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vivrog
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since
01-05-2012
101
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27-01-2012
05:37
Thanks you for replying. Just back from bone scan and so now the waiting begins.
Viv x
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26-01-2012
08:08
Hi All
Not been on here for ages. I finished active treatment in Sept 2010 and currently just on Tamoxifen. Just had a check up today with my breast surgeon which included a mammogram. Prior to the mammogram he examined me and was concerned about a lumpy area around the orignal scar. I also shot through the roof when he touched an area around my ribs. He decided at this point to request an ultrasound as well as the mammogram. Results came back inconclusive and so he did a fine needle biopsy and arranged a bone scan for tomorrow!!
So all in all what I thought would be routine ended up a 3 hour trip!
I keep telling myself it is nothing but just can't stop worrying.
I suppose I just need some reassurance.
Viv xx
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08-09-2011
10:19
Hi Ange
I too have a frozen shoulder. I had WLE, ANC, Chemo and radiotherapy which finished in September last year. I developed the frozen shoulder half way through radiotherapy. I had months of physio, steroid injection and finally in July I had surgery. I am still struggling with pain and I am going back to see my consultant for a further steroid injection tomorrow. I have been told that a frozen shoulder after breast surgery is very common. I know this seems all negative but I was just talking to my physio today and she said it will eventually get better, I just have to be patient.
Viv x
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23-08-2011
06:12
Hi Ladyjag
I have recently had surgery on my shoulder (same side as cancer and full node removal.) I had developed a frozen shoulder during rads and had had no success with steroids injections and physio. I had already started to develop lymphodema before my op and I believe (as does my bcn) that it had been made worse by the lack of movement I had in that arm. I was told the risk of the lympho getting worse was greater if I didn't have the op and so it was an obvious choice.
The advice given to me was to make sure you don't let your arm become immobile after the op and keep excersing!!!
Goodluck
Viv x
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12-08-2011
10:41
Hi Jane
Thanls for replying.
The shoulder recovery time can be 6 9 months but I have to say the movement in improving already (though physio is very painful).
The onc said that the costochondritis can be triggered by exercise so I think I have to strike a fine balance when exercising for the shoulder...come to think of it...it has got worse with this round of physio. I will mention it to my physiotherapist when I go next.
I think my main problem is that I feel I have had to take painkillers for one thing or another for the last 18 months and I hate the way they make me feel....I feel a visit to the GP is on the cards.
Viv xx
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11-08-2011
06:41
I finished active treatment last September including chemo and radiotherapy. Since then I have had a frozen shoulder (caused by the radio) for which I had surgery 3 weeks ago. I have developed lymphoedema, suffering the usual symptoms on Tamoxifen and several weeks ago I started to get pains in my chest. One night I woke up and thought I was having a heart attack I was in so much pain. I saw my onc for a check up today and happened to mention it and he says I have costochonditis brought on by the radiotherapy. He said it is a known side effect and that I have to just manage it with pain killers and anti-inflammatories. He said it may just go away or it might re-occur off and on for ever.
Why don't they tell you all these things....rant over just a bit fed up!!
Viv
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25-07-2011
12:40
Had surgery last Friday...Capsular release and subacromial decompression for frozen shoulder and impingement. Woke up in excrutiating pain as cons had decided against giving me the normal nerve block duting th op as he wanted me to be able to move my arm right away because of my lymphodema. As a result I was kept in overnight (should have been a day case) because it took some pain to control the pain we anything other than morphine.
Day 3 and still taking regular Tramadol so I can do the exercises the physio gave me.
Elinda I will keep you updated regarding my progress but the cons did say it will take about 6 weeks to get back to my pre-op state and 6-9 for full recovery.
In the meantime my lymphodema has increased but only to be expected.
