Breast Cancer Now Forum

Hi Anne I'm just curious that you refer to treatment cycles on this drug combo. I am taking mine continuously. Have had to reduce the dose of Everolimus to 5mg due to mouth soreness. Am very careful with mouth care. Use a super soft toothbrush and use a fluoride based childrens toothpaste as it is milder in taste. ellenb ... View more

Hi Mo I have my drug through a PICC line. Tend to get a mild reaction to the drug a couple of days after treatment (abdominal discomfort). Tired nearly all the time. I have multiple bony mets and liver mets at present. Hard to say whether symptoms are due to chemo or disease. Blood count stable. First CAT scan on treatment indicated stable disease whereas I had had progression on all previous treatments. However I am a little sceptical re scan results . Have to rest for 2 hours each afternoon. Have stopped driving since I commenced chemo and don't go out and about unless accompanied. However we have been on holiday twice whilst on treatment (short breaks and I always take out insurance). My main moan is about my PICC line which seems intent on dislodging itself. Am on my third line now. Just wonder if anyone else struggles with this. Every time my dressing is changed I am apprehensive it will dislodge further. Moved 1cm last week during dressing change. So on balance Epirubicin has been better for me than the previous regimes. Ellen ... View more

I am having weekly treatment with no break. However there is a dose limiting amount that you can receive due to possible cardiac toxicity. I will only be able to have 10 more doses then must stop. If my CAT scan shows progression I will discontinue it sooner. Ellen ... View more

I am due to start Denosumab in 2 days. My consultant warned me that I was likely to have flu like symptoms shortly after my initial treatment but following future injections these symptoms were unlikely to occur. She also said I would be on a 3 monthly regime. Hope this helps Ellen ... View more

I have taken two courses of oral chemo including capecitabine. Had disease progression so commenced IV treatment. Progression on first treatment and also unable to tolerate the regime.Had bad reaction to next IV regime. So I believe the weekly Epirubicin was suggested to reduce side effects. Like you I have found little information on the internet. I am coping with treatment, though have usual side effect of tiredness.My hair appears to be regrowing having lost it on previous treatment. Struggling with loss of appetite and am very picky about food but this maybe due the cancer rather than treatment. My blood count has remained stable. Please contact me if you have any more queries. Ellen ... View more

Thanks for the information. New to forum and hadn't spotted relies were going to spam folder. Off treatment at present as too unwell. Liz ... View more