I had a 5mm nodule in my lung at dx it was picked up by a ct scan. It turned out to be what they think was a localised infection, i was initially convinced it was secondaries. I know it's hard but don't jump to conclusions wait and see what the ct brings. Remember we are here for good news and bad
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Thanks for your kind thoughts, Ali lets hope i can give you all some good news, keeping everything crossed. Despite my atheist views I have several prayer circles, Reiki healing groups and other assorted groups doing their thing for me. I may not believe but i will take anything going.
Well that's it last RADS over and as long as i can stay a NED it's the last time i will have to set foot in that particular hospital. All my check ups and scans are elsewhere. Don't quite know how i feel it's a bit strange, but i will be having a glass of wine tonight to celebrate.
Guess what I have also being going commando since last Friday, I even met work collegues today au natural. Don't think i can go back to wearing the wig now, it is very very very short and very dark but the good news is no grey!!!!
Dawn so glad you had a great weekend, sounds like you need a quiet one this weekend, although i suppose there's not much chance of that with the muppets. Try anyway.
Kelly it must be really tough just now, hope the support group went ok it must have been hard without Julia there. Just want to say thinking about you.
Ali good to hear from you, hope you manage to have some fun over the weekend.
Julie it must be quite frustrating having everything on hold, hopefully something will turn up. Weather looks like being a bit Cr**p here to will keep fingers crossed it's ok on Sunday for your day out.
Lynne hope your week has been ok, whats been happening.
Mel thinking about you.
Lee good to hear from you again.
Have a great weekend everyone and enjoy any eggs hunts happening over the weekend.
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Well done it's a great feeling to be getting to the end. I finish 5 weeks of RADS on Thursday. I have been on tamoxifen and Zoladex since end January, hot sweats what can i say. How has your skin stood up, I'm a bit a bit red but no broken skin so far.
You should definetely think of something nice to do with your RADs time tomorrow.
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Sorry posted that before i was finished, hit the return key.
Julie, Lynne hope you doing ok. How was the weekend away?
Mel thinking about you hope your feeling a bit better
Got a date for my MRI 25th March, must admit i'm a bit uptight about it all. I've also got a funeral tomorrow, a great Aunt, all of the extended family will be there and i haven't seen a lot of them since dx, not looking forward to it. Just hope i can get through it without getting upset.
On a positive note only 2 RADS to go 🙂 We thought about going away for the weekend to celebrate but have decided to leave it till the kids are of school in April and think we will take the kids to Paris for the weekend.
Take care everyone
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Don't know what the weather is like where you are but it's sunny here. it's amazing the difference a bit os sun makes.
Kelly great news about the care, really fancied one of those but the boot wasn't big enough. Hope you got on ok with your onc yesterday let us know how it went.
Dawn, how was the weekend, hope your not to tired, make sure you tell us all about it.
Ali, great that you went on the course don't know where you get the energy from, I'm involved in my children's afterschool club and its amazing how much time these things take up. Glad you had a nice lunch even better when someone else pays.
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We have been rather quiet, must all be busy bees. Mel haven't heard from you in a while how are you, hope the sickness is better. Everyone else hope you are having an ok day, sorry for not addressing everyone individually but my head is a bit all over the place, went to bed this afternoon for a nap but i could still sleep!!
Well i went commando today i think, not sure if it counts. I went to the opticians to get my eyes tested ( i need glasses for driving and the tele) and decided that i needed to try frames on without the wig to get an idea if they suited me with my short hair. So after i had the eye test i took the wig of in the shop, there were 3 other customers as well as the staff so i don't know if this is enough people to count and i did put it on again before i left the shop. It has given me the confidence to perhaps do it again over the next day or so.
Saw the onc yesterday and the xray told us nothing, so now awaiting a full body MRI. Must admit to being a tad worried, just hope i don't have to wait to long. I'm going out tomorrow night with a few of the school mums so hopefully that will take my mind of things, just need to be careful not to drink too much, can't handle it any more. Don't want to embarass myself on my first outing for a while.
Take care everyone hopefully speak soon.
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I'm also in Scotland and my prepayment cert expired on 3\3\08. I'm hanging of until the 1st April as the prices drop significantly details below. I found that the prepayment cert worked out cheaper for me during chemo as i needed a few extra drugs. Best of luck for the 13th
For single prescriptions the costs will be:-
April 08 : down from Â£Â£6.85 to Â£5.00
April 09 : down to Â£4.00
April 10 : down to Â£3.00
Free from April 2011
For PPCs which cover a person's total prescription costs over a 12 month period:-
April 08 : down from Â£98.70 to Â£48
April 09 : down to Â£38
April 10 : down to Â£28
Free from April 2011.
