Breast Cancer Now Forum

Good news, there was nothing in the other area so am booked in for wide local excision a week on Monday along with removal of some lymph nodes...then at least rads, maybe more. So no mastectomy for the moment. Bad news is I definitely have to stop my HRT (had hysterectomy and BSO last year) so menopause here i come. thanks to everyone for your supportive comments. It means the world. Di x x ... View more

I have the oral thrush, using Corsodyl Daily and Difflam MW several times a day. My hair is growing quite well. It nearly all fell out with Epirubicin. No on told me it might not grow back - hope it stays! Am on day 5 of 5th Docetaxol (Taxotere) and feeling delicate. Started GCSF injections today, hate them but hey seem to work. One more cycle to go then MRI scan and talk about what next. At Ultra Sound Scan a few weeks ago it seemed to be reducing the Tumours in my Liver, so here's hoping for more reduction and time off the chemo. I get breathless going up a longer than house size staircase and lifting things. Does this go? Good luck with the wig smiler, I have never found one I could wear and people have got used tome now. I used scarves, but others find wigs easy. best wishes everyone gill ... View more

Hi Lou, I have my honey and as I have been taking manuka honey for the last week and its improving they say I am hopeful that it will get things moving. Bit worried as its smelling worse each time I have the wound dressed in the last week but they have taken a second swab and I am going to chase the results this week as I dread it developing into something I can't fight with the chemo due this week. My skin around the wound and also extending under the arm is red and unhappy so am going to keep fingers crossed too! I hate the idea of maggots too, big stylie, ugh, eek, puke, argh!!! But this far down the line (and swimming and lovely looonnnng baths being a distant memory for me too) I am getting to the stage where I am willing to consider anything (the wound is still about 2 inches across by 1 inch wide) and as chemo makes me feel so ick I am hoping if i do have to have it they can coincide it with that so I won't care!! I am not sure if what i have is necrosis. The skin is red but ok its inside the wound where the dead yellow tissue is that wont shift but there is also granulation and bleeding which are signs of healing. Every time I move on I get zapped with chemo every 3 weeks so its an uphill struggle! I know what you mean re smell, the wound combined with night sweats and inability to wash properly means I am afraid I constantly humm (pardon the bee pun!). I really really hope for you that you will be fully sealed by weds. Bath night nearly there! I will be thinking of you!!!!!!! Keep in touch, xx ... View more

my doctor did check both breasts but still thought it could be hormonal in the one breast- dont know if that helps. I think I knew something was up as I had never had any hormonal changes any other month and I was checking my lump every day for the slightest change and nothing did. I think the lump can change depending on when you have your period if it is hormonal and thats why they ask you to wait a few weeks. Even if it is nothing to do with hormones it could be many other things. If your worried though I would go and see the lady doctor on tues- she might tell you the same as your regular doctor but I cant see you have anything to loose by paying her a visit x ... View more

Thanks everyone for your very interesting posts. It does seem indeed that we are all very different. I am hoping now that the hot flushes will stop, I am still having periods, so hopefully the menopause is a way off yet. Thanks ... View more

I'm in! xx ... View more

Hi JULES51, glad that you found a way to take Manuka without thinking you are eating a "whichety grub" lol. Do not want to put a 'damper' on this, but it seems that putting any Manuka + (plus) honey into hot water can make it loose benefits? I am not 100% sure about this, but have been told from many different (reliable), sources that this is correct. Apparently other non + (plus) honeys are ok to be taken with hot water. ... View more

just to add to whats ben said im also 24 and was diagnosed ths year. but to reassure you i have a sister who has always complained of finding lumps in her breasts and not long after i was diagnosed she found another one. it turned out to be nothing and it also turns out i dont have the BRCA gene. it is scary, and its definately the right thng to be checked out, but try and keep sane - chances are its nothing xx ... View more

Would that my husband was behaving oddly! LOL! ... View more

Hi All Thank you fo r all your replies - they made me feel much happier. I got my 3 year mammogram brought forward to yesterday as I got myself in a right old state and thankfully it was all clear! Feel over the moon today but am expecting to have another worry by next week . . . . .it's crap isn't it! Good luck to everyone Alise x ... View more

Hi Horace, I am also not over weight (not yet anyway but I will be very soon I know) my oncologist was saying my tumour has not shrunk so thats why I needed stronger chemo , also he did say 4 fec x 4 tax but this week when I went to have my treatment he was not there so I had to see another onc and she was confused took her so long to decide what to do, consulted some other oncs and she said 3 tax, which I was pleased but in other hand I am worried if this is not enough to clear the cancer cells. I also believe and thats the case with tax it cost more and probably much stronger side effects and so they try FEC and some other first and , I have been reading many ladies with FEC a lot of problem not doing it is job properly as tax. I am having my first tax tomorrow and I also sailed through fec easily done , but very very scared with all the horror side effects with tax, like nails and extra aches and pain. Good luck to all ladies on any treatment you are going through , it is horrid but we will be much better by May, thats what makes me happy these days dreaming all the things I want to do when spring comes and all treatments are over. I want to go running in the park , start playing tennis, swimming , weight lifting going to gym 🙂 beautiful new hair ( hopefully if ever shows up) etc etc ... hmmm so when I think this way I don't feel to guilty when I am nibbling on food all day long 🙂 All I am worried will I have the energy after all this chemos , I hear it takes years to get rid of tiredness. Best wishes and sweet dreams Gul xxx ... View more