77.1K
members
306
online
1.2M
posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About AvenueSue_
AvenueSue_
Member
since
01-05-2012
226
Posts
0
Hugs
12-09-2014
07:14
Hi All Do you mind if I join you? I'm coming to terms with bony 'involvement' and due to have a partial hip replacement to remove the lytic lesion on the 7th. My primary diagnosis was in 2010. I've been switched to letrozole from tamoxifen have been on zoladex since 2011 and started on denosumab in July. I'm plagued by fatigue and I think the side effects are causing this. Thanks in anticipation. Sue
... View more
04-08-2011
03:31
hi there,
I can make it on Friday evening. Seven is early for me though as I have to wait for my husband to get home and baby sit. Will try for 7:30. I look forward to it.
Sue x
... View more
19-07-2011
11:18
Hi SGL,
I'm sure you will enjoy this afternoon and try not to worry too much about what may come. It is hard but you will get through it. There is such a lot to take in and do lean on people for support. The helpline people are very good also.
I remember panicking about chemo, hair loss etc. I kept most of my hair using cold cap ( do ask one of the chemo nurses about it). The side effects were not as bad as I expected and I manage to work 2 weeks out of each cycle. It is so hard, I really feel for you, but you will get through it.
Sending lots of love,
Sue
... View more
19-07-2011
10:33
Hi All,
Such a pity that tomorrow is postponed. Can we go for another date? I will only be able to make evenings from this Friday as my son ( who is 5) breaks up from school this week. I am still off work and can still do coffee etc.
I hope all the appointments go well.
Best wishes,
Sue
... View more
11-07-2011
10:53
Hi Guys.
I am looking forward to the 20th very much. I have a short dark blonde bob at the moment courtesy of Paxman's cold cap.
Sue
... View more
07-07-2011
10:15
Hi All,
Chislehurst would be great. I look forward to it very much.
Jules- I hope you are feeling better.
Sue
... View more
06-07-2011
10:43
Hope everyone is ok.
If Wednesday is a good day for people how about a coffee morning somewhere local, or near a railway station? I'm happy to travel. Could we go for something on the morning of the 20th? Can someone else suggest a venue?
Sue
... View more
28-06-2011
11:04
Hi All, Nice to see you on again Julie. I hope all is well. I can do a day time meet up as I am not back at work yet any time after 10:30 and need to be back by 3.
x Sue
... View more
27-06-2011
01:58
Hi, Star Gazer Lily,
I'm here. I did start a Guys thread and there were a few posters. I am not on the site much but coffee, meet ups would be welcome.
Sue
... View more
21-06-2011
09:53
Hi,
I'm so sorry you find yourself here. it is a nasty business and I feel for you going through this again.
I had a mastectomy/ reconstruction with strattice mesh and an expander in March.
It was uncomfortable as the implant went under my chest muscle but I was able to keep on top of the discomfort with pain killers. I had drain in for two weeks, as soon as this was removed I felt better and recovered quickly.
I am really happy with the results. It honestly looks much better than I had expected and came through radiotherapy relatively unscathed ( wish I could say the same about my clavicle).
Do feel free to send me a private message if you'd like more info.
Best of luck with it.
Sue xx
... View more
26-05-2011
10:39
Hello fellow South East Londoners.
I hope everybody is faring well in spite of it all.
Stargazerlily- I hope your MRI comes back with the results you are hoping for. the machine is noisy- be warned.
Loula- you have finished your radiotherapy- fantastic-. How are you feeling?
Finty- It was lovely to meet up with you- lets do it again some time soon.
Judyduddy- I hope you are ok and that chemo side effects are not too mean to you. I assume that you have started.
Marnie- I have space for coffee and chat still.
I'm nearly half way through radiotherapy and my skin is still intact. Getting tired each day but still planning to run the race for life over Blackheath in July. Perhaps we could try to arrange a gathering locally?
Best wishes all,
Sue x
... View more
14-05-2011
10:00
Hi LP,
I hope you are feeling better. It is a tough business and you are bound to be upset. Allow yourself time to grieve for what you have lost. You have been through a lot. Sending you big hugs.
Donna, I had my chemo up front too but was kept in hospital for 3 days after my op. I had a mx with expander and full clearance and had drain in for two weeks! I am impressed that you will be a day case. We did have a list somewhere earlier on the thread. I swear by the vest type bras I had for after my surgery. Do ask about pain relief also.
Very best wishes,
Sue
... View more
14-05-2011
05:03
Hi There,
I used cold cap for 6 FEC and Tax over the winter. Hair loss was minimal and only towards the end, on Tax when I lost an eyebrow and lashes almost overnight. It was well worth it for me so do persevere.
Sue
... View more
14-05-2011
11:31
Hi Finty,
I'm in Blackheath for the school run and race for life walking training every day. We have probably crossed paths many times. I have read some of your posts on other threads with interest and I am taking supplements and trying to keep up my Omega 3 intake. How are you?
Sue
... View more
14-05-2011
09:59
Hi taxers,
Just to say hang on on in there. It is so hard but you will get better really quickly. I had my last tax at the end of Feb and felt well again four weeks later. I have had my surgery since the tax finished and I can say honestly that whilst it is hard now a few weeks and months down the line you will feel better.
Sending lots of love and hope everyone is back to normal soon.
Sue x
... View more
14-05-2011
09:51
Hi All,
How are you faring with your rads Loula?. How terrible to end up in hospital. I have a vague recollection that things were rough for you on Tax. It is amazing feeling well again after tax isn't it?
I've just done 3 out of 25 rads. I've got some at St T's but most at Guys. The surgery was on the 23rd March and I honestly can't remember feeling rough at all- I think I had good pain meds. I had some cording but this went away through my massaging it. My results were quite upsetting but my apical nodes were free so I'm aiming to cling to this fact. I have a good reconstruction also and feel really well. I am available for coffee/ meet ups in the area.
Judydudy have Pmd you. I hope you are faring well.
If anyone else in the area would like to get in touch please do. I'd love to hear from you.
Sue x
... View more
10-05-2011
11:08
Hi All,
LP Many congrats on the new addition to the family. That will give you a lift after this nasty business. I hope everyone else is faring well.
Juls sorry you find yourself here. This thread helped me through my mx and I don't know how I would have coped without the moral support.
Donna, sending you hugs. I was in your position having chemo first and the mx and clearance can seem a bit unreal. If you like your surgeon and trust him then ask for him. I was given a choice of surgeon and asked for the consultant who had been looking after me since dx. He was very kind and very positive too.
Best wishes, Sue
... View more
27-04-2011
02:26
Hi there,
That is rotten luck. I do hope you manage to go on your holiday.
I have been told that I can't take a break from radiotherapy. I'm having 5 weeks and wanted Whitsun week 'off' due to school hols.
I suppose it would depend on when they wanted to start you and for how many weeks you will be treated. You could always ask your BCN if the start could be delayed.
Best wishes and fingers crossed for a happy holiday.
Sue
... View more