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This might sound like a silly question but here goes. I had a mastectomy and immediate LD recon just over 6 weeks ago. I have started driving again and feel safe doing so but i can't get into 2nd gear. I'm going from 1st to 3rd which isn't doing the car a lot of good.
Has anyone else had this problem and if so how long did it last.
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Just a quickie as i'm going to meet friends and then i'm getting my eyebrows waxed. Yes !! i have enough eyebrow hair to get it shaped, it feels like a real milestone. At the moment i have a Roger Moore look (one eyebrow looks constantly surprised for those of you too young to know who he is) so I'm hoping they can even them up.
Kelly thanks for your thoughts, hope it's my posture too. Saw the onc yesterday and he sent me for an xray. If that doesn't give us the answer he will do a bone scan or an MRI. Keeping everything crossed they are not necessary and when i see him next Wednesday he tells me it something simple.
Hope you are all ok today and that you are feeling a bit better Mel.
Are we still on for the 24th or are we going to look at the dates? Don't mind but the sooner i book flights the cheaper they are likely to be. Hubbie is also under pressure to go to the Isle of Rum that weekend with some mates. Says he will miss it if i'm away but if not he would like to go.
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Hi everyone, hope your weather is better than here. It has been raining really heavy all day and isn’t showing any sign of easing up, guess I’m going to get soaked when I pick up the kids.
Sorry I’m definitely a bit slack at posting these days, I promise to do better. My RADs time is now changed and I’m going for 8.45 each morning which unfortunately means an 8 o clock start, yuck. Thought with being of work things might have been a bit slower in the morning. Anyway today was number 8 so only another 17 to go.
I have arranged to see the onc, I have had a sore spot on my back for about 3 weeks now. I have tried hard to ignore it and rationalise it away but haven’t managed so guess I better get it checked out. Also have some swelling in my hand, hoping it’s not the dreaded lymphodema ( sorry wrong spelling) Must admit I’m a bit scared I wonder if it would be better not knowing although part of me thinks I’m being over dramatic and should give myself a shake. Enough of my woes
Lynne – glad you have got the Internet fixed. I can relate to your hot flushes they are so not funny. I have been taking Tamoxifen and Zoladex for 2 months now and they are horrendous. I haven’t let it stop me taking the odd glass of wine though. As you can see from above I haven’t been able to ignore my aches and pains, it’s so hard to no what to do. Thinking about you.
Ali – really glad you have finished your RADs, I imagine the end of treatment must be so scary, its disappointing that when you try to talk about it your family doesn’t pick up on it. I think people just find it so hard to understand why we don’t feel so happy it’s all over. I think the bit they don’t get is it’s not over and never will be. For me I think it’s going to be about finding a new normal, the old one will never be back. You were very brave with the IKEA trip, mine is only 30 minutes away and going there with the kids is a terrifying thought. Hope you get the other box.
Kelly – sorry to hear your new, don’t really know what to say other than thinking about you. When are we going to see the pics of Princess Daisy.
Julie – Hope you are well. Lost is just getting stranger and stranger, was that Clare’s baby that she had last night and who is the 6th person? Was good to drool over Sawyer though. Julie sorry to hear about your husband hope the interview goes great will keep everything crossed.
Dawn – Hope you are making lots of money from your eBay ventures. We are about to get our attic converted and need to clear out loads of baby stuff, any tips pass them on. Hope everything else is ok.
Sarah - how are you?
Mel – How was the break. Hope the weather was good and you had a great time.
Better go and collect the kids they were both at clubs after school, unfortunately its still raining.
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Firstly sorry that i haven't been on much in the last week or so, not really sure why. I have been reading the posts but haven't had the energy to reply. I have however given myself a shake and promise to do better.
Mel - hope things are a bit brighter today, thinking of you.
Kelly - Tomorrow is the big day, let us see the pics as soon as possible
Ali - Glad the weather has been good in sunny Norwich it make you feel so much better when the sun is out.
Dawn - have i missed it how did you get on with the onc
Lynne - where are you hope all is well
Sarah and everyone else hope you are doing ok.
I have now had my fist RADs today, hope it's not typical as they were running an hour late and that was at 9.50. Anyway haven't yet turned into the 50 foot women, maybe that come later. What i want to know is will my clothes grow with me and on whom do i seek revenge !!
I drove for the 1st time yesterday since my op. How great it was to have some freedom, now feel i can get out and about a bit more. Even went to the shops and bought stuff to make a dinner for hubbie tonight once the kids are down. Seared scallop and coriander salad with a lime and pepper dressing to start and cruchy chilli chicken with rocket pesto for mains. Pudding was bought i'm afraid three courses are too much to cook.
