This website uses cookies. By clicking OK, you consent to the use of cookies. Click Here to learn more about how we use cookies.
72268members
378online
378649posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About emma92
emma92
Member
since
01-05-2012
100
Posts
0
Hugs
09-03-2015
10:29
Hi - It is very exciting to hear somebody else who has also experienced the same process. We are just about to finish our adoption journey....then on to the "being a family" journey!! I was diagnosed in 2010 aged 25. Now, almost five years on, my husband and I have just completed the adoption process and will soon meet our child with whom we have been matched. It certainly has raised a few of the usual BC wobbles but it is more exciting than anything else. The Local Authority we went through had no issues although the medical in Stage One took a bit longer as letters were waiting on consultants' desks and that kind of thing. It has not been a barrier at all and we're now looking forward to starting our family. It has been interesting "choosing" to adopt when so many others go through it because they can't have children and that has been the only thing we have been quizzed about a bit but, because of the oestrogen risk and the fact I may have dodgy genes, it was the best decision for us. Good luck for anyone heading down the same road! x
... View more
09-03-2015
08:59
Hi all I haven't used these forums for some years now and I'm now in my fourth year of Tamoxifen and, whilst my periods stopped during chemo and the year that I took Zoladex, for the last 12-18 months I have been having regular periods, which lasted for a shorter time (3 days approx), but these have now suddenly stopped. I'm not pregnant but I am very worried about this sudden change. My plan is to get an appt with my oncologist as I haven't seen him for two years anyway as I know Tamoxifen can affect your womb lining and that's a concern but just wondered if this had happened to anyone else? Another contributing factor might be that I have changed doctors and consequently my brand of Tamoxifen has changed - from relon chem to Teva......don't know if brand change would make a difference to periods but I know it can change the side effects. I think like all of us post BC, any change is a nightmare as you just assume the worse! I have done pretty well to hardly worry at all since my diagnosis is 2010 but now we're just about to adopt and this couldn't have come at a more inconvenient time!
... View more
12-02-2011
04:28
I have a limbo half arm sleeve and its fab-just make sure you follow the instructions putting it on-which sounds simple but if I don't do it properly a few drips get in! Tis great!! I too had the one for Boots but found it an absolute waste of money and I was saturated!!
Good luck! Xxx
... View more
07-02-2011
12:24
Hi!
I'm on my second PICC line as one came out too far and had to be replaced! Mine has never caught on anything although have had Phlebitis (can't spell it!) twice and am currently sitting here with my hot water bottle on it! However just wanted to say be very careful what tubigrip you are using! I got mine from the PICC nurse and she was super emphatic that I shouldn't use a normal tubigrip as they were too tight and it shouldn't squeeze as increases thrombosis risk! She did however suggest cutting tights and using them especially if you need a black one to go with an outfit! I really think you need to sort out the dressing bit with the nurse as it should be well enough wrapped with gauze and then covered so not to catch on anything!
Hope it gets better! X
... View more
04-02-2011
02:08
Msmolly-completely agree! I font blame myself, nor do I care if others blame me-what I care about is correct education and limiting stigma so the crux of the problem can be dealt with rather than sensationalist headlines! C
... View more
04-02-2011
12:43
Finty-I think you need to start writing the news as it's much better phrasing than what I have been listening to this morning!!! In this case it would appear the semantics really do matter as does educating people!
X
... View more
04-02-2011
12:21
Gosh! Dont you just want the big wigs to read this forum and see what the reality is and how far away from apple chopping it actually is! All so much more accurate than what they portray on the news!
I'm 26, diagnosed at 25, never been too sporty, very rare binge drinker (birthdays!), I smoked for a while, went through various stages of being lazy then exercising, pretty average weight and pretty "normal" lifestyle me thinks....which leaves me wondering how I fit in to this new research!! As for cause, I'm bring BRAC tested and also participating in a research study for other genetic causes (I'm adopted so family history is a mystery)! Now, if they're telling me that I've drunk too much and made it more likely that i would get bc I may have to bop someone in the nose with my hard expanded boobies lol!! it sets such a bad example and level of understanding to the public who don't know what its like and groups us into a category where some element has been self-inflicted......purrrrlease!!! Yea, you can be a health freak and still get breast cancer, it does not discriminate! The focus needs to be on cause and promoting a good level of lifestyle for all without everyone going crazy vegan, wheat free, dairy free because really, how are we expected to get through this without a bit of chocolate and a glass of wine without the guilt that we should be cycling 30 miles beforehand!! (although I probably should having just signed up for a 130mile bike ride for the Coppafeel charity who raise awareness of breast self-exams in young women )!!!
Ooooh I feel better for that rant....!
Pinkie hugs xxx
... View more
02-02-2011
04:45
Thanks for your comments! In a sane state of mind I would definitely agree - just finding it a bit weird to stop and not have a plan of action! I'm 26 and feel like up to now its been constant studying and working to get to my chosen career and now, I just don't want to do it anymore and feel I could actual enjoy another job better! It is difficult to not put the pressure on when it has always been there but it is nice to know that I haven't gone completely insane and other people can understand what I am saying!
Em x
... View more
02-02-2011
01:26
Hi all!
Just need some general advice and sage words as am currently having a bit of a panic! Have just had Fec 4 and have two sessions left - I figured that was only about five weeks so should really start looking for a job. Although there is no real urgency as my OH works and I had my insurance payout, I get the feeling he would like me to get back into things as soon as poss and get back to normality. Unfortunately, this is freaking me out! I'm on SSP at the moment but am really not keen to go back to where I was working, it was a relatively new job and I don't think I would be comfortable going back into such a high pressured and uncomfortable environment. Also, I kind of fancy a career change as feel you get a lot of perspective on this cancer-trip and realised I should have studied what I wanted to and not what I thought I was meant to!!
