Breast Cancer Now Forum

Hi Sianie.... Just to say I was diagnosed with bone and liver mets in 2011. I have had letrozole and herseptin regularly since finishing chemo summer 2012 and doing very well xx ... View more

I know the feeling iv put so much weight on this past year and it just seems to be rising daily. I am also HER2 positive with liver and bone mets on letrozole and herseptin. I am just thinking now is there any way to control this weight gain ....help !! ... View more

Ha ha just read the thread, how weird.....I was a TA for 14 years, loved my job...was diagnosed in december 2011 with breast cancer which in early 2012 was confirmed to have spread to liver and bones. Had course of docetaxol which through my grocian line gave me sepsis and pneumonia and landed me up on intensive care luckily I recovered from it and am now doing very well on herceptin  and zometa. But on recommendation from my doctor was told, of course you will want to do the things you really want to do,so went down the route of retirement through ill health, which I think  I followed thinking that the doctor was saying you really have not got long to live. But I now realise no one knows how long we all have but I'm glad I took this route because I can do all the things I want to do ....I go into school and help when I want to which gives me the normal and I can see my children and grand children too but very important I can do things for me ..I've taken up my art again ...I walk and love being a lady that lunches lol ..good luck to all us ladies  Jo xxx ... View more

Hi vicki i know exactly where you are at today :-(( it takes a while to get your head round it and all you can day is work through it day by day at the moment ....you are right about the private messaging I will try and work that out I'm terrible at all this technology xxxx ... View more

Hi to you both ....not been on here for a bit so not seen your messages 😞 ......I'm so sorry to here your latest diagnosis vicki I know you were so hoping for better news and as much as it gets easier to live with in time it is never a happy result to get ....is this from the royal Marsden with continuing treatment there? It sounds as if we are all three of us quite similar in diagnosis unfortunately bless us :-((( Christine we were in oncology at the same time which for me was a longer appointment than it can normally be as it was so busy !! I go every 3weeks for herseptin and every 6 for zometa my next appointment is 10th of march I really think we it would be nice to meet for coffee as soon as you both feel up to it ...I live in kingsthorpe so pretty central to meet up anywhere hope to here from you soon Jo xx ... View more

Hi Christine we were there at the same time lol my appointment was 1.30 mind you mine was in the oncology suite but they were running an hour behind Which can be often ....I'm glad your feeling better today .... Hi vicki hope you are feeling ok Let's hope this bloody rain keeps off a bit we need some sunshine it does make you feel so much better Jo xx ... View more

Hi to you both ...Christine so glad you have started treatment I was down there this afternoon for my herseptin we might have been there the same time lol ....zometa next cycle I have that every other herseptin....it does help with pain and really has no side effects so it must be radiotherapy making you sick:-( Glad to here Vicki you are nearer to start of treatment its just the dreaded bloody waiting that gets you down it's better when you get going keep in touch Jo xx ... View more

Hi Lucy/Christine.....lovely to here from you both ...Lucy glad to hear Monday went well , did they explain why treatment is slightly different ..it's funny we all have different treatment isn't it. But that's why they say cancer is so hard to eradicate because each cancer is so individual too. I had mastectomy first, mind you they didn't realise it had spread  until they tested lymph node sample ....then I had another operation to remove those ....then only after scans did they find it in liver and all down my spine and in hip. I then went straight onto chemo and no radiation. Now herceptin and zometa along with a daily dose of letrozole which my oncologist said on Monday is doing its job of holding it 🙂 another scan in 3 months so so far so good....I did ask oncologist why letrozole as opposed to tamoxifen he said they both do the same job really but they give letrozole to post menopausal women usually ....have they explained all your treatment to you ...mind you it's hard to take it all in ...Christine I'm so sorry to hear of your pain lets hope the infusion works did they say what that is .....hope you both have a restful night ...speak soon Jo xx ... View more

