Breast Cancer Now Forum

Hi Victoria, hope your doing ok. I was told I have mets in my ribs 2 weeks ago. Been unsure about it for 2 years. Sounds like you have had it rough. Here if you want a chat x ... View more

I've been on tamoxifen and now exemestane for about 6 years now. Been on a adcal for years too as have osteopenia too. I've been told I'm staying on exemestane as it's obviously working... is it though? These mets have developed while taking it, that's what I think anyway. Thanks for your support x ... View more

Hi there, please may I join in. Thanks for the invite Carolyn. I've been diagnosed with mets in my rib near my mx site. Can I ask others if staying on your hormone tablets and having 4 weekly dam??? Injections is normal course of treatment for just bone mets? Sorry don't know the spellings. I was originally diagnosed back in 2009. I'm worried about the jaw rot side effect most. How have you all coped with it? Thanks in advance for any advice you can share x @finty wrote: I was dx with a bone met at original dx in Oct 09. Recently I have been shamelessly picking the brains of other ladies with bone mets wherever I find them, and have found the process very helpful and often encouraging. It has enabled me to be less panicked about my prognosis, and given me a much better understanding of my condition. I now have a whole new set of questions to ask at my next consult - bet my onc can't wait! I know I would find it very useful to have a designated thread where experiences can be shared, and advice sought - so if you agree and also have bone mets perhaps you could check in here and we could get the process started. I know it's a bit quiet at the moment, with many away on holiday - but here goes ..... finty x ... View more

Hi lynnq I too was diagnosed with hiatus hernia in dec, I had never heard of it. A few weeks before my ct scan I had been to docs with reflux and was given omprezole which really helps. Can we not take ibuprofen with this condition? . I'm glad your mets are under control too. My tumor markets are normal as far as I know anyway. I am on adcal but no bone strengtheners. Thanks for your reply ... View more

Hi can I jump in and ask you girls a question. I've been told I have about 4 hot spots on a bone scan but not yet showing on ct or mri. Due to pain at bottom of spine and the bone scan I'm being treated at early bone Mets and being kept on Examestane which they think is making the mets slow growing. I'm being rescanned in 5 months. I apparently also have several hemangiomas in my spine too. I just wondered if anyone else had similar diagnosis and wondered how long the hormone drugs alone kept working? ... View more

Was wondering, how many of you had mets that were difficult to diagnose? My xray, Ct, and MRI were clear but my bone scan showed 3 hot spots. They say I don't have mets but won't guarantee it. I have to wait another 6 months before they will repeat a CT scan.. Can't help but worry. Just wondered if it's normal for mets to be difficult to diagnose ... View more

Hi ladies, I finally saw my own onc this week. They have decided because the X-Ray, MRI and CT didn't show anything they don't think it's bone mets.. But they can't guarantee it because the bone scan showed 3 hot spots. Was wondering if anyone else's mets were difficult to diagnose? They are going to monitor me and do a CT scan in about 6 months. I am taking it as good news but relieved they are going to scan me again... Thanks for your ears again x ... View more