Anyway, didn't quite realise the panic would set in so had sent a few CV applications out. Just got in from walking the dog and have been asked for interview tomorrow. I, naturally being unable to say no, said yes and now am stuck, panicking, and don't really want to work there anyway! The OH says it would be good to practice at some interviews but it all seems so quick and TBH too soon! Although I'm ok and probably may have survived working through treatment, I don't know if I'm ready to get into a whole new job right now!!
EEK sorry for the ramble! Any advice and guidance would be most appreciated! I think I should hang on until a real position I want in the "new" career becomes available but, equally, I'm concerned I'm just using that as a distraction when I should really focus on what I know I can do!
Blimey - tis very stressful but the rants made me feel better! Thanks muchly!
... View more
02-01-2011
09:11
Hi
I know there is a support group every Tuesday (I thunk - this is from memory though) at the BrightHelm Centre near LA Fitness. Not sure it is specific to primary or secondary but it may help? I live in Hove but dx at Worthing (brilliant treatment!!!) as only just moved when it all happened!!
Em x
... View more
02-01-2011
09:04
Hi Vickie
You may have seen it already but there is the charity Coppafeel which is working hard to promote breast awareness! Maybe you could get some ideas from there for what you want to do? Xxx
... View more
23-12-2010
11:51
Hi all! Hugs to littleangel and Sophie-extra festive ones with bells on too!
Am now Day 6 post FEC 2 and feeling good except for the pain in my blinking PICC arm-it's very ouchy but if thats the most I can complain about it can't be bad! Emend has made a real difference and aside from succumbing to the overwhelming tiredness no sickness to mention and worked really hard keeping the fluids up this time even though I seem to go off tea (weird) and no chemo headaches either (the wine last night definitely helped!!) Having a bit of a nightmare keeping my PICC dry and got some shoddy thing from Boots which wasn't good enough even when using clingfilm too! Spoke to PICC nurse and she has recommended limboproducts.co.uk as they do a fully submersible cover which her patients rave about-so there's a little tip for any fellow PICCers!
Hope all FECcers and TAXers from last week and this week are coming through the fog for Christmas Day! Xxx
... View more
18-12-2010
07:06
Morning!!!
So Emend works so far so great! But I do have pins and needles in arms-is this normal? Xxx
... View more
17-12-2010
09:22
Morning all!!
Second FEC this afternoon! Hooray....1/3rd done whoop! SJ hope yours goes ahead and you're feeling better!!
Good luck to the first timers today-thinking of you!
PICC line has already settled down since insertion yesterday although bit bleedy so looking forward to itvbe re-dressed later! Will keep you posted if it changes 🙂
Pinkie hugs! Xxx
... View more
16-12-2010
09:33
Evening all!
I agree with the liberating shaved hair philosophy-I'm channeling GI Jane today following the PICC insertion as opposed to Sinead O'Connor teehee!
PICC was fine-tis sore now but drugging up! Good news for chemo tomorrow too-nurse called yesterday and I explained was sick once after FEC 1 and had nausea for few days and they said they would try me on "blah-di-blah"......got it today and lo and behold it's Emend!!!!! After no drama or tears was very excited to be given it after all the rave reviews so fingers crossed!!!!!!!!
Love to all Friday ladies xxxxx
... View more
16-12-2010
01:05
Hi all!
Jo & Bacca-you poor things with your ports and PICCS-having my PICC appt in 50 mins-eek! Then FEC tomorrow! Hopefully it will be easier than Jo's but just keeping my fingers crossed!!
Kaz-glad you're a bit better!!
SJ-hope you get to feeling better immediately!!
Em xxx
... View more
14-12-2010
09:15
Oh SJ I hope you're not delayed that would be a shame! My OH is off sick from work with some feverish symptoms so forced him to sleep on the sofa last night as although I share everything with him-germs are an exclusion and with FEC 2 on Friday am trying to stay healthy!
DOB-is your bday the 16th of March? Teehee! You will be fine! It is a bit scary but think of it as the magic juice to zap any little buggers still hanging around and embrace it! I have even embraced the hair loss as I'm taking it as a physical sign the chemo is working!!! I had a bit of sickness and the first week headache is the worst bit for me but plenty of drugs made it better! Get your rest though! Hugs xxx
... View more
13-12-2010
07:02
Evening all!
SJ-your onc sounds a nightmare grrrr to him! Mine's the same though-no bedside manner and proper statistician but I do have some faith in him!
Deb-hats are from http://www.annabandana.co.uk (or .com?!?!) and only £3 each-really comfy!
Hair now off and feels a million times better-so far am not at all worried as trying to embrace Sinead O'Connor although due to no.1 cut I feel like my wig is velcro-ed to my head lol!
Xxx
... View more
13-12-2010
01:33
Hair clippers bought but don't have the foggiest how to use them!!
Sophie-I'm adopted too! Been for genetic testing and wasn't what I expected! They did blood test but he also looked for specific physical markers which may indicate a genetic condition other than that relating to Braca although being tested for those too he entered me into medical research scheme to get testing for everything else for free (because of my age they need the input for research!!) - got appt 18 Feb for results as it takes three months! Makes you wonder what they do with blood for that long!
Xxx
... View more
13-12-2010
10:49
Thanks Minny! Have reserved some clippers and need to go pick them up later as the pain of the hair moving, even under my wig or sleep hat, is pretty bad so if it's just stubble at least it won't move even though I did go at it with the kitchen scissors and cut it shorter!
SJ-feel better and good luck with onc and drainage!
Xxx
... View more