Hi Lucy and Christine hopefully you have both  not had too bad a day ....I've have a busy day with grandkids:-) just a quick good luck Lucy for tomorrow let us know how it goes ....I'm off to see my oncologist tomorrow as a catch up on how I'm doing and to decide whether another scan is needed .....I have one every three months generally to see if it's all still holding 😕 Jo xx ... View more

Hiya Christine and  Lucy hope today has not been too bad for you both ...I can so relate to what you both say...you are where I was two years ago now ...wow the time has flown. I too am sorry to here Christine you are in so much pain in your hip ....I get it on and off it seems to come in waves....I take both paracetamol and strong ibuprofen or co codamol then at night I have sleeping tablets and amitryptaline that works and I have a lavender cushion pad that heats up in the microwave that helps.  Lucy how good you are going for a second opinion does that mean you will be under the royal Marsden for treatment?  I don't know whether you are going through the same feelings I had and still have sometimes regarding the kids, I felt so sorry and guilty for putting them through this.....you always want to protect them and here you are the person they depend on for safety putting them in this terrible situation. That eases as time goes on and they are surprisingly very strong. I can only say that how hard it is now for you both it does get better .....you do achieve a sort of general peace and acceptance and work out your way of coping for a lot of the time obviously not all the time but you do get a funny feeling of serenity and see how beautiful the world is.....gosh I'm sorry about that it got a bit deep!!! but honestly that's how you get to feel.... im able to meet up whenever suits you both ...Jo xx ... View more

Hi Christine and Lucy hope you are both good today, I remember how it is in the beginning .....how so exhausting it is, like doing a very very hard full time job with no let up ....you work hard with this cancer business!!  It sounds as if you are both young......I'm 54 and so disappointed I've got it at my age so you must be so very confused and angry right now. I've got four great kids and 8 fantastic grand children they are my reason to keep going and keep me life busy, please stay in touch hope to hear from you both soon x  ... View more

Hi Roxy 66 and Lucy21 it's so lovely to hear from you both although under such sad circumstances. I'm so sorry we are all here. I'm the same virtually as you both but a lot further along ....I found a lump on my birthday december 2011.....had a mastectomy in January 2012 then lymph node removal in Feb ...then in March it was found to have spread to my spine, hip and liver .....had chemo that year which held the cancer and am now continuing on herceptin indefinitely. I have an oncology appointment on Monday actually to see how I'm getting on. I'm very well generally but I've been in bed today with a really sore throat 😞 I am able to meet up more or less whenever suits ......I know how daunting it all is in beginning xx ... View more

Hi Christine great to here from you although must hasten to add  circumstances not the best....I'm so pleased to find some fellow mets ladies locally ....I am also under Northampton oncologist department and a regular visitor, finding all staff to be lovely and helpful .....as I say I would love to make time for a coffee so whenever you can we can make an arrangement to meet up somewhere xx  ... View more

Hi Lucy it's lovely to here from you ....I'm sorry you have got this diagnosis it takes some getting your head round doesn't it?  I understand you're busy at the moment it's like doing a job when firstly diagnosed all energy and effort is put into it and it's very hard work. I'm so glad to here from somebody near ....I tried last year to make contact with someone but with no success ..please just contact when you are able xx ... View more

Thank you so much for that info ....I'm still trying to find my way about and how it all works ....May take a while xx ... View more

Hi Lucy my name is Jo, I was the lady that posted last year to try and organise a meet up, I would love to get together.xx ... View more

Hi there, just seen your post, I too have secondary breast cancer and live in Northampton. I would love to meet up.xxx jo ... View more

Hi Ruthy 1 I have just seen your post....I too have secondary breast cancer to bones and liver, live in Northampton and would love to meet up and share notes .....like you say it's an isolating illness nobody quite understands ...how could they but it does set you slightly apart ...oh I do hope you see this post. Xx ... View more

hi thankyou for responding ..it wouldbe lovely to chat. It can be a lonely old business this  cancer lark  cant it?   ... View more