Breast Cancer Now Forum

Not been on this site for quite a while. Have just logged on to find that Scaco is no longer with us. I am devestated by this news. I just can't believe that we have lost her. scaco - i never met you , but your thread kept me sane through some very bleak times of my life. RIP scaco - god bless x x x Mazbaz ... View more

Hello bigbear I,m now 43 and was diagnosed with MBC last November. To both you and Bev - there is a metaplastic site on facebook. The site now has about 140 members from all over the world. As you will already be aware MBC is extremely rare, so this site gives fantastic access to other sufferers at all stages and ages. Feel free to join us. I have got a few medical journals, but they are more related to spindle cell MBC as this is what i have. If you would like me to pass them on to you - feel free to pm me. I am away now for just over a week, but i will pass anything on, on my return. Maria x ... View more

FAB OAL, really enjoyed it! ... View more

Kris You really didn't go on! I,m glad you,ve told me about all that has been happening to you. You,ve really been through the mill. I,m going to try which ever generic drug they give me, but boy am i going to kick up a fuss if i have any problems. Maria x ... View more

SGL - hope you and your hubby can get some much needed rest now. - I,m in the same boat as you tonight. Hubby went to work at 7 this morning. Had a text saying he doesn't know when he'll be home. My Hubby is front line so i,m sat watching the tv to see if i can see him. I know in my heart he'll be fine, but i know i,m not going to see much of him over the next few days. Maria x ... View more

Phoned chemist today to repeat my prescription. i did ask her if i,d be getting femera as usual. She said no it will be which ever is the cheapest. Great! Jackwagstaff - have you had lots of different side effect sfrom these different generic drugs? ... View more

Ha ha Loooove the attitude! I think a few more of us need to take a leaf out of your book. Enjoy yourself. Maria x ... View more

Yes i,ve been using Alpecin too. It's not expensive considering you only need a little. ... View more

Hi angie I think it must differ from person to person. i had fec, finished 28th April and have now got about 1.5 inch. It is a bit patchy with some places not growing as fast as other places but now it's thick enough not to notice it. Best of luck, Maria x ... View more

Hi girls I,ve been on femera for about 4 months now and phoned my pharmacist to ask about whether it was has to get hold of. He said no - they ordered straight from the manufacturers. He just needed 3 days notice. I only get a months supply at a time, maybe untill they make sure the Se,s are not too bad for me, but upto now i,ve had no problems getting hold of these drugs. Touch wood it stays that way. Maria x ... View more

Hi Susie How far North do you mean? Christies in Manchester is a specialist cancer centre and i do believe it's one of the best in the country. Not sure how you'd go about getting a referal though. Good luck Maria x ... View more

Hi UKrose i had ct scan last week. It's the 2nd to date. I was alright when i had the 1st, but with this one i was okay when i was still in the hospital but on the way started to feel really unwell. I got home and had to go to bed. I think these injection can effect us all in different ways. Maria x ... View more

Hi Jezabel Thanks for your imput. I know what you mean about thinking after treatment it is all up hill. Ha, I got out of bed yesterday and couldn't put any weight on to my hip, i was hobbling around as if i,m 100. I,m 43! It's ok now but i do wonder just how bad this will get. Am seeing the oncologist next week - she's going to get a grilling. Maria x ... View more

Hi Just popping on to say hello to Danjo - it was really nice to meet you on Saturday. It's great to put a face to the name isn't it? Maria x ... View more

Lol Loupylou Have just found this thread. Have just private messaged you to see if you knew about the facebook site. Geanie - I was diagnsed with MBC last November. There's not really alot of info out there but the fb site is a really good start. Both of you feel free to Pm me. Good luck with your mx tomorrow Maria x ... View more

Hi flutterby I,m another from Oldham and as Vickie says there's quite a few of us. There's also a couple who live in swinton and i would'nt be surprised if they come and say hello soon. I,ve just finished treatment but can totally sympathise with what your going through. I had a mastectomy, node clearance, chemo and rads so if there's anything you need to ask - ask away! I,m sure we'll be having another get together soon and you'll be more than welcome to come along. In the mean time - look after yourself and try to keep your chin up. (i know it's hard). Love and hugs Maria x x ... View more

hi bumping up because i presume loupylou wants to meet other metaplastic BC ladies Maria x ... View more

hi project women I,ve just had a really nice chat with a lady from my gym. I want to start back at the gym but don't want to pay the fee's as i will not be able to use it to it's full capacity for quite some time. They,re allowing me to use the gym for the next 3 months free of charge .. How lovely is that ? Regarding aerobics - you don't need to use your arms if you don't feel ready for that. I,m going to use my arms for the first 5 mins then keep them by my side and gradually build it up over several weeks. I,m hoping this will be okay. I spoke to a lymphodema specialist recently and she said there isn,t anything we will not eventually be able to do, especially if it is something we did before mx. She said all exercise has to be built up very gradually but to remember that at the end of the day we still have to live out lives. I feel this was very good advice There's not really enough advice about what is meant by very gradually is there? Good luck with it Maria x ... View more

hi Mags ha ha yes i live on Firwood - i probably already know you ! Mother and Father live at campo verde. Gosh how paths cross maria x ... View more

I,ve just read the links and found it fascinating and will also be ordering the book. Thanks OAL Maria x ... View more