance at all about 8-10 weeks. Don't try to rush things, each day is a step closer to feeling 'normal' again but you need to give your body a chance to recover from the hell it's been through. Gina xx ... View more

I don't really know what to write as so many wise words have been said already (and i'm not very good with words) but i just wanted to send you some more hugs as i so know were you are coming from but as you know mine is my family. xxx ... View more