Hubbie made me cry this morning when he gave me my valentine card it said to "the world you may be one person but to one person you may be the world". Think he did it on purpose to reduce me to tears, only joking. The kids had made me cards to, it was to much i don't cope well with kindness.
Anyway going to go now and get some more of the dinner prep done.
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I got chemo before the op due to the size of the tumour and the risk of spread. Fortunately all the scans to date have been clear so fingers and everything else crossed. My onc is of the view that the chemo before surgery did the trick, the tumour shrunk significantly so he hopes it also mopped up any microscopic cells floating around. So no more chemo for me at the moment just the radiotherapy, 2 years of zoladex and 5 years of tamoxofin.
We are all so different that it's hard to compare treatments main thing is having faith that your onc is doing the best for you. Unfortunately for my poor onc i read lots and ask loads of questions, he has got used to me now and quite often is able to guess what i am going to ask him about.
Have you been to the hospital now and met the ps?
Let me know how you are getting on
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No problem to answer your questions
how did u find your stay.
I was on 2 different wards 49 and 46. 49 is high dependency and you will be there for anything from 2 days to 5 depending on which type of recon you are having and how you are. I had the LD recon and didn't respond to badly to the anesthetic so i was only in 49 for one night you are there longer if you have a DIEP. It's 1 to 1 nursing in 49 and they check your flap very regularly to make sure it is ok. This can be quite intrusive but the staff are really nice. I was in a 4 bedded bay and all the other women were also having recons. Ward 46 is a general plastics ward so it can be a mixed bag who you are in with, again its 4 bedded bays. The food is not great so make sure you get brought food parcels.
what was the bc nurses like
The staff on the wards aren't bc nurses but there are two bc nurses Claire and Dianne who are both great, they tend to pop into the word regularly and are a great source of info. The rest of the staff were in the main great but you do get your usual mixed bag.
how long were u in for
I was in for nine days, it really depends on how your drains are going. Each of the plastic surgeons seems to have a different rule about when the drains come out. For some it was when it went below 50mls others the drains would come out 7 days post surgery irrespective of the amount. There is different schools of thought.
did u need to come home with drains in(i am petrified of this happening as i have a boy who is autistic and he can be very rough)
They don't let you home from the royal with your drains in.
when did u let yr kids see u after op
They aren't supposed to let kids under 10 into high dependency, i didn't have to worry about this as i was only there one night. I got my op on a Wednesday and my kids came to see me on the Friday but i would have been ok on the Thursday. Another lady i got to know was in high dependency for 5 days and they did let her kids in her youngest was 8.
are u pleased with results
Yes i am. Have to be honest wasn't happy at first because of the way they had closed the wound but its really smoothing out now. Its a nice shape although slightly smaller than my other breast. I knew this would be the case and i will have an uplift and reduction on the other side to match me up.
is yr arm movement restricted
It's getting back to normal although i am not there yet. I have been doing my exercises and have seen the physio a couple of times since discharge due to some cording. I did manage to get into the RADs planning position 3 weeks post surgery.
if u drive how long did u need to wait till u could drive again
I drove for the first time today 5 weeks post surgery, they say you can drive after 4 but i didn't feel ready
The woman in the bed next to me had her DIEP flap done by Mr Mallon and she is very happy with it.
I was like you had chemo first then mastectomy and recon, my gap from chemo to surgery was 7 weeks. I have my first RADs tomorrow got 5 weeks worth.
Hope this answers your questions, anything else please just ask.
Let me know how it goes.
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Vascular invasion yep i have it to. Onc explained to me that the cancer had invaded other tissues in the breast through the vascular system and therefore could be elsewhere. I asked about the prognosis bit to and was given some hard stats but they are that stats. I try very hard to keep focused on the fact that we are all individuals and someone has to fall on the right side. I also keep reminding myself that stats are based on past data and therefore past treatments and things are moving on all the time. Don't know if any of this helps but it sometimes helps me when the panic sets in. However having found myself in the dark place several times i realise that sometimes nothing anyone says helps very much and we each need to find our own way (with lots of support) of getting through it.
I have heard of Herceptin with chemo it seems to get very good results if you are HER2+ can't get it with FEC because of effect on heart function but is ok with Taxotere
Everyone else sorry i have been absent promise to post tomorrow
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I had a Muga scan before starting chemo, i agree with ruby it wasn't anything to worry about. I had to go to the nuclear medicine dept for mine as i was injected with a radioactive substance. They need to do this so your heart function shows up on the scan. After i was injected i was sent away for an hour so it could circulate round my system. The scan itself just involved me lying still for about 20 minutes.
