Hi ladies,
I have returned with the first double dose completed AND I didn't have to be dragged out the door. Hooray. Hoping not to jinx myself but so much better on CMF so far, as you said I reallly feel more like myself and bald patches have hair of half an inch already, so heading for a pixie cut before too long I hope. I am having mad visual disturbances occasionally which I have to talk to the onc about.The first time I was 12 miles from home and going 60mph when the windscreen startedto wiggle around, flickering wentMum's and broke the journey into short parts when better. It was like I imagine an acid attack would be, but have no experience of drugs so that may be wrong. After I got to Mum's I lost the whole ceiling and could not see anything over my eyebrows. Thought I might check in at opticians incase of glaucoma but could be stressor migraine apparently. It came back for 3 minutes today when Oh rushed me before we went to the unit. Apart from that a delicate tummy but just having to be careful rather than big problems so far. Will be very happy if I manage to keep it like this throughout. Here's hoping! I do get a reaction on the last part of the CMF each time so have to have it in a drip and even got it back today after that change. I have to have the last tiny part of the C dripped at the slowest pace or go faint and terrible pains in my nose and head. Today I shouted stop early so did not get into the state I was last week and then carried on fine.
Sukes well done for not going in. Do you have rads next? Liz you wre right it is 21 days until I go back. My last one will be end of Nov, what a long way to go. Keep bouncing along and hope you stay well
Lily x
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