Breast Cancer Care Forum

Well , going through scanxiety again or to be correct biopxiety !!! Beware long post .... LOL    I was concerned about some marks on my back , so rang my oncologist , who has always said the rads have an entrance and exit point ie.on your back . Unfortunately only saw his registrar , who said he thought it was nothing to worry about .   A couple of weeks later on the 27th July , I had my annual check up with my breast surgeon , so mentioned it again ....he said he  thought it it was nothing to worry about either , but would do a punch biopsy to put my mind at rest and draw a line under it .    After a couple of mix ups over clinic appointments , turned up , but no results !!  I saw him last week 24th August and he explained that the results said it was not sarcoma related , but they were not happy about them,  so were passing them on to Dermatology and will see me again in 4 weeks after they come back and they have another MDT meeting .    So another 4 weeks of anxious waiting to find out what they might be ..... just needed to get this off my chest ...what is left of it . LOL .    Hope everyone else is coping well with treaments etc.  Hugs, Jill xxx ... View more

Hi Lyndsey ,    So sorry to take such a time to reply , I don’t visit the boards as often as I used to . I really hope the biopsy came back clear and your pregnancy is progressing well .  My bruising certainly got worse with time and progressed to very red /purple lumps and lesions ..... I don’t know if everyone presents with the same symptoms . When it metasticised to my right breast , I just had a painful lump and NO bruising .    Really hope things have turned out well for you , please let me know how you are doing . Love and hugs , Jill xxx ... View more

Hi Skye ,  So sorry to take so long to reply , but I haven’t visited this site for a while !  I am really sorry to hear of your mum’s diagnosis , her symptoms sound similar to mine . It all started with a bruise , which did not heal and turned to purple lumps and spots.  Luckily my breast surgeon was on the ball and asked for a skin punch biopsy which confirmed the AS !!  Things will have moved on for your mum by now , so hope she is coping with her treatment and the CT scan showed no mets . Do keep in touch and let me know how things are . Hugs, Jill xx ... View more

It is with greatest sadness that I have to report that this hideous disease has claimed another victim .    Sadly tat4tit lost her battle with Angiosarcoma last month . Many of you will have been supported by her wonderful sense of humour and wit on these boards , I know I was . Will miss her so much .   Fly high Tat . FUAS .     Hugs, xxx ... View more

Hi Ali49,   I had breast cancer in 2008 , wide local excision , followed by 6 months chemo and 3 weeks rads , plus 5 years Arimidex as treatment . Then 5 years later in 2014 I found a bruise on my treated breast , mammogram and ultrasound said no probs ( so wrong) but luckily my consultant was on the ball and had a skin punch biopsy done . I was then diagnosed with radiation induced Angiosarcoma , an aggrsssive cancer of the lining of the blood vessels , caused by the radiaton treatment. Very rare , only 1% of folks develop this , but it is growing with the use of more breast conserving treatments .When the main treatment was mastectomy , it was unknown .     I had a radical mastectomy in Jan 2015 , but it metasticised to my right breast within three months , so in June 2015 had a second mastectomy . It is so rare I have to be treated by a specialist sarcoma team ,  most medical staff have never even heard of it , let alone treated a case .  I have the regular chest x-rays because the next expected mets would be in my lungs !!! I have been clear for 1 year and 5 months now , so hoping it continues .    Hope you are keeping well .    Hugs , Jill          ... View more

Had my four monthly chest x-ray and check up with the oncologist on Monday . He was pleased with the look of my scars and said they looked good to him  , which was great .    It is now almost  two years since I was diagnosed on Christmas Eve 2014 , after a terrible period of recurrence and mets ,  I have been stable for 1 year and 5 months , so he has moved me on to six monthly x-rays and check ups , which is fine by me as it means fewer rads for my body to have to handle and rads caused all this in the first place !!!    I mentioned that I have a swollen and very painful finger ( stupidly worried about bone mets ) so he was really lovely and said he thought it was only osteoarthritis , but would have it x-rayed with my chest to put my mind at rest . So just need to wait for the results now .   Hope everyone else is keeping well and coping with treatments and side effects .   Hugs, Jill xxxx ... View more

Thanks Bibi , it was a great relief !! He has been my rock , whilst I have been through so many cancer treatments , breast , thyroid and now Angiosarcoma , really don't know what I would do without him .    Hope you are keeping well , and coping .   Hugs, Jill xx   ... View more

Just keeping my thread alive , so that this awful disease remains prominent and people are aware of it !!    Good news after my hubby's CT scan , NO cancer to be seen !!! Yeh !! However he does have a small pulmonary embolism , which they presume has broken away from the larger clot in his leg !! Hopefully the blood thinning drugs will sort both of these in time . Meanwhile he continues to impersonate the Moulin Rouge dancers in his black stockings !!!    Hope everyyone is keeping well and coping with treatments .   Hugs , Jill xxxx ... View more

Well my OH has had his appointment at the Clot Clinic and was told as his clot is unexplained he will have a full CT scan as it could be caused by an undiagnosed cancer !!!    So back on the scanxiety treadmill . Wonder if we will ever get off ?    Hope everyone else is keeping well and able to enjoy the BH tomorrow .   Hugs, Jill xxxx ... View more

It is actually called the VTE Clinic Tat , just my sense of humour renamed it the ' Clot Clinic ' . LOL. The hospital rang on Monday to say he has an appointment  on Thursday 18th . Not within the said two weeks , but at least he has an appointment .    Things went quite well on Saturday , well,  as well as could be expected . Saw the new Breast Consultant , who was really nice and sounded as if he knew what was what . Said scan showed it was an ecapsulated haematoma , which meant that the fluid could no longer be reabsorbed into the body , but just became solid forming a hard lump .  Said normally they would operate to remove , but that as mine was so large and covered such a wide area , he was reluctant to do this as he felt they would have difficulty removing it completely and I could end up in a worse situation , with more swelling etc !!! I could see his point , and am reluctant to have further surgery in case I might need it for the AS later on ( who knows with this bum disease ) .  I did say I was concerned that AS could develop in that area and he said he would see me again in 3 months to monitor everything closely . So it was the best outcome I could have hoped for really , even though it means  I have to lump my lump !!!    Have you any news on your results yet ? Good luck with the Camp on Saturday , hope you have a great time .   Hugs , Jill xxxx     ... View more