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dancingqueen
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01-05-2012
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08-10-2013
03:55
I am just waiting for my BCN to return my message about this. I have been in a peri-menopause for 4 years now and i'm under a fertility expert about it. I'll see what the nurse says. I have a follow up appointment with a fertility doc end of this month so i'll mentioning it. It's such an emotive issue for me, i almost wish i never saw these articles! Thanks for the replies. Took me a while to find the thread!!! mx
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07-10-2013
12:58
Has anyone else noticed this story of the reawakening of the ovaries for those who have gone through a menopause too soon? Chemo has done that for me and has been a very difficult issue as i don't have children. Has anyone aksed their oncology teams or breast care nurses about this and wether or not you would be suitable for this treatment. Here is the article; http://www.nhs.uk/news/2013/10October/Pages/Ovaries-reawakened-potential-cure-for-infertility.aspx mx
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08-01-2013
11:21
Hi all,
I am confused about my fertility now because i am having a period after being told in April 2012 that i had gone through menopause! Doc said i'd never have kids (i dont have any either)after i had 2 blood tests a few weeks apart to confirm.My eostrogen levels were in my boots and so i have had to accept that i am through menopause and will never have kids but how come i am having a period now? The pain as well is like the worst periods i got as a teenager and i feel like hell.
I was 36yrs diagnosed with triple neg invasive duc cascinoma in 2009. Had chemo,masctectomy and radio. Periods stopped after first FEC. About a year after treatment i had signs of periods coming back and little bleeding and then nothing until April last year, i insisted on blood tests as i had migraines for 16days in one month when i usually get them 2-3 times a year! I knew it was hormone related which is why i insisted on the blood tests which then confirmed post menopausal state.
It is all so confusing. Periods are the eggs that have not been fertilised but if i have no eggs left how come the period?!!!
I don't know how to get the best information about this or where?
I totally empathise with you all.
mx
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10-12-2011
06:19
We have the worst of all worlds,period symptoms one week then menopausal ones the next!!!!
that bloody cancer has alot to answer for 😉
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10-12-2011
06:15
Thanks Alice,
i am going to leave it for now and see if it settles in the next 6 months and see how it look then.
i have been focussing on it alot which makes me unhappy but trying not to think about it.
mandy x
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24-11-2011
12:16
Hi Thanks Jo,
I have been thinking of calling BCC but just haven't really felt like talking about it. I know you guys are there when we need you 😉
mandy x
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24-11-2011
12:09
Hi,
I was diagnosed jUNE 2nd 2009 aged 36,started chemo 25th June.I had 4 x FEC and then 4 x Taxotere and i still havent started my periods.My periods before were regular as clockwork. i get the symptoms every now and then of period pains and sudden low mood but no period. When i dont have period pains i have menopause symptoms of hot flushes and night sweats!
Not sure if they will ever start again but i live in hope as i have no children ;-(
Oh and i am triple negative so no hormone treatment.
mandy x
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22-11-2011
02:49
I had the LD flap done on Aug 5th this year and i don't like it. My surgeon got very funny with me when i didn't look happy about it and says there is nothing more he can do. Im devastated i looked forward to finally having a new boob to match the other for 2 years and now i cant even look at it without wanting to cry. What do you do if all your hope has gone. Mine also looks like half a grapefruit stuck on my chest where the other normal one droops and looks fabulous asd i had it reduced because i could never have matched the mastectomy side to a size 32f. The implant behind the muscle is round,i wasn't shown any other types of implant. Were any of you shown any pics of your surgeon's previous surgery? I asked but was told it wasn't possible as they didn't have any.
So gutted,especially being only 38 and single.
Thinking of going for a private consultation with a top surgeon, but no idea how much that will cost,anyone know?
mx
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30-08-2011
07:20
Such lovely comments about Claire 😉
There is an obituary on the Manchester eveing news online in the memorial section. It gives details of the funeral and who to contact about donations.
She was a brilliant,vibrant shooting star who was with us for too short a time.
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27-08-2011
04:17
I met Claire through Bcc's young women's forum in Warrington in Sept 09, we became friends and went through our treatment together along with anothr friend of ours. We were bald together,we celebrated the end of treatment together and then we all cried and felt sad when her cancer spread eventually ending up in her lungs.
I am still in shock and the waves of grief are so overwhelming. I just can't believe i won't be having one more brew with her to discuss our day. No matter how badly she was feeling especially when she started getting breathless she always asked me how my day was. I lived with her for the last 6 months while doing my nurses training and she was so strong.
I will miss her so much,she will never be forgotten.
However sad i feel i am so happy i got to be friends with her and have had her in my life.
She was loved by so many. Sleep peacefully my wonderful friend x
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15-08-2011
11:10
oh thanks ladies.
i had a delayed recon which i waited a year and a half for so i could fit it in with my nursing diploma holidays. i had full node clearance with mastectomy in dec 09.
i will check out that LINK for some exercises too 😉
It is just so frustrating not to be able to get around and do the things i normally do,especially playing with my niece down the park i have to stop myself picking her up to get her on the swings!!! I am being careful.
i NEED TO GET TO M&S,i went shopping other day and tired a couple on in primark but then i was in alot of pain so didn't get to go onto Marks but i will do soon as i can.
