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lolly73
Member
since
01-05-2012
675
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3
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07-03-2016
08:57
Yes please August13, info would b great x
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07-03-2016
04:38
I had bc in 2008 age 34 and had wle, snd, rads, tamoxifen, zoladex, oopherectomy, exemestane. 6 years later in 2014 it returned in same breast. Had mx and on letrozole , plus alendronic acid as osteopenia from hormone treatment too. mx scar took 5 months to close and had 2 infections. I was told this was due to 3 surgeries same area plus rads damage from 2008. Almost 2 years on whole area still tender and so tight across side and chest. I was told from scar tissue and rads damage. But now surgeon wants to do a ct scan to check area. Anyone know what he is looking for and if this sounds normal?! Also talking about expander to help with tightness. Anyone got experience of this? many thanks in advance x
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03-09-2015
11:51
Oh thats interesting, thanks. Perhaps it is the Cipla brand then.....
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30-08-2015
10:43
I take mine at 9am. On Cipla at the moment but seem to get different brands every prescription.
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27-08-2015
06:57
Nicola jane do next day delivery on website so yes u may be able to get one on there for delivery saturday? I am a D cup and recommend the bean a boob, about £25, which has the right amount of droop but is light and cool x
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27-08-2015
06:54
Hi, at my hosp they keep a few in their cupboard. Maybe worth ringing ur breast care nurse in case she can sort one out for u tomorrow? Enjoy ur holiday x
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27-08-2015
09:51
I was told I was be on zoladex for 2 years, but had my ovaries removed after 16 months anyway x
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27-08-2015
09:48
I have been on Letrozrole for almost a year and am having terrible trouble going off to sleep and then staying asleep. Fed up of watching the clock all night. Could this be the Letrozole? Anyone else got this problem? Thanks x
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13-08-2015
01:22
Hi Rosie, looks like our mx was the same time then, July 14. Have you asked ur nurse about this tightness? U r right, it is a bit like a bp machine feeling! I hope my nurse is wrong in that it may never go now.....
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11-08-2015
09:42
Hi Jill, can I ask when u had most recent mx? I had mine 13 months ago and the tightness and pain is still so bad I cant be without a bra, even in bed. I find the bra relieves it in some way. I cant really massage as ribs etc too tender to touch, due to rads I had 7 years ago when I had wle. Still cant turn over in bed. Hoping for improvement but my nurse says it may never go......
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11-08-2015
09:38
Hi, I had wle and rads in 2008 and in july 2015 I had mx due to recurrence. 13 months on, I cannot be without a bra due to pain and tightness. I even sleep in one. I cannot sleep on that side for more than 10 mins and I cannot roll over in bed. I cannot touch that side even to wash, as ribs are too tender from rads 7 years ago. I also have lots of scar tissue from 3 sugeries same side. My nurse doesnt seem too bothered and just says it may always be like this. Great, Im only 41!
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29-07-2015
06:07
I took tamoxifen and zoladex for 3.5 years, then changed to exemestane for 18 months after ovary removal. Stopped after the 5 years total hormone treatment and 1st mammo the following year the cancer had come back. Now back on letrozole another 10 years. Wish they hadnt stopped me at 5 years....
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29-07-2015
07:56
Hi, for anyone who has had mx without recon, do they ultrasound that side each year when the do mammo other side?
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29-07-2015
07:51
Hi, yes i had awful carpal tunnel whilst on exemestane. I am now on letrozole and the carpal tunnel symptoms happen very rarely. Maybe u could swap drug? X
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15-05-2015
12:41
Hi Ali1962, my remaining boob is a d cup so i know a bit of how hard it must b for u. I hated my softie as it sat so much higher than the droopy d cup. I used a bean a boob from nicola jane, about £25, as it had a more natural droop and sat more in line with other side x
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12-05-2015
10:57
I had mx last july (3rd breast cancer surgery to same side) and the wound did not stop leaking yellow fluid and close up until december. I was told it was due to tissue damage from old scar tissue and rads 6 years ago x
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05-05-2015
10:53
I was diagnosed at age 34 and was on tamoxifen and zoladex for a 18 months. I then had keyhole surgery to remove my ovaries, and moved onto exemestane. I finished the exemestane at the normal 5 year mark. A year later and the cancer returned. So for me, having my ovaries out seemed to make no difference as my cancer was 8/8 hormone positive again. Now on Letrozole.I am also now on medication as i have osteopenia due to ovary removal at age 36.
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26-03-2015
10:27
All these treatments affect us all differently. Some people have more side effects and for some people the benefit in taking them is huge, even though we may not realise it at the time. I took hormone treatment for what was then the standard 5 years. One year after stopping, mammo showed cancer back again! 100% hormone positive again. I wish I had never come off these tablets and then almost certainly the cancer would have stayed away. They clearly do their job for me, so this time its 10 years or more on them hopefully!
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