Breast Cancer Now Forum

Hi there, try bit to dispair. Palbo didn't really work for me, I got multlipe liver mets. The good news was Cape cleared u p the liver mets completely and improved and stabilised the bone mets. I got 24 cycles out of it. A couple  bone spots have popped up so I unfortunately need to change. Keep your feet very moisturised and wear good trainers as much as you can. You need to avoid getting hacks on your feet. I had great quality of life on it, travelled a lot, to the states and Europe. I have an 8year old. Its tough but there's hope!  ... View more

Judith my eye sight has gone a bit fuzzy. Only now abd tgen but get very blurred and tgen it clwars again. Weird. Might be a side effect as my eyesight always goes a bit foggy when i start a new drug ... View more

Sarahlouise, i felt fine on first cycle but goy hit realky badly on 2nd cycle. My feet were so bad. They did peel after that cycle and the skin was coming off in sheets (yes gross i know) after that i got a 20% decrease and it helped massively. I thought i would never feel better but i feel very well now on cycle 4. My hand killed me on 2nd cycle too. Couldnt open drawers in my kitchen or cut things for cooking. It will pass. I had to put trainers on if i needed to get up and go to loo in middle of night. You need good trainers/sketcher type shoes (i got cheap version in tesco for 15 quid) wear them much as you can out and about. I wead crocs in house too which help to wirh cream on my feet and let them breathe. As awful as you feel now it will get better ... View more

To the new people. I had a horrendous cycle 2 after breezing through no.1. My hands burnt and started to peel. My feet lost layers of skin. I ended up having to cut the peeling skin off with a medical scissors my nurse had given me. Dose was reduced on cycle 3. Feet and hands much better. Peeling has stopped too. Keep moisturizing your hsnds and feet. I must try the udderly cream! Got scan results from 3 cycles of cape. Good news. It has cleared a lot of the multiple tumours in my liver. Bones stable too. Onc very happy. We continue on with cape. I didn't have a as good a result on abraxane but i suppose it depends what treatment works best. Im hoping this good luck continues on. Hoping to book a little sun holiday now the first scan is over! ... View more

Nicky and tatyana sorry to hear you have had a little progression. Lets hope the new treatments will kick it into touch. Just had my scans after 3 cycles Dont results until next week. Feeling very unsettled and nervous and not sleeping great. I know thats normal but scans never get easier do they! Hope you are all keeping well. ... View more

Wow George thats a great achievement! Tatyana great to hear you are goimg on holidays. Sounds fab. Tatyana and Nicky170 good luck with those scans. My first one is at the end of the month. So i ended up getting an extra week off meds for my feet to recover from my 2150 twice daily dose. Feet and hands feel back to normal. Lots of peeling on my hamds even though i had tonnes of moisturiser on them. I'm being reduced to 1950 twice daily. Im hoping this helps with side effects. How are your side effects nicky170? I know you are worried but this drug has been very effective for lots of people. Lets hope we all fall into this category. Lizzie hope you side effects have eased up. An extra week off really helped me. Nicky08 very positive to hear you have been dealing with it this for 10years. Tobyjoe my side effects hit on cycle two. Keep feet and hands as well piled as you can. I have ordered doublebase gel from gp so hopefully this will help ... View more

Feet and hands definitely starting to feel better. A relief to be able to walk without hobbling about! I feel bad getting a reduction as I have had very few side effects on other treatments. I hope new dose will be effective on my mets. Its scary to get a reduction so early on! ... View more

Just an update, been given an extra week off to recover. Onc is worried if we continue my feet may split and I'll need more time off to recover. Reducing dose by 1/5. 4300 is clearly way too much. Hopefully feet and hands will recover over next 10days ... View more

Thanks for replies. I'm seeing my oncologist this evening so will report back. Thanks for the advice. Great you had a nice break George. I really want to be able to travel as much as I can too so hopefully i van get the sude effects under control. ... View more

Thanks lindyloo Im 42 so probably why im on high dose of 4300 (5,6ft 11.5st) Second cycle has been agony on my feet. My original chemo Fec-t was easier. My feet are sore to walk on and cant twist key in my door! Feel well other than hands/feet. Just scrolled through older pages and wonder if people were lowered because of side effects or neutrophils. Am wondering how much of a reduction will make a difference. ... View more

Hi ladies,can you remind me what dose you are on? I'm on 4300 a day. Very very sore feet and hands. Also way too much bowel movement (sorry too much info!!). Just finished 2nd cycle but think we will have to reduce! Onc said its normal to reduce after cycle 2 when side effects kick in. What did you reduce to? Greece sounds fabulous! Oh i need some sun! ... View more

I just checked in to see if you updated George. Great news, a relief I'm sure! Very happy for you. ... View more

Lizzie, i had a plueral infusion too about 2 years ago. My ai arimidex was my first line of treatment for secondary and it appeared after 3 months. So my ai failed. Chemo cleared it right up thankfully and have had no issues with it in 18months or so once it has cleared and you have had proven success on an ai hopefully you can use one again. Janieb im sure the doctor can sort early drug collection. Enjoy your holidays. George best of luck with results tomorrow. Let us know. I'll pm you after about info on your doses but will let you get tomorrow out of the way first. My feet are still sore intermittently. When it is sore it is very sore. And my hands. Moisturing away but the burny feeling is really annoying. Its not unbearable but i have been spoilt with very few side effects in the past. As long as it works i will put it with it ... View more

Thank you for sharing Sweep. It is great to hear how well you are doing on cape. Gives me hope with these liver mets that have appeared. George also good to here the lower dose is treating you well. I had my feet on ice this evening. They feel a lot better and now full covered in aveeno with socks on. Best of luck with the results on tuesday George. Lets hope for stable or better! Hope everyone is doing well ... View more

Hi ladies, I'm on my second cycle of cape. Generally feeling very well. Feet are sore today but they tend to ease up during the day. Littlelizzie my dose is also 2150 twice daily. I'm 5,6 and 11.6 though (I'm also 42). How are your side effects? Not sure I want a dose reduction yet as I have diffuse liver mets so would like to give it the 3 cycles and scan first. I find good trainers a lifesaver when my feet get sore. It has been very infrequently. Instead of slippers I use sketchers and trainers when I'm out and about. I wear regular shoes when it eases up. Anyone had success with reducing liver mets? ... View more