Hi Jane, sorry to hear you tested postive. I\'m really sorry to hear about your sister too - you must miss her. You are amongst friends here and I\'m sure you will get lots of replys. It\'s understandable that you feel the way you do. I too am a BRCA2 mutant and my mum is currently terminally ill with secondaries so I know a little of what you are going through.
I am taking anti-depressants to help with the anxiety. I would strongly recommend that you visit your GP to discuss your feelings and to see if there is anything they can help with. Also, you might like to see if you can start on a counselling route. It may benefit you greatly.
There is another site that us mutants use and those with unconfirmed status but with a strong family history. Have a look and you might also find support from here. They are a mad bunch but they keep you sane! http://www.phpbbserver.com/breastcancer/
I haven\'t been on there long myself but they make you feel very welcome and they offer great advice and support.
I\'m sure I\'ll see you around on this forum or the other one. Take care of yourself.
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Update! Hi all, just to let you know that I have joined the \'mutants\' (as we\'ve called outselves) in my family and also tested positive! It came as no great shock - I laughed actually - so much for their 50/50 1 in 2 chance. It would have been nice to have a bit of a break in the positives but then again, no surprise.
We are having our ovaries screened in January and we are on the waiting list for a breast MRI. Now my cousin and are starting the process of looking into the surgery options that are available to us.
I would be grateful to hear from any of you who have been down the preventative surgery route, having it done etc. and what you\'ve had done or decided to have done and perhaps your reasoning for it. There are so many options available its difficult to know where to start.
Look forward to hearing from you.
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I couldn\'t agree more - a good thing As a younger woman (32 on 6th November to be precise), I am more conscious than I have ever been of my changing breasts. I think the GPs and specialists alike are more worried about the \'potential wasted time\' rather than the potential \'life saving\' they can do by early detection; irrelevant of the age. My family history is strong (BRCA2 mutations confirmed); and I for one will not feel guilty for wasting any of their \'precious time\' if I have any doubts in my mind of changes in my breasts. This latest report of \'younger\' people being overworried, perhaps unnecessarily, is the best publicity. Any of us could get breast cancer - even the likes of Kylie, Anastasia and numerous other celebs; it\'s not prejudice and it holds no prisoners - no matter the age.
The earlier you detect the better - that\'s the only point that really needs to be made - don\'t you agree?
Best wishes to you all
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Thanks guys! Thank you for your posts. I have been following your posts for quite a while, Lisa. If you have arranged that \'get together\' and I\'ve missed it, it must be time for another. If nothing has gone ahead yet, well, it\'s time we arranged something. I\'m sure my cousin (who has just tested positive) would be up for a gathering.
I\'m going out with my cousin on Thursday. I think she is coping really well with it! She hasn\'t decided what to do and she is keeping all of her options open, she will have any counselling that\'s going to make sure she makes the right decision for her - which I commend her for.
I have a real determination that I\'m going to get it before it gets me (if I test positive of course) - that\'s my idea of reverse psycology on my body; \'if she\'s thinking that she has the mutated gene, blow her, she can\'t have it\'. Do you think it might work??
The way I see November 10th is, if I have the gene - so what, I already know what needs to be done (not even \'I know what I want to do\'). If I test negative, what a bonus, my mum really does not have anything to feel guilty about. Do you know she was more upset about testing positive for BRCA2 than she was about finding out about her liver mets!! She just kept apologising! I can understand her reaction (as a mother myself) but it\'s so hard to convince her that it\'s all manufactured at conception - it\'s no-ones fault!
I have thought that if I do test positive that I would like tests done (i.e ultrasound on my breasts etc.) before I have any preventative surgery. Do you think they\'d allow that? I don\'t really know why, only that I want to make doubly sure that I haven\'t got it first - to make sure the surgery is not in vein!! I\'ve also got private health insurance - do they offer preventative surgery under your policy? I know it takes a simple call to find out but I don\'t want to tempt fate!
My reasoning at the moment is that our family can\'t be that unlucky - to have so many affected by breast cancer so mine must be negative - suits me for the moment! What I haven\'t yet really thought about is how I will feel if I am negative. The only feeling that springs to mind is \'GUILT\', guilt that my mum, aunty, cousin and god knows who else has it and I\'m lucky enough not to. They\'ll all be happy for me but I will feel guilty - I think! Who knows until the time comes.