The only side effect was that i was advised not to let my kids cuddle up to me for 24 hours as young children were more susceptible to the radioactive substance they had injected. Kids thought this was funny and wanted to know if i would glow in the dark.
Best of luck
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Wondered if anyone had any suggestions to help with cording. I had some cording in my arm after chemo, but since i had a mastectomy and recon with full clearance 4 weeks ago it has been much worse. I have been doing the exercises i was given by the physio to help with this but they haven't made much of a difference. I can't get my arm straight and its making my other exercises more difficult. Due to start RADs next week so keen to do what i can.
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Welcome Sarah it's great that you and Mel have kept in touch. On Tuesday i met up with a wonderful lady that i had met in hospital, i was a bit apprehensive that we would run out of conversation, but 2 hours later we still going strong and we had a laugh. Think it does us good to be able to laugh and cry with others in a similar situation.
Mel so sorry to hear about more chemo and that you felt a bit down getting the dressings of. I have found my scars a bit easier to face over the last week but still don't like having to go in the shower. Just try to think of the extra chemo as an added bit of security. I only managed to get 5 of my 6 FEC and there was a debate about giving me more chemo after surgery but they have decided against it. Part of me is so glad as my hair has started to come in and i'm feeling better but another part of me is really scared and worried that getting more chemo would have made a positive difference. At the end of the day i have to trust my onc otherwise everything becomes unbearable.
Everyone else hope you are having a good day, don't know what your weather is like but its gales, sleet and snow here with heavy snow forecast for the weekend. Dawn if you had been up this weekend i think you would have gotten the snow you were looking for.
Had RADS planning yesterday, i was really worried that at 3 weeks post surgery i wouldn't get into the position but i managed. Can't say it was particularly comfortable but i have another 2 weeks before RADs start. I now have three very small tattoos and lots of pen marks, no low necked tops for a while!!.
Anyway got to go i have appointment with plastic surgeon this afternoon, i WILL be quizzing him about the look of my recon. Also got to be drained again i think. What an exciting life i lead. My big bit of excitement at the moment is waiting on my prosthetic nipple coming through the post. Have to admit OH came with me to get measured for it and we had a real laugh. He wanted to know if he could have a couple of spares, won't say why LOL
Anyway take care everyone.
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Hope you are all having a good weekend.
Dilys good to hear that you are ok; we were a bit worried about you. Drop in on us if you feel able.
Dawn hope you have had a restful weekend with the in-laws. I agree the weather up here has been wild all weekend, rain, wind and more rain and wind. I have been to Falkirk for work but not much else. Keep meaning to take the kids to the Falkirk wheel but have never got around to it.
Mel great that you are home, hope you are being waited on and keeping up with the exercises. As for the softie I can imagine, I got one when I was discharged as recon is smaller that the other side but I haven't used it yet been a bit tender. My hubbie has worked from home this week to look after me and help with the kids but goes back to the office on Monday. Mixed views on how I feel about that. Who is around to take care of you next week, or are you going it alone?
Julie hope your herceptin goes ok next week. Sorry you haven't been having the best week, I agree with the others that people start to make assumptions when we start to look well on the outside, think it make it really hard for us. Hope the bathroom gets finished, we were really lucky and got ours done a couple of years ago when we were on holiday, came back and it was all done. Planning to do that with the loft this year, eldest wants it as her room. I
Ali great that you are getting things sorted with the cleaning; it's the best money I spend all week. Well done for pampering yourself, really good idea might copy you on that one when I’m out and about. Got a voucher for my birthday last year that I haven't used yet.
Kelly hope the golf lesson went well and you got out for a few drinks as planned. Think you are right to take your time with work. I worked through my chemo which felt right at the time but I also think avoided me having to deal with stuff that I’m having to sort through now.
Well I was a bit disappointed with my new boob when I got the dressings of on Thursday; it looked good with them on as it covered where they had closed the breast. I think part of the problem is that they hadn’t planned on doing it that way before the op and I hadn’t seen any pictures of one closed with a purse string so I didn’t know what to expect. Know that I should be grateful I have got something but I just want to cry any time I look at it. I am back at the hospital on Thursday to see the plastic surgeon so I am going to talk to him about it hopefully without getting upset.
Sorry if i have forgotten any one.
Also saw the psychologist at my local Maggie’s centre on Friday for the first time. Spent most of the hour in tears but I was able to be really honest with her about how I am feeling. Meeting with her again next week to start working through some of it.
On a positive note I can now get my arm behind my head with my elbow out to the side, can’t hold it for long but I still have a few more days to practise.
Anyway got to go and get kids sorted
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