Thanks again
mx
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14-08-2011
05:44
Hi this is just the post i have been looking for.i HAD MY LD FLAP WITH IMPLANT ON fRIDAY 5TH AND FEEL so many weird sensations. i AM REALLY MISSING THE muscle in my back,when i walk around after a while i have to put my hand in the place where the muscle was as almost to support it.
What exercises are you doing? when should i start swimming as i am so anxious to get fit again because i start back on my nursing diploma in 4-6 weeks time and must have full mobility in my arm,is this unrealistic?
i feel like there is constantly a rolled up newspaper under my arm at the mo!!
any tips on what sort of bra support you are wearing too. i KNOW not to wear underwire bras for a long while but are non wired ones ok,are you supposed to wear them at night. i DIDNT ASK ALL THESE QUESTIONS WHEN I LEFT THE WARD and when i called up i spoke to a nurse who didnt really seem to know what to advise.
mandy x
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03-11-2010
09:56
Hi
Im in Lancaster this weekend,is anyone around to meet for a coffee or glass of wine?I am coming up Thursday night and so could meet Friday during the day.
Would be lovely to meet some of you
mandy x
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29-09-2010
02:24
Hi Tina,
Im in Wigan but looking for place in Manchester for university. I had my reduction surgery in Liverpool Royal in May,to reduce the size of my remaining breast which was too large for me to deal with.
Whereabouts are you in your treatment or have you finished?
mandy
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28-09-2010
08:36
Hi,
I am 37 and a triple negative.I finished all my treatment including chemo(4xdoc & 4x tax)mastectomy,node clearance and radio in April this year.I was ok for a few months just so happy treatment was over but then the seeds of doubt and worry started to take over.I had a pain in my ribs which i was convinced was cancer but had a bone scan last week and was completely clear. I try to keep busy and being back at uni studying is helping and organising a party to raise money for BCC has helped too. Some days thou i just feel like it is all gonna go wrong and my life will be cut short and my fertility will never come back but mostly i just try to enjoy life as much as possible now.Meeting up reguarly with others in same boat helps alot.I am a little more fearless now about some things in my life because i feel like what the hell dont put anything off anymore!!
Anybody in the north-west area?
Be good to yourself when you feel down we have been through hell,like a battle it will take time to adjust but we deserve a huge hug after what we have been through.
mandy xx
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28-09-2010
08:14
Hi all,
I am always in Lancaster and funny to read that you are going to the Water Witch as after my first chemo last year 25th June about a week later i was staying at my brothers for the night who lives in Hest Bank and my temp went up and i ended up in Lancaster Royal.After 2 nights due to severe neutropenia my brother walked me slowly to this pub for some chips!!!I live in Wigan but spent alot of my time in Lancaster while on chemo which finished Dec 2009. I would have joined you for lunch on the 4th but i have lectures that day.I have just started back on my nursing diploma at Manchester uni.
Maybe we could meet up another time as it would be nice to know some people there who are going through what i just recently went through.
I am 37 and currently waiting to see when i can have reconstruction.
Hope you have a lovely lunch anyway
mandy x
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28-09-2010
07:45
Hi,I am 37 years old and had IDC triple negative.I finished chemo 4x Doc,then 4x Tax in Dec 2009 and since then i have not been able to shake off what i think is tendonitus in my wrist.It has gotten worse in the last 2 months and i am worried it is going to effect my nursing diploma i just started.Anyone else had this?I am convinced it is something to do with the chemo but why and how??
mandy
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06-08-2010
11:02
Hi,
I do dragon boating in wigan and have also done it in the Lake District.I went surfing for the first time last week and i finished my treatment in March 2010!Had a reduction on my ok side in May 2010 as felt i was too big especially after right mastectomy and go cycling too and have been swimming.I do get very tired but love the water and have discovered all these things since having had breast cancer.I want to sail too at some point.
mx
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17-03-2010
03:20
Hi Anne,
Thanks for youe message.I have just finished radio and have to wait at least 6 months for recon which is frustrating.I am a 32E and so my other boob is just so heavy and i cant find a non wired bra that will give me the support i need for the other boob.I have a sports bra but it digs in too much on my radio site so i have had to stop wearing it.Im dreading summer as i dont know what i will wear as im used to vest tops which would be impossible now.
As for relationships i just think that i will have to meet somone who already knows about my cancer as i cant bear the idea of that conversation that starts with i need to tell you something!!!
It's certainly not easy for us all but i guess we are all making the best of it.
Bolton is just up the road from Wigan.
Mandy x
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12-03-2010
10:28
Hi ladies,
I was diagnosed 2nd June 2009,i am triple neg,IDC.Just finished my treatment last week and finding that now i have dealt with the physical symptoms i have the emotional ones to deal with.Mostly scared it will come back or that the treatment has not worked completely.
I understand the whole body image is an issue.I am 37 and single which is hard because anyone i meet now will have to know at some stage that i have only one boob,how does that conversation start???Make jokes first?That's what i normally do.I really envy all you who have amazing partners who love you for you and not just for what you look like.I tend to avoid contact with guys now which is a shame because i would love to have a guy at the end of each day to hug me and say he loves me.
Im looking into starting swimming in the next few weeks and i am going to start cycling too.I am positive most days but then just wake up and don't feel positive at all.
I find the support groups help such alot as we can never stop talking about our experiences and you really realise you are not alone.
Anyone else near Manchester/Lancashire who wants to start walking or cycling????
mandy x
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