Had my results re sentinel node biopsy two days ago/ The results were good. No spread at all. Hope all goes well for you too. I also had my lump removed at the same time, which also has caused me no problems or pain at all. I know it was a small lump compared to others here, and I was lucky it was just above the nipple so the cut missed it, but there was so little pain in that area afterwards it was quite unbelievable. Had the op on the 9th. Last bit of the scab fallen away today and scar can hardly be seen, even now at this early stage.
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I was very interested to read your post as it is a decision I have started to look at myself.
Last friday,(9th November 2012) I had a Wide Local Exclusion/ All went well. I havbe had no problems and have very little pain, but I know that I will soon be told the next step is radiotherapy. I use the word 'told' because that is exactly what happened when I was diagnosed. I was told what would happen, and, just as I was getting over the shock of the diagnosis, news reports proclaimed that in the next few months plans were to be put into place that women were to be told all available options, etc.
My concerns have been about the quality of my life (both in respect of radiotherapy and hormonal treatment side effects) and the fact that I cvan find very little evidence about whether having radiationactually stops the cancer coming back or not, or whether the treatment itself sets me up formore cancer (possibly at different sites) in the future.And then allthose hormones for five years?? For the last ten years I have suffered from Chronic Fatigue Syndrome(CFS). I have been told the fatigue I might experience is likely to be more intense and long lasting than for women without CFS. Im afraid that I consider that whilst it might be 'do-able' (A word I have often seen used on these pages), its not actually what I want for the next two to five years of my life.
And whilst I was struggling with this new awareness that I could actually refuse radiotherapy (a concept I hadnt given consideration to before, and which stopped me feeling fearful and powerless and out of control) I heard about Salvestrols and researched about them. That swung it for me, totally.
No way am I going to have horrible radiation put into me which could, in itself, start a new cancer in the future, when INSTEAD I could take concentrated plant extract which has been proven to work in many documentated case studies of cancer, but cant be 'advertised' or promoted (as pharmaceuticals are) due to the lack of money available for clinical research for natural remedies. How ridiculous it would be to subject myself to radiotherapy when there is an alternative I could use?
I stress this is my own decision. Its not a suggestion that others should do what I have decided to do, but it does actually fit into this thread and is another perspective.
I dont actually mind having a breast removed (in the future) if necessary (my goodness it would be a million times worse if I had a leg amputated, or similar), but I do mind struggling for the next few years with extreme fatigue and all the side effects of the treatments I have been advised I will go through, and my quality of life being damaged by that.
I am not suggesting that anyone follow the decision I have made, but I would strongly suggest that if you are considering this issue, then some research be done by you (and any others) on these.
Good luck to everyone in their own personal struggle, and I am aware that each persons decisionsthey make for themselves is dependent ontheir own particular circumstances, the type of cancer, the prognosis, etc.
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Chin up hun.....it will be up and down a bit for the next few days for sure, but eventually you will feel more balances.
I was where you are now, with the same diagnosis, one week ago. Waiting for op 9th November where lump and sentinel nodes will be dyed and removed to see if spread to lymph nodes. The feeling of being in shock is really wierd isnt it...you go about your normal life, trying to reassure others, but knowing everything will never be the same again.....and it tookme some days to even realise that was happening......its ironic that its cancer awareness month.....Im watching tv programmes and its suddenly a shock that I am one of those people the programmes are about.
I have found this site extremely useful, especially when I wake up and 'remember'. Thats when its worse for me, but then I go on this site and its calming that so many of us are here in this together, in a way. I also think the tears I cry when I am on the site (mainly for others stories and bravery) are useful to me. I find that after crying I can get on with the day, but also be reflective rather than panicking.
As everyone else has said....baby steps, as its all waiting around for tests and results and it really comes home that every womans situation re medical care is very individual.
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It seems a lot of people are in the same position I am...waiting for WLE op on 7th November, expecting Sentinel Nodes to be removed and results following on from their re possibility of further surger to remove lymph nodes, etc/or simply (?!?) Radiotherapy.
I have read many posts in quite a few forums and have found them useful, especially "in the wee small hours of the morning, when the whole darn world is fast asleep", when I have felt scared. As Ive read the forums Ive cried at the experiences of some women, and also been heartened by those of others. I also appreciate the advice given...it has helped enormously.
I am just beginning to understand the wisdom of taking it one step at a time....at the beginning I wanted to know everything about everything, but as the days have passed since diagnosis, Ive understood that whilst information is useful, the immediate situation is more important. I still have loads of questions about the future treatments, and at this point am scared stiff about the possibility of having to undergo chemo....ironically I dontcare much about having my hair fall out.....quite happy to be bald with no eyebrows for a while......my friends would say it would be no more wierd than I am at present (lol). I quite like the idea of having one of those strip material hairbands with a couple of flowers on it. The sort that children wear). Or a bow. That might be quite cute.
Im currently getting my head round the idea of permanently being a statistic re disability, and my choices re that issue and employment in the future.
Thanks so much, everyone, for your input here.......Im sure its helped so many, and has certainly helped me.
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