Lisa, Helen, nice to hear from you both anyway. I\'ll let you know how I get on on the 10th. One good thing is I\'m off to see the Scissor Sisters the day after (my wedding anniversary) - it can\'t be all bad!!
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Another family member! Our strong family history of breast cancer is not letting us down!!!!!! My cousin (31) was told today that she also carries the mutated BRCA2. That\'s three confirmed now, my mum, my aunty, and now my cousin. It\'s a wierd feeling, it\'s not nice to find this out but at least there is a reason for the breast cancer - a reason why the breast cancer is so strong in our family, a reason why my aunty and mum have already suffered so much.
I feel at a real advantage knowing that if I test positive (will find out November 10th) I can do something about it, before it gets me! I really feel that this gene holds the key to my future.
I have already decided that I want preventative surgery if I test positive - I don\'t ever want to find a lump, or have the constant worry of finding one, but most importantly, I don\'t want to go through what my mum has been through - and she\'s still fighting. I feel so lucky to have the opportunity to make that decision for myself.
Has anyone had the test and not gone for the results, or been reluctant to? Does anyone have a relative who has tested positive and decided against testing for themselves?
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Hi Lambster Hi Lambster
I just wanted to let you know that I really felt for you when I read your post - its hard to watch your mum go through chemo. The side affects are nasty and it is something you wouldn\'t wish upon your worst enemy, let alone someone you love.
I too am very close to my mum. She has just undergone her second chemo session (EC) but other than the hair loss and tiredness thus far she is thriving on it. I\'m almost too scared to say that incase I\'m speaking too soon but we take each day as it comes. It\'s almost like it\'s the finest wine entering her body and not chemo. She really was poorly up until the chemo. She lost her hair very quickly, two weeks to the day after her first cycle it started thinning out noticibly, by that weekend (3 days before her next cycle) she was bald in many places.
This weekend I had to do the hardest thing yet (and you will see from her profile that we have been through so much together already), I shaved her head for her. She cried, I cried, I tried to use my teenage hairdressing experience to cut it short to make it look nice but it was falling out as fast as I was combing it. I never thought I would see my mum look in the mirror with such pain and upset. Like many women she is very proud, takes care of herself and her appearance. I know how I feel if the hairdresser takes 1/2inch off more than I wanted! I just held her and let her cry.
I did this for her on Sunday morning and Sunday afternoon she came round to my house for some TLC and dinner. She was wearing her wig - she looked stunning. Since Sunday she has gone from strength to strength - wig or scarf, she looks beautiful. Every day she makes the effort to put on a little make-up and it makes her feel better.
Just keep telling your mum how beautiful she is, how much you love her and offer to help with her hair if she wants you to i.e. shaving it off. My mum didn\'t want to ask me but she didn\'t want anyone else to do it for her - I wouldn\'t of had it any other way.
Take care of yourself and your mum - stay strong.
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Congratulations and well done What an achievement Stuart, well done. You and your dad must be very fit. It is fantastic that you have raised the money for such a worthy cause.
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BRCA2 Hi Lisa
Sorry to hear that you have tested positive. I hope you had a great holiday (by the time you read this) and that you didn\'t think about it too much while you were away - although very difficult not to I suspect.
I\'m the same age as you (32 in November) and my mum has also just tested positive for BRCA2 so my turn next! We are working with Dr Tutt - from Guys I believe. He\'s coming down to Worthing to meet with my mum and I to discuss everything so we are at the very early stages. Read my mum\'s profile if you want to learn a little more about us.
It\'s a shame we have to be posting on this forum; the whole site in fact but it is reassuring for the likes of you and me who are just starting on the path of preventing this disease \'getting hold of us\'.
Whether I have the mutated gene or not, I still have a very strong family history of BC in my family so I\'m hoping they will screen me from 35. I\'ll let you know how I get on. Is it roughly two weeks that you have to wait for the results? I haven\'t even had blood taken yet so I guess it\'s the counselling stages first. Could you fill me in on your experience of the procedure from the time of your mum\'s test to yours - how long does it all take, what do you have to do, who do you see?
If this is all too much for you right now I totally understand. I hope you are keeping well.
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