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Pollymg
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since
17-09-2012
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15-03-2013
06:10
Hi Fluffy,
Its a strange time and we all know just how erratic things feel. One minute you are ok and then it hits you again with such force its overwhelming. Its a horrid thing to have to go through but no news is good news for now. Try and keep busy, talk about it if you feel like talking, shut yourself away when you don't want to see anyone and let those close to you help.
Good luck with the results x
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14-03-2013
10:18
Hi Sunshine Lilly,
I remember that feeling well. Cycle 5 was my worst one too, not coping or able to see a way through.
I am now three months past treatment and can only describe how wonderful the journey is out of the chemo zone. You have this to look forward to - just around the corner. It is such a lovely process after such a horrid time.
Hang in there x
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14-03-2013
10:10
Hi,
For me any chance of improving survival rates was worth taking. Chemo is temporary, yes horrid but if you take each cycle at a time you reach the end before you know it. I found that I improved quicky once it was all over and enjoyed getting back to life again with a new spring in my step. I felt like I had achieved something.
Good luck with your decision
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14-03-2013
09:54
Hi everybody,
Thank you all so much for your replies and support x
It was actually quite exiting to log on and read your thoughts.
I do understand that my body will continue to make oestrogen through fat but does anyone know if this is at a reduced level compared to oestrogen produced from ovaries? I know I would still have to take tamoxifen to control the effect of the oestrogen on any breast cancer cells but wouldn't I have also reduced the risk of ovarian cancer by having the op?
Di- when you say side effects are pretty awful, could you tell me more? How soon after the op did it begin, has it improved at all over time? Do you regret having the surgery considering the risks you faced?
Sumica- you are a brave lady and everything you said makes perfect sense. I think you have a very practical approach compared to my emotional one.
I look forward to reading more
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14-03-2013
09:30
Please go and see your GP in the morning. I totally agree about insisting on getting checked out at a breast clinic, they are fantastic. You will drive yourself nuts with worry if you don't. Best to get things checked out and will probably be nothing. Good luck!
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13-03-2013
03:59
Hello, I am trying to make a decision about having an Oophorectomy as a preventative measure following seven months of treatment for DCIS. I had a mastectomy in July 2012 and have graduated from Chemo and Radiotherapy classes since then. Currently I am taking Tamoxifen and begining to think about going back to work in a couple of months, I feel fine most of the time although I am anxious that maybe I could be doing more to help prevent a re-occurance which is why I am asking for your thoughts and experiences.
I accept feeling anxious is a normal part of this process, but as I understand it having an Oophorectomy (as a pre-menopausal 42 year old) would actually give me better long term survival rates than if I continued with Tamoxifen on its own. I have ruled out Zoladex as I don't want any more children and have no need for my ovaries to start working again in the future.
My oncologist refered me to a gynaecologist and they both agree that although there is no immediate danger they completley understand why I want it done. They have also pointed out the results of it would be an instant menopause which I must not underestimate and the longer term risks of osteoporsis, both of which could seriously affect the quality of my life - which I am just begining to be able to enjoy again...do I want to risk that? I also know I don't want to simply take my chances.
The big question is do I or don't I?
Have any of you made a similar decision, been through the surgery or had any side effects from it yourself? Your thoughts and experiences will really help me decide. I go back to see my onc in two weeks and I need to have made a decision by then.
Looking forward to hearing from you, many thanks, Polly x
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17-09-2012
01:28
Hello everyone,
I too have just booked myself onto the Liverpool forum in the hope that I can start to face up to what has happened to me in the last couple of months. I was diagnosed at the end of July - just four weeks before my wedding (!!) and then had a mastectomy less than a week later. I am glad to say that I did make it into that dress with the help and support of my lovely husband and wonderful breastcare nurse. I have had round one of chemo which really knocked me for six and will have had round two at the begining of the same week as the forum so am a little concerned how I will be feeling. My hair is falling out and I don't like it.
It is reassuring to read lots of comments about life after chemo and going back to work and to know that there will be people at different stages of treatment to talk to about their own experiences. I am looking forward to all your positive energy!
Polly
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