Viv x
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20-07-2011
07:42
Well norberte you made me laugh amidst my frustration. I have now had another phone call from someone at my local surgery to say they have sourced an nhs made to measure but it will be several weeks before I get it. I supposed I am grateful that they have finally sorted this out but I was supposed to get my sleeve in time to wear during my shoulder surgery on Friday....that is obviously not going to happen!
Viv
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19-07-2011
09:28
For a little light relief....My passport was renewed 3 months before diagnosis. The photo I originally had was with my hair really short. Over the last 5 years I had grown my hair quite long so was glad to have a passport photo that actually looked like me!! What happens I now have really short hair and my photo is me with long hair!!!. i can't win!!!
Viv
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19-07-2011
06:18
Not strictly on topic but can I ask advice? I was prescribed a sleeve (Mediven) but it caused swelling of my hand and so I was re-measured for a made to measure one. The nurse at the hospital wrote all the measurements out and told me to take it to my GP. 10 days later and many phone calls I have been told that I can't get a made to measure sleeve on the NHS. I find this hard to believe. Have others had this experience?
Viv
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16-07-2011
07:34
Hi Manny
I do sympathise. I have just been measured up for a made to measure sleeve and I took the form to my GP to write out a prescription. She phoned me back and said she had no idea what to do with!! She has now left a message on the answerphone of my lympho nurse for Monday....I despair.
Viv x
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05-07-2011
06:45
Hi Andie
Like you I have a pocket of fluid on the inside of my wrist running up to my forearm. How long does the tape stay in place for?
Viv x
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05-07-2011
06:09
Can anyone tell me what to expect?? I am returning to the lymph nurse of Friday as the sleeve I was fitted with is causing my hand to swell (no previous swelling there) My arm has also become very sore as a result of wearing the sleeve (feels bruised) so the nurse has suggested taping. What does she mean? Can anyone enlighten me??
Viv xx
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01-07-2011
06:58
Hi All
Well I phoned the nurse and she said that it could be the sleeve is too tight and very often it is trial and error to get the right pressure. She has told me to try again and concentrate on doing hand exercises whilst wearing the sleeve but if that doean't help I need to go back to her.
Tried again yesterday and though my hand didn't swell quite as much my arm got more and more sore as the day went on to the point where I had just had to remove the sleeve. Today I haven't worn the sleeve and my arm feels very sore all the way up and the skin is ultra sensitive to touch....just like after I had surgery. I will be phoning the nurse I think on Monday!
Viv xx
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29-06-2011
09:44
I have worn my sleeve today for the first time. I noticed that by lunchtime my hand had started to swell ( never had swelling there before). Is this normal?
Viv
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29-06-2011
07:29
Well finally got my sleeve and I have worn it for the first time today. Guess what my hand has swollen up. Is this usual? I will ring the lymphodema lady who measured me up tomorrow but should I take it off in the meantime??
Viv
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14-06-2011
07:38
When I had my BC surgery I didn't drink the night before BUT a couple of years ago I had surgery and was admitted the day before. I was having the operation at a private hospital and I was offered wine with my evening meal!!...they obvioulsy didn't feel there was any problem with that!!
Viv
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14-06-2011
07:30
Hi Elinda
You seem to have had a thorough examination and the problem pinpointed. I am sorry to hear that it may be hard to treat but I hope the recommended treatment works. I was told by my physio that I couldn't have acupunture in my bad side. Obviously you have had it before with no side effects. I hope you get some relief soon. Let me know how you get on and I will report back after my surgery.
Viv xx
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09-06-2011
10:15
Update
Today I saw my physio and she confirmed that I do have lymphodema in my lower arm and cording (not tendonitis). She has made me an appt with the lymphodema lady for next week. She confirmed though that I absolutely should have the surgery. Although there is a risk of agravating the lymphodema by having surgery she said there was a greater risk of aggravating it by doing nothing as the stiffness and lack of range of movement in that arm caused by the frozen shoulder is contributing to it in a major way!!
So I will get back to my consultant and ask to go ahead. In the meantime I may be getting a lovely sleeve 😞